Hello again. Much has changed since my last post and sadly not for the better. Just a reminder - I am 62; female; had Hashis for 27 years; on synthroid for 25 years with ongoing symptoms.
For most of last year I worked with Erfa, NDT, at different doses. No matter what I did I eventually went hyperthyroid - still with hypo symptoms but also with heart palpitations, agitation, even more sleep problems, hair loss, hoarse, etc. The doctor I am working with said she thought I might have thyroid "resistance" and that the T3 was likely pooling in my blood and she wondered about my cortisol/Adrenals. We decided to reduce the ERFA to 120 mcg late October in order to stabilize even tho we knew I would be hypo at that dose.
Late November I had the DUTCH test done. It showed:
low early cortisol at 9 (range 12-40);
low mid-day cortisol 57 (range 38 - 120);
high afternoon cortisol at 25 (range 7-21)
mid range late cortisol 5 (range 0-10). It also showed that I am a poor methylator.
My reverse T3 was mid range at 17 (range 9-24). my FT4 was low (13.7 range 10-25) as was my FT3 at 4.2 (range 3.5 to 6.5). Not surprisingly I felt pretty terrible. TPOs were 88 (range - normal less than 35) they have slowly been decreasing over past two years.
I spoke to Janie Bowthorpe just after Christmas, and she recommended I get off the sleeping pills I was taking (long history of insomnia) reduce the ERFA to 60 mcg (one grain) to reduce my T4 and clear some of the reverse T3, and then once two weeks clear of the sleeping pills start circadian T3 program with Holy Basil in the Afternoon and at night to reduce cortisol.
I have now been doing that for four weeks and I'm not feeling very well. Currently I take 20 mcg of T3 at 4:30 a.m.; 15 mcg at 10:00 and 15 mcg at 3:00. Not taking any Erfa ( for about a week now - I had been taking 60 Erfa in the afternoon but then switched to 15 mcg T3) as I had not been having a good response.
Resting pulse usually between 58 and 62. Body temp fluctuating -now sometimes get up to 37 degrees but mostly around 36.5 Blood pressure no higher than 101/67 and usually quite a bit lower (systolic usually around 92 and diastolic between 56 and 68)
My recent labs (I had taken my early morning T3 at 4:30 and the lab was done at 8:00) were FT3 7.5 (range 3.5-6.5) and the FT4 was 5.8 (range 20-25). My doc was not thrilled that the T3 was above range but I think it is still too low.
I had a paradoxical response to the Holy Basil as it made the chest tightness much worse so stopped that (I tend to have opposite reactions to quite a bit of stuff).
I am gluten free, egg free, very low dairy, caffeine free and do lots of supplements. Iron is all ok; B12 and Vit D good; going to get my glucose tolerance tested.
I have been reading Paul Robinson's books but still don't quite know what to do. Hoping to get connected to him on Facebook but that may take a bit as I don't have a Facebook page.
Still feeling VERY hypothyroid and can hardly get out of bed in the morning.
Wondering if my dosages are still too low ? Is the timing off? Any other suggestions to help with the Cortisol issues?
ANY ideas would be gratefully received.