Hi lovely people, I'd like to apologize for the long post but I need some advice. As some of you might remember, I was diagnosed in March with a TSH of 227 , free T4 of 1.3 and antibodies almost 1400. So here's an update
🔹I've been on 100mcg levo, and here are my latest results:
TSH 95.3 (0.27-4.20)
T4 9 (12-22)
Vitamin D. 26 (50-174)
Antibodies not tested
T3 not tested
Ferritin 18 (13-150)
Testosterone 1.9 (0.29-1.6)
Sex hormone bin. glob. 8 (32-128)
Testosterone/shbg 24.1 (<4)
I requested many tests, adrenals, cortisol, insulin resistance, androgens, T3, iron, iodine, and ultrasounds, and these are the ones I got.
🔹 I suspect I have PCOS. Hair loss, terrible facial hair, weight gain, acne, skin problems, too much testosterone in my blood, and also I used to have longer but kind of regular periods but since on levo I haven't had my period for more than two months. I told everything to my GP , and she said "I don't have to do anything about it". But I don't want to end up with infertility or cancer. I don't take birth control pills either. What can I do? Do I need a referral to see a gynecologist? Or should I just walk in to the hospital? Also my grandmother and mother had their uterus taken out, and I said I was worried I had the same but she said this shouldn't concern me.. She said I don't have to do anything.
🔹 I've been referred to the hospital radiology for a thyroid ultrasound but I still haven't received my appointment letter. I've been waiting for the letter for two weeks now.. What should I do? My thyroid is still huge and it's been like this for months and I constantly have nausea and it won't go away. She said I should give it time...
🔹 my hair loss is getting really bad. It's actually ten times worse than a month ago.. My GP didn't say anything about it, I asked if I could start using a minoxidil containing hair loss foam (Regaine in the UK) , but she said I shouldn't mess with hormones , but it does not contain any... It's just a vasodilator.. She said my hair should grow back on its own but she did not prescribe anything except vitamin D so I don't know why it would grow back without any help. Instead it's falling out by handfuls... Any suggestions?
🔹does anyone drink whey protein shake? I found one that's affordable and popular and gluten free, and I'm planning to buy one, any thoughts on this?
🔹I gotta say, I'm feeling much better, I'm still very weak, and tired all the time, I'm still not losing weight, and my throat is terribly dry, my heart rate is still high, my back hurts a lot and my muscles are very weak.. My TSH is still almost 100. And I'm so tired that I have to be my own doctor, only without the right to do tests I would actually need.. some doctors have little or no idea how to deal with this illness and unwilling to refer patients to specialists. I also figured out that they tell us to take one pill a day for the rest of our lives and we should be fine , but don't take the time to educate themselves or dig for the cause of the illness. They tell us that we'll be chronically ill for the rest of our lives, that there is no cure and we should live with it. And telling this to a sick depressed person is almost like a death sentence.. They only put plasters onto the symptoms but never try to treat the cause, and help our body heal itself like it's supposed to... Anyway I truly hope that there is a possibility of healing and living a full life without taking ten pills a day, and I will be fighting to get well soon