Graves - slow heart beat: Hi everyone - Issue is... - Thyroid UK

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Graves - slow heart beat

zmlb9 profile image
11 Replies

Hi everyone - Issue is slow heart beat -

diagnosed in December 2024 with Graves

treatment with decreasing doses of Carbimazole

now (March 2025) “biochemically euthyroid”

but have slow heart beat (resting sometimes slips under 60bpm)

and active bpm (at gym) stays at around 88 bpm (previously would have been around 120 bpm)

noticed this because I have palpitations (again)

also tiredness and sometimes light-headed

have any of you come across this?

I am speaking to my Consultant – is there anything I should ask to check out?

Many thanks

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zmlb9
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11 Replies
Buddy195 profile image
Buddy195Administrator

Welcome to the forum zmlb9

So we can offer better advice, can you tell us more about your thyroid condition, eg any other ongoing symptoms (in addition to slow heart rate/ palpitations/ tiredness mentioned), current dosage carbimazole, plus blood test results (with ranges in brackets) for:

TSH

FT3

FT4

Plus any antibody and key vitamin tests (ferritin, folate, vitamins D and B12)

If your GP is unable to complete all the above (eg if TSH is within range, some surgeries may not be able to access FT4 and FT3 tests), you could look to do this privately, as many forum members do, for a better picture of your thyroid health:

thyroiduk.org/help-and-supp...

I have experienced palpitations when both under and over medicated thyroid wise, that’s why it’s useful to share actual blood test results.

zmlb9 profile image
zmlb9 in reply toBuddy195

yes tested positive for Graves TSH antibodies measure at 7.8

when diagnosed

TSH Under 0.01

T4 33 pmol then went to 34.9

T3 28.6 - then went to over 30.7

after treatment - 60mcg then 40mcg then 20mcg now 10 mcg

went slightly hypo

TSH 6.8 to 6.62 milliunit (high)

T4 7.8 to 8 pmol (slightly below normal)

Now "euthyroid"

TSH 3.35 milliunit

T4 10.4 pmol/l “lower end of normal”

T3 not tested

no eye issues

many thanks

Buddy195 profile image
Buddy195Administrator in reply tozmlb9

Think you mean positive TSI antibodies

(Thyroid-Stimulating Immunoglobulin) not TSH… so many abbreviations! 🤣

When did you last check key thyroid vitamins? Having these optimal supports thyroid health… but please don’t supplement without first testing/ sharing results with us.

zmlb9 profile image
zmlb9 in reply toBuddy195

what are the key thyroid vitamins? should I ask for specific blood tests?

Buddy195 profile image
Buddy195Administrator in reply tozmlb9

Ferritin, folate, B12 and vit D are the key thyroid vitamins. See link in my first reply if GP won’t test these. Many here (myself included) test privately

zmlb9 profile image
zmlb9 in reply toBuddy195

many thanks - very happy that this site exists !

pennyannie profile image
pennyannie

Hello Zmlb and welcome to the forum :

There is no information on your Profile page and in order to help you better we do need more information :

What were your TSH, Free T3 and Free T4 results and ranges at diagnosis - and which antibodies were found positive and over range in your initial blood test ?

You current symptoms could be because the dose of the Anti Thyroid drug needs adjusting down and your metabolism increased - what dose did you start on and what dose are you currently taking ?

What are your actual TSH free T3 and Free T4 results currently - as euthyroid is open to differing opinions.

Are your eyes involved - dry, gritty, light sensitive - just be sure any treatment options you use to ease the discomfort are Preservative Free.

Graves is an Auto Immune Disease that is poorly understood and badly treated - there is generally a ' heightened state ' and total body exhaustion with something of a brain / body mismatch with the brain in over drive but with the body exhausted just sitting on the sofa.

The NHS generally allocate a treatment window with an AT drug of around 15-18 months though we do now have research suggesting the longer the patient stays on the AT drug the better the long term outcome for the patient and am detailing below the 2 most recent research papers that maybe relevant to your situation :-

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

When metabolism runs too fast as in hyper thyroid or too slow as in hypo thyroid the body struggles to extract key nutrients from food no matter how well and clean you eat - so its a good idea to ask to have your ferritin, folate, B12 and vitamin D run as non optimal levels can compound your ill health further than necessary.

zmlb9 profile image
zmlb9 in reply topennyannie

yes tested positive for Graves TSH antibodies measure at 7.8

when diagnosed

TSH Under 0.01

T4 33 pmol then went to 34.9

T3 28.6 - then went to over 30.7

after treatment - 60mcg then 40mcg then 20mcg now 10 mcg

went slightly hypo

TSH 6.8 to 6.62 milliunit (high)

T4 7.8 to 8 pmol (slightly below normal)

Now "euthyroid"

TSH 3.35 milliunit

T4 10.4 pmol/l “lower end of normal”

T3 not tested

no eye issues

many thanks

pennyannie profile image
pennyannie in reply tozmlb9

Thank you - ok then the fact that your TSH is moving is a good signthat this first phase of Graves is over and your immune system now not in control of your thyroid function.

A TSH over 3 is considered ' hypothyroid ' so your dose of the Anti Thyroid drug probably needs reducing a little to allow more of your own daily thyroid production to be released into your blood stream thereby lowering the TSH a little and increasing the T4 and T3 a little which may make you feel more comfortable.

I think generally with Graves the medical profession tend to leave us longer in a hypothyroid land as it is a safer option for them to manage and they are not living with the what for some are disabling symptoms.

he more you try to do, the more you are using up your T3 which is probably now a little too low to sustain the activities at the gym.

Less gym = more T3 and less strain on your body at this point in time - so maybe cut back a bit on these physical activities until you are fully recovered and off all thyroid medications , and then start slow and steady - as with Graves there is no quick fix.

There's likely a genetic pre-disposition to this AI disease with maybe a family member a generation away from you wit a thyroid health issue and Graves tends to occur mostly to women, and at puberty, child birth and menopause and or after a sudden shock to the system such as a car accident or unexpected death of a loved one, or for others, seems to occur totally out of the blue - everyone's journey with Graves is unique to them though we do know that stress and anxiety are common triggers.

The most rounded of all I researched is that of Elaine Moore books and website which we now need to access through archive records -

web.archive.org/web/2024122...

Glad you have no vision issues :

zmlb9 profile image
zmlb9 in reply topennyannie

Thank you that is very helpful (and sorry still getting used to navigating the website)

pennyannie profile image
pennyannie in reply tozmlb9

No worries - when you get a message your Alert Bell on the Task Bar should light up and go out after you respond - or read the content ( my Alert - has a life of it's own ) and I need to ' look ' to find if anyone has ' liked ' anything I've written:

We can all read everything you write so there is no need to keep repeating yourself.

When replying to someone just make sure you reply within their reply using their Reply Icon as then they get an email which tells them to come back and read a reply -

If you get lost reading around - just press your Profile Icon on the task bar and that takes you back to all you have written on this forum and all your replies.

You can read any forum members Profile by pressing the Icon that sits alongside any message they have written -

This is a patient to patient open forum and Thyroid UK - thyroiduk.org is the charity which supports this forum and where you find information on all things thyroid should you want further factual reading as well as just reading around other forum members questions and answers.

We try to answer as fully as possible every new question within around the first 24 hours of posting as the volume of new questions stacking demands we keep going forward -

but you can call someone back to a post as long as you make sure you Reply within their post and their name comes up as you start writing to them.

Another way to contact someone is to type an @ directly before their username and then as you start to type their name a list of names pops up to select from and once selected the name turns blue in print - and the other forum members gets an email :

Hope my explanations haven't confused you !!

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