I just thought I would share with you all that I actually saw a gp who has basically given me the go ahead to try treatments and has listened to what I want!!!!! I know bloody miracle right? I have to say thank you to you very knowledgeable helpful people on here who advised me to get the blue horizon testing done, it was soooo the best advice, my blood test came back with 8/12 tests not in correct ranges, armed with a copy for my gp to keep i went to the dr expecting a fight but I am now on treatments for low iron, vit b9, b12, vit d and even though my latest tsh was 2 I asked to up my Levo another 25mcg to get a reading nearer 0.5 and she agreed π I actually feel I'm starting to feel better and get a spring back in my step, just need to shift some weight now. Thanks again for the advice and good luck to others xx
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mel35
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Well done! That is so heartening to hear there are some GPs that will listen (I assume you are in the UK?) - I did the same & she sent the results to the Endos but they said no need to change treatment, and she is unwilling to do anything outside of 'guidlines' - she did give me iron though.
I wrote down lots of advice from things I've seen on hear and managed to blag her I was knowledgeable and asked the right questions, a few tears and begged her to let me try, started b12 last week need the 6 injections over 2 weeks then 1 jab every 3 months to maintain. My last fight is for them to investigate the gut issues blue horizon mentioned 3 times in their report which so far has been ignored but I'm hoping for a positive response.
Have you tried going gluten free for the gut issues? All the advice I've read says it really helps and I have now stopped the gluten and although I wasn't suffering really badly I've noticed a big difference in the bloating.
That is my last thing to try, I thought I would do all the rest first as going gluten free seems such a big life change as already vegetarian so to then cut out all gluten foods I think meal ideas would be hard. Did you find it easy enough?
Actually yes! The key to sticking to gluten free is to eat lots of fat. Seriously! Fat does not make you fat, sugar and carbs do. Try gluten free products but avoid those with sugar in them. Iv been told As*a do a good gluten free bread. Have a good breakfast and lunch, and it'll be fine.
It is harder when trying to cook for meat eating non-gluten free husband & son! The hardest thing is if you are used to eating Veggie substitutes like sausages/burgers/bakes etc because most use wheat protein but if you cook from scratch it isn't as hard.
You just have to read labels a lot - though I don't avoid things that Ceoliacs have to such as food produced in factories that handle gluten even when they don't contain gluten themselves.
I always tended towards Italian type dishes, but I am focusing more on eggs, avocados (both brilliant nutrition), potatoes instead of pastry (I adore pastry & have not yet managed a gluten free one that anyone likes!), nuts, cheese. I do find I crave carbohydrate & finding anything to eat in cafes is a nightmare, restaurants are better. Nuttolene is a marvel (I think it has been renamed now) we always ate it as kids & I've always loved it.
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