I was admitted to hospital yesterday, fainted at home after weeks of dizziness and nausea! Nearly 6 months post thyroidectomy on 100 levo tsh 6.9(0.4- 4) ft4 11 (10-22)ft3 3.6.
Doctors in hospital telling me dizziness and nausea not a symptom of thyroid ??
Ordered a MRI of brain 😖 feeling really overwhelmed. Levo is making me sicker and my endo won't listen.
My digestive system feels really toxic since taking levo feel poisoned what else can I ask endo for instead he won't give me T3?
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Johnjoe123
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Hi there, just in case some of the obvious hasn't been looked at for some reason:
TSH is too high and T4/T3 levels are too low so you are undermedicated and need an increase in dose.
Some people have problems with some brands of Levo or allergies to fillers so might be worth trying a different one. Many of us have had problems with TEVA for example - it bugged my kidneys. You can ask pharmacist regarding this or find pharmacy with different brand.
Did you have any gas and air at all during operation - gas and air (nitrous oxide) anesthetics deplete B12 or make inactive.
Many of us are deficient in Iron (ferrtin), B12, Folate, or Vit D as already suggested so get your levels checked with these tests and a full blood count.
Have they checked you parathyroid function which controls levels of calcium and phoshpate and low/high calcium can cause nausea/dizzyness etc with problems with these? Parathyroids can be damaged during thyroidectomies. I would have hoped they would have checked these already mind you?
You need an increase in Levo at very least. TSH is far too high, it should be at low end of range. FT4 and FT3 should be in top 3/4 of range. Ask GP for trial to increase to 125mcg
Also as others have said, get vitamin D, folate, B12, ferritin, parathyroid and calcium levels checked.
Was thyroidectomy for Graves or cancer?
If Graves, see Amy Myers website for lots of useful info
You can email Louise at Thyroid UK for list of recommended thyroid specialists
What's the range of the calcium tests as mine have always been in a range of 2.2-2.6 mmol/L so can't really tell by just the result.
Also if calcium were done shortly after op and aren't recent, you might want to retest them again to ensure still okay as problems could manifest a few months later. Also maybe phosphate and PTH?
In hospital so don't have my ranges they at home. Hospital said calcium fine, I am better some bit since drip of electrolyte less dizzy and nauseous??? Folate hasn't been checked.
Sadly you will need to prove it's the Levo so yes results too low so. Red increasing and hopefully results will improve. Levo is full of fillers, that small dose needs bulk forca start of you wouldnrvsee it and then fillers also keep it stable. If you thing that make be a problem take an antihistamine one hour before your thyroid meds forca few days and see if that helps. If it does ask the pharmacy to suggest a different brand to try.
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