So following on from GP, sneaky GP posts following months of feeling rubbish, stressed, angry, anxiety through the roof, mood so low keep randomly crying . Bloods last year TSH 0.01 and FT4 21.6 (12-22) , explained about T3 suppressing TSH but Sneaky GP reduced meds .
Have felt awful as my being MIA and general lack of interaction shows. Febs bloods TSH 0.01 FT4 17.2 (12-22) despite my arguing I have no thyroid so it's non sensical basing decisions on TSH they refused to reinstate my 150 mcg dose Levo. HbA1c up to 54 <41. So I told them I would be increasing a little, she had put it to 125mcg daily so I added in few days of 150mcg to at least try and stop it dropping further.
Just had last bloods TSH 0.01, FT4 13.3 (12-22) no FT3 as usual comment says target for T4 treatment is TSH within reference range 😡 they did B12 and folate again , this time
serum B12 >2000 ng/L (197-771) serum folate 4.2ug/L (3.9-26.8), HbA1c now gone up to 66 <41.
My lipids have now gone down to 4.4mmol/L <5.0 . Really not feeling great or coping well at all. Have sent off BH Thyroid Gold this a.m so will get other results hopefully this week. I need you lovely lot to post links , etc of up to date evidence to argue my case, can't go on like this. Sad about HbA1c going higher, my diet hasn't changed I'm careful about what I eat mostly , think it's down at least partly to crappy thyroid management and ADHD, HELP
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Polo22
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Tee’d off for you. Noted your lipids have reduced and your HbA1c has increased. I wish someone would do the research on this. We do see it reported on the Forum. This is entirely theoretical but I think this shows some improvement in metabolism when this happens. For me without much sign of real improvement in the areas I really wanted to improve (well being) my lipid level dropped from 9.9 and continued to drop and is now 6.4. No statins etc.
A very short intro of T3 made my HbA1c rise. It dropped back again quickly after stopping T3. This, on first glance appears to shows a bad change in metabolism. I think this will be temporary as the metabolism gets more into its stride. My thinking is that safely stored excess glucose is being released back into the system for proper excretion, due to taking thyroid medication. BUT it would be as well to address any dietary issues possibly connected with Type 2 Diabetes too when this happens.
Remember hypothyroidism is an illness expressed through metabolic activity (or lack of). Something is still happening for you. Increasing glucose level rises are a ‘thing’ clearly associated through our out of sync metabolism and no-one seems to have sussed out precisely why this happens, even when you are on thyroids meds.
Your doctor sounds pretty uneducated. That T4 level does not look brilliant to me but you need a T3 level to know quite what your next step should be. Get privately tested rather than sock it out with your uneducated doctor who is just sticking to the ‘script’.
Again it would be just great if some research was done on this, considering the emphasis doctors like to lay on this stuff.
waiting on BH results, so will have more info later in week hopefully. Although I don't eat lots and don't eat ready meals or processed stuff I am going to try and eat more. My main crave is bread, carbs often in the day I'll just have a sandwich so I always make the effort , if I'm making a cheese one it will have lots of salad /veg or if he's made his cheese and sundried tom bread I'll have veg soup, home made. Think it's back to the Pinch of Nom stuff, I have always found especially since TT that there is a very narrow range of calorie intake which works for me, have to go very low to lose weight but can easily end up going too far and not losing or putting it on. Think someone mentioned on here that obviously we need more energy for our bods to cope with our wonky metabolism and it makes sense as have struggled since my thyroid ended up in a jar
I was on 150 mcg for years never had a problem with HbA1c it started after being put on some antidepressants in 2019, a known effect of this drug, I was too ill to argue at the time and then no one told me until I was dx type 2. Yes trying to sort out less carbs, doesn't help that they have mucked up my thyroid levels to the worst they have ever been. Any nice recipes ? Trouble I'm going to have is I have a very limited range of food that I could cope with
These results flag up a need to increase folate and Vit D (low makes you feel miserable) and as you say adding back a little more T4 to get things all above mid range
Gosh for someone with a lowish T4 level, your T3 looks good. It explains why your TSH is low but you really need admin to look at this, so I have taggedSlowDragon for you. If no-one is able to reply to this new info on your post, maybe start a new one stating it’s for someone to review your new results.
Yes I self medicate with T3, before it would be scraping into bottom of range even with FT4 at top or above range, poor converter? It has dropped since drop in dose. Think the last result for FT3 was 6.1 before the T4 dose reduction, my HbA1c was 54, FT4 was 21.6.
but HbA1c gone upto 66, FT4 13.3 FT3 5 ,and folate down, vit D down , TiggerMe still supplementing , have missed odd dose due to fuzzy brain and falling asleep but mostly remembering
Yes , I supplement Magnesium too, like with folate and vit D have missed a dose here and there but mostly taking it , usually take one morning and one evening, but occassionally missed recently as have been all over the place.
Yes I self medicate with T3, before it would be scraping into bottom of range even with FT4 at top or above range,
So GP won’t be happy about suppressed TSH UNLESS you are under care of endocrinologist
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
Which brand and is it always same brand at each prescription
How much T3 per day
Do you normally split the dose
Was test done as recommended
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test
Exactly what vitamin supplements are you taking
Serum Folate 11.70 (8.83-60.8)
Vit D 60 ( 50-200)
assuming you are normally taking daily vitamin B complex
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)
Test done as per recommendations on here, taking 37.5 mcg T3, split into morning,late afternoon and late evening/bedtime. No they aren't happy about the T3, and as per they won't listen about TSH. Money is quite scarce at the moment, so can't do the private route unless my numbers come up on Lottery, however waiting on an appointment with NHS endo, when I enquired if referral had been accepted the secretary said I was lucky , over 90% apparently get bounced back to GP. She asked if I had a preference of who I saw, although couldn't guarantee, 100% I'd get my preference. The name I mentioned was off the TUK Uk list and she said yes they are still here and she would try. Same brand of Levo, I can't put it back to 150 mcg as I would run out , but I am taking the 125mcg most days and 150mcg 2 or if poss 3 days a week as they have refused recently to reinstated my 150mcg daily and worried I will run out. Just checked I can probably stretch to the 150 mcg 3 X's a week for now and have another free and frank discussion with surgery.
I am running low on my supplements so going to check lowest stocks and try and order more over the next few weeks/month , haven't the pennies to do it all at once.I take Vit D 2 a day , 400iu, enough left for 3 weeks, longer if I only take 1. Vit K 2 mk7 2 weeks,
Folate is (Pharmanostix) brand methyl, have 25 left, says one a day, . B complex (Pink Tribe) enough for 5 weeks . Magnesium Glycinate have 9 , so I'll just take 1 a day till get more. Take calcium when I remember 3x's a week so have plenty. Flaxseed oil capsules take upto 5 a day, I'll take 3 and they'll last 3 weeks. Need some vit C, any recommendations for good brand. Yes I stop the B complex a week before tests. I also have some Zinc +copper which I forgot to take more often than I remember, it says 2 a day but when I remember I take 1 couple of times a week, I haven't remembered lately. I have vit A drops should take 2 drops a day which I rarely remember, I don't have the genes to convert Beta carotene to vit A. I did get some collagen powder stuff to add into smoothies and stuff but it's a bit yuk so when I'm feeling brave I just add it to a small drink and gulp.
Of course it should have been TiggerMe I should have tagged under the circumstances and she definitely thought you should increase levo! Apologies for bungling in when you have had better advice!
No apologies needed, just grateful for responses , this rodeo has us all questioning ourselves at times and I appreciate all the knowledge, support and help here.
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