I had my GP appointment today as things were just really getting me down. Here's what was said:
It wasn't my usual doctor unfortunately who I came to see about my new symptoms, which was a shame but expected as my usual GP is very popular and is on call sometimes but I went into great detail about each symptom I had.
- Bright red blood flow versus the normally dark brown and black flow during my period that started yesterday – he said that it’s probably due to the iron count being higher as the last test put it at 22 from 15. (30-400.) He has noted it’s an improvement, however small, but has not said when it will be monitored again.
- He has received the report from my Endo in regards to the appointment I had with her last week. My medical record now reads that I have “autoimmune hypothyroidism” and not Hashimoto’s despite the Endo saying I have Hashimoto’s. I noticed this from briefly looking at the screen at the appointment.
- He is also of the same mind as my Endo with regards to the adrenal diagnosis (i.e. weight loss despite eating normally and sometimes more, as well as low blood pressure and the brown patches on my back) and would like to see the ACTH results as well as my Endo receiving a copy of them.
- I asked him about this random stress urine test the Endo had done on me at my appointment and that the Endo told me that she would cancel the ACTH test if the urine test was normal. The GP explained that the Endo put in the report that I had low potassium in the sample and wants to follow up the investigation with the ACTH test. He did not give me a result of this reading but I’m sure it’s written down somewhere in this report.
- I explained to him of the headaches, migraines, hallucinations and nausea and he thinks I could be experiencing a hyper phase. He then said that because the TSH had sharply dropped from 4.6 to 2.7 (0.27-4.2) – pretty much nosedived – within a matter of weeks it was highly likely to be the thyroid sputtering back to life. He went through my last blood test results with me and said that the thyroid function test in November 2013 showed the TSH at 4.3 (0.27-4.2) – still high – and the FT4 at 15.3 (12-22) – still a bit low. He compared that to the following function test which sees the TSH at 4.6 and the FT4 rising at the same rate to 15.6. In his words, he believes the thyroid is still managing to work by itself but I don’t quite know what he’s getting at. I presume that means if the thyroid is continuing to work despite the TSH rising he’ll take me off the medication as it appears to be compensating and reacting to the TSH.
- He asked me if I’ve been getting any more Raynaud’s attacks as the weather isn’t as cold and I said that funnily enough I haven’t. I went on to tell him that there was one day where it was meant to be wet and cold and all I was wearing on my feet were a pair of flat dolly shoes – no socks and no stockings – and I wasn’t even shivering. My toes also went red and hot instead of white and cold. He believes the Raynaud’s attacks are occurring at the same time as the hypo attacks and since the TSH has dropped they aren’t as frequent or it takes them longer to come about than the ones I experienced before.
- I also told him of the dizziness/clumsiness/slipping/tripping over/lurching I get, which mostly happens when I’m out and about and he has put this down to low thyroid levels – BUT – he will not increase my medication as the TSH is “within normal range”. He wants to give the thyroxine more time to work and will not test my thyroid again for another couple of months. I can’t remember the exact protocol for a repeat blood test after a normal one has come back, but it seems like a long time to wait personally.
- He examined my neck since I was worried about a possible nodule and he said he couldn’t feel anything. So since my Endo's secretary has not replied to my email I will post a letter to my Endo about moving my next appointment to an earlier date and asking them to get an ultrasound or fine aspiration in.
So yes, a mixture of triumph and disappointment.