Sorry to post again. 3rd time this week. I am just feeling my head is a confused mess today and I could do with some advice.
Ok, I will start with all my blood work incase anyone reads this and doesn't know from my previous posts.
January 2013
TSH 4.9 (0.35-5.5)
FT4 11 (7-17)
August 2015
TSH 5.35 (0.35-5.5)
FT4 11 (7-17)
B12 - 212
Ferritin 15
Blue Horizon results January 2016
TSH 6.54 (0.27-4.2)
FT4 14.24 (12-22)
Ft3 5.37
Anti-Thyroidperoxidase abs 11 <34
Anti - Thyroglobulin abs <10.000 <115
March 2016 Blue Horizon
Tsh 7.51 (0.27-4.2)
Ft4 15.83 (12-22)
FT3 5.56 (3.1-6.8)
Anti-Thyroidperoxidase abs 10.7 <34
Anti - Thyroglobulin abs <10.000 <115
B12 477
Ferritin 34
I had a repeat done on Monday with medicheck. I took these at about 7am.
Tsh 9.28 (0.27-4.2)
Ft4 15.76
I spoke to my GP in January and he agreed I was subclinical. In March he said the same and said one more test and i will treat you before it reaches 10 as you're very symptomatic. Yesterday I spoke about the recent results and he wanted me to wait 2 more weeks, and test my antibodies again as he says my results are strange. The TSH is rising rapidly, T4 is rising too, T3 is fine and he said I have no antibodies. He was not sure whether to treat me. He then said he agreed to a trial of levo. I have to have a blood test in 8 weeks to check everything again including antibodies.
So i have been left confused about whether I need treatment or not as my antibodies are normal. I have some questions and I was wondering if anyone could answer them for me as my GP was useless.
Since last summer I had crippling chronic fatigue. By the winter it got much worse but it got worse when my son suddenly told me he was being bullied and he was suicidal. It was the worst 3 months of my life and during that time the following symptoms started..
*Chronic fatigue worsened.
*Energy crashes, unable to do yoga, housework, walk, shops without a HUGE crash that landed me in bed feeling terribly weak and fatigued.
*A main symptom was balance, like the floor was bouncing as I walked.
*In my eyes I feel like my head is woozy, when I look at things it's as though it takes a while for my head to catch up, so a woozy off balance feeling in my head too. This symptom seems worse on the days my fatigue is bad.
*No weight gain but unable to lose weight.
* In the winter I was very cold but now I seem to be unable to tolerate the humid/hot weather.
* High anxiety, agoraphobia, fear of fainting and collapsing.
* Weak thighs and arms often.
*Brain fog, poor concentration.
*Dry mouth some days.
* Very thin eyebrow hairs. No need to pluck anymore.
* At times I feel very tearful. I can also be a little grumpy and seem to have no energy to talk to anyone in the house. Very unlike me lol!
My GP checked me 3 times between November and January and put it all down to the stress of my son being very unwell with panic attacks and depression. Thankfully my son is now the happiest I have ever seen him, I gave him therapy myself and got him over everything after CAMHS refused to help him due to funding issues. I hoped as the stress passed so would my symptoms but the fatigue and crashes has been the same ever since. I may have 1 day a week where I don't crash. I have had to carry on as normal, I have 3 children, no support other than my husband but he works long hours. I feel ill and drained daily. It's like I just exist and my days are just spent at home resting between chores.
I take vitamins. I am eating a very clean diet. I am doing all I can but getting nowhere. One week I think my energy has lifted a little and the next I crash again for a week, it's so hard as a mother. My anxiety has returned that I suffered a few years ago, probably my son being ill was the trigger but now it focuses on my health and i fear being rushed into hospital and collapsing and how I'd cope now I am battling anxiety and agoraphobia. The agoraphobia has only started since being so ill, going out feeling this weak and drained is not easy as I am sure many of you know so I think that opened a back door for my anxiety to return.
Are the symptoms I have explained those of hypothyroidism? I don't have weight gain, I don't seem to feel cold. Nor do I have constipation.
I have been very worried whether it's a pituitary tumour or some kind of condition rising my TSH as it seems to be the only thing out of range on my results. I have been worried if I start the thyroxine will I end up hyperthyroid as my GP said as my T4 is good at 15.8 taking levo could tip me the other way. My GP also saying I don't have antibodies means I may not be hypothyroid, and the GP in January I called for a second opinion said exactly the same thing. My mum is hypothyroid but they said that doesn't matter as neither of us have hashimotos.
I have also been worrying is it my adrenals, do I have addisons? my GP basically didn't take me up on the adrenals. I have researched and done some tests at home. The light in the eye and BP and both were normal. I was worried can the adrenals rise TSH.
My main symptoms throughout have been the off balance/dizzy eyes feeling and the crippling fatigue. Daily, unable to do much at all or I crash and burn.
I think that's everything going on in my little head. lol! I just feel I need to answer these before I start thyroxine this weekend as for me this is a big thing. i have been so poorly and I want to get well for my children but fearing if my GP actually knows what he is doing and if we are treating me correctly.
I really appreciate all your help as I feel totally lost right now.
I have attached a photo of me, maybe someone can say whether I look hypothyroid haha. I know I look a mess and I apologise for scaring any of you
Julie