I had my thyroid tested a couple of weeks ago and it showed my numbers had improved again. Quick recap
TSH was 9.28 last May.
FT4 around 14.9
FT3 about 5.3
I went on 25mg of levo. Results came down but silly me didn't accept an increase (I had medication phobias after serious reactions to meds in the past but I am overcoming it now. I then accepted an increase in September and by November my TSH was 2.6, FT4 about 18 and FT3 around 5 still. I felt much better. I suffer from SADs and as soon as end of November hit my mood went down hill and my anxiety became severe. I had an awful 6 solid weeks. I had severe daily physical anxiety, low mood and I could barely eat and lost 8lbs. I feel so much better since March hit mood and anxiety wise, thank goodness but that couple of months took it's toll on my body and my chronic fatigue issues hit hard again.
I had thyroid re tested in January and the TSH had shot back up to almost 6 and FT4 to 17. I then went up to 75mg of thyroxine. Last test 2 weeks ago showed these results..
GP is keeping me on 75mg and we are re testing in May to see how I am doing. We are staying at that dose as my TSH comes down quick just on 25mg incriments and a jump up to 100mg could well take that TSH very low and cause over active type symptoms. It came down in just 7 weeks from 6 to 1.7 so I don't want to take that risk. If the TSH doesn't stay supressed at 1.7 and increases again we are increasing to 100mg.
Ok, now some questions. Is it normal for a dose to bring down the TSH but then when you re test again 8 weeks later it hasn't kept it down at that supressed level? is it normal for it to keep bumping back up and will this eventually stop happening and you can stay at a certain dose?
Also, I started with chronic fatigue about 20 months ago, my GP ran 2 full MOT's of bloods and nothing was found. I have PTSD after an attack 4 years ago and still suffer anxiety and stress due to it (I am in therapy) which my GP thinks' could well be taxing my body causing the daily fatigue. Since they found the underactive thyroid early last year I had huge energy crashes, if I say go out to a park with the children for too long, or over do the house work or if I see my extended family including my own mother I have a huge crash the following day. A crash is where my legs go so weak in my thighs, i feel light headed and almost dizzy/woozy and my whole body feels weak and dained and even walking to the toilet fills me with fear. They happen on exertion or like I said if I see family (it was my brother who attacked me and family resent me for not forgiving him so seeing them is anxiety provoking).
Since the chronic fatigue hit i developed agoraphobia purely due to isolation being so fatigued and feeling so ill. So I have been this bad with the crashes, fatigue daily and just generally feeling blurgh since early last year. My GP blamed the crashes on stress, anxiety or depression, never blamed the thyroid. He didn't seem concerned I got the crashes every couple of weeks and had daily fatigue. Then in January he rang me and said he wanted to run more tests as he had suddenly decided there must be something else making me so fatigued daily. He first became obsessed I had diabetes but 2 tests have proved him wrong, then he assumed addisons disease but my saliva cortisol is high, he then suggested chronic fatigue syndrome which I suggested long before the thyroid issue was picked up. He has me repeating test after test. He found my sodium was low in November last year at 129, but 9 days later it was back up t0 138 but still he makes me repeat it and next week I am again, even though 3 weeks ago it was 134 in a range of 135-145. My neutrophils came back a little low at 1.6 so I have to repeat them next week which is fair enough I understand repeating them but he is making my anxiety so severe.
I have found the energy crashes and daily fatigue very worrying for over a year now, everytime a crash happens and I have to have a day of rest I have severe anxiety all day and sit and cry because I have no idea why they happen and my GP has done nothing to reassure me and now he suddenly is panicking about them which is making me very anxious about my health. My last 3 MOT's have been fine, only the sodium low once. I had a recent full blood count which showed my neutrophls low but rest of it was fine. So hopefully that's a one off and nothing to worry about but of course my GP told me I was at risk of infection overload if I got ill right now I am a nervous wreck and dread talking to him the lat 3 months because he is making me so anxious going from one test to the next. In November he tested everything adn he said if they came back normal then it surely was just chronic fatigue. I had full bloods, kidney and liver tests, glandular fever, nuclear antibodies, blood films. HBA1C, chloesterol, gout, b12, folate, ferritin, iron... you name it I have had it tested. All fine just sodium goes a tad out of range here and there but at the moment it's 0.1 under and he is flapping and scaring me.
My husband and friend think I need to change GP in the practice as he has no idea what he is doing, he blames my fatigue on mood and anxiety then says he thinks it's something more sinister. He then goes from one disease to the next. This is why every crash and ever day I feel fatigued I sit crying as I have no idea what is wrong with me. Can I really blame this on thyroid and tell my GP do leave me alone with that needle? I can't take anymore tests, I am turning into an anxious wreck
This week we had norovirus in the house, I made hubby stay in the bedroom and I spent the week taking care of the children, myself and the house. Thankfully none of us got it but I ran myself into the ground cleaning like a mad woman because my GP made me afraid if I caught an infection I'd have infection overload. By Thursday I suddenly crashed and landed myself in bed for the day. I have felt a little better since the crash but still feel worn out and weak legged. I walked up the stairs today and had to have a little rest on my bed before I carried on, that's why I worry. I am 37, I should be able to walk the stairs without some days being so out of puff and heart pounding. I have only had 5 hours sleep every night this last week due to being so busy and sleeping in my sons bed as hubby had our room. Maybe it's all caught up on me.
Sorry this got long, I just feel confused and worried why I have chronic fatigue, it's daily but then some days are worse than others. I am better than I was a year ago as I was bed ridden most days and i have felt better on levo but since the 75mg increase I did feel a little worse so wondered if it didn't suit me but maybe it's still the effects of the winter depression I seem to suffer the last few years. If anyone has any input on what to do about my GP or my thyroid results I'd appreciate it. I just feel at a loss with him right now.