I posted early in the week about my upcoming Endo appointment which was on Wednesday and received some very helpful replies. Briefly my TSH was 0.02 - long story short - reduction in dose very quickly produced loads of symptoms and my next test I had tipped the other way and my TSH was 17.50 .... Dose up again - but has taken me six months to recover especially from the panic attacks, awful anxiety and life changing memory problems. My last Tests once again were 0.02 so my Doc referred me to Endo.
Have to say was impressed. Had 45 mins with Doc who very much wanted to apply "fresh eyes". He explained that as I had bounced between hypo and hyper so quickly my pituatory must be working. He confirmed I had very little or no thyroid left, examined me very carefully, asked loads of questions and seemed very willing to help.
He has requested umpteen blood tests and I will see him again in approx six weeks.
Only downer is that he also diagnosed a "grossley engorged" aorta - for which I will have an urgent scan. That was something I was not expecting !