I cant thank Addenbrookes hospital or this Forum enough THANK YOU!
I have not posted on here for ages, I wanted to see if my good health remained I did not want to jinx things. Reading other people's posts and questions brings it all back how dreadful I felt for 5 years and how I struggled to get the correct help, very ignorant GPs who took the "wait and see" approach because I was borderline underactive, as I got sicker and sicker ending up practically bedridden and being offered "anti depressants" which I refused. Referral to an Endo, and pinning so much hope on the appointments, and getting absolutely nowhere, on thyroxine, off thyroxine, a gut feeling that he did not know what he was talking about and he didn't. I found out from this Forum that I could ask for a referral to a hospital of my choice, and I begged my GP to send me to Addenbrookes. My logic was get to a big university hospital, larger patient base, just might have a bit more expertise than the local hospital. I am so glad I did.
Diagnosed Hashimos, nodule on thyroid that thankfully was removed and was benign! Diagnosed underactive thyroid that I had been told was "borderline". Fabulous Endos, who listened patiently to my symptoms, the forgetfulness, driving and forgetting where I was going, that caused me to have "panics", baked potatoes put in the aga and forgotten about, size of stones when discovered days later, the mood swings, screaming at everybody like a lunatic, the sense of being overwhelmed by everything, a parents evening at my children's school, walking the dog, absolutely no energy whatsoever, if I walked anywhere I felt as if I was walking in quicksand, out of breath constantly, massive big sleeps at night and waking up as tired as I had been the night before, on the school run, counting the minutes until I could get back into bed, the weight gain, stones piling on and the dress sizes going up and up, the aching limbs, always being cold and then hair falling out. My silly hairdresser pulling handfuls of hair out of the sink when she washed my hair and tutting. One of my lowest points. I have since changed hairdressers. I remember thinking this is it, this is my life now. I am just functioning and no more.
Referral to Endos at Addenbrookes who patiently listened, told me this will not be a quick fix, it takes time to take medication, monitor levels, increase, decrease medication, have to get levels right for you. They eventually gave me T3 that helped me so much immediately. 18 months I have been attending Addenbrookes, and I am back to how I felt before my thyroid nightmare. I just feel normal and I never ever thought I would say that. Addenbrookes are so knowledgeable about this condition. They understand about Vitamin D, B Vitamins, iron levels and how important these vitamins are to optimum health, how they affect the thyroid, and I think more importantly they tend to go on how you actually feel, the blood tests are considered but its how you are feeling. They really do make you feel like an individual, and not the factory conveyor belt you can feel you are on when attending some NHS hopsitals.
Hair is growing back I was told it would when levels were correct and I have lost weight. I have dropped 3 dress sizes! I have not dieted, I eat only once a day. I might eat at lunchtime, or it might be in the evening but I have one meal a day with dessert if I feel like it, with bread if I want it. The weight has slowly came off. Been doing this since October.
Off to Barbados next week for 2 weeks. Life is good again.