I have not posted for quite a while as my daughter had to have a major operation last year, she has now recovered but all my concentration understandably has been on her.
Although I coped quite well with all the upset and worry of it all (apart from having a severe panic attack type reaction when first seeing her after the op.) I felt in December that it had all caught up with me.
I was due to have my ferritin tested as I had been taking iron pills so asked to have my thyroid levels checked as well. I was taking 100mcg/125mcg levo. alternate days.
19th Dec. 2014 Results were TSH 0.11 range 0.35 - 4.7 T4 13 range 7.8 - 21
Ferritin 91 range 15 - 300
I received a call from my G.P. to say as my TSH was suppressed and I could not have a suppressed TSH as my last bone scan (endo. arranged this in June last year ) shows I have thinning of the bones. I thought hang on I received a letter from the endo. saying I did not have thinning of the bones so told the G.P. this.
He replied "oh you have a slight thinning" I said again about the letter and he said well we can't have your TSH suppressed like this and said take 100mcg levo. daily now.
I said well if I feel worse I shall be into see you.
The receptionist has just rang to say I am due my yearly blood pressure check and thyroid levels checked after reducing my levo. I go on Wednesday for blood test.
I had some blood tests August 2014 as I was suffering from flutterings in my calf muscles and muscle twitching and jerking in different parts of my body.
U&E's in range
Ferritin 77 range 15 - 300
Folate 20 no range given
B12 674 range 180 - 1130
Zinc 13.6 range 9.0 - 14.0
Magnesium 0.92 range 0.7 - 1.0
Vit 68 greater than 50 adequate
I supplement with Vit D 6000iu sublingual spray daily
B12 1200ug sublingual spray daily
Thorne Stress B Complex one daily
Bluebonnet Chelated Iron 27mg one daily with 500mg. Vit C
It is now about six weeks since I cut the levo down.
When I was taking the 100mcg/125mcg. I felt O.Kish apart from a niggling anxiety, mainly a health anxiety. When I first reduced the levo. I felt O.K. and the anxiety actually eased a little but this past week I have felt exhausted. I sleep for 11 hours a night and still wake up feeling as though I have been drugged. I ache all over, I feel nauseous and badly constipated, my carpel tunnels worse and I feel down in the dumps.
What I don't understand is that all the time I have taken levo. since been diagnosed four years ago, all it seems to do is supressed my TSH but does not raise my T4 and T3 much.
My T4 has never been more than 14 and T3 never more that 4.4 apart from once when the endo. took the bloods at 11.00am and T3 was 5.1 T4 was 13 and TSH 0.11
Could offer any advice please, should I push for a raise in Levo. or is it now time to try NDT or T3
Any advice would be really appreciated.
Many thanks browny