Hi All , hope you are all having a great bank holiday .
I've had a visit from the fourth weeks Leukemia consultant today .
A lovely man and full of usefull info .
I have had the last chemo , of this first 10 day sesson today . I have been told that the next 14 days are my danger period , as my bone marrow trys to recover . Apparently 90% of patients , develop an infection in this time period ,even from within their own body . So I have to be exceptionally carefull with any visitors , eat well and drink loads . If I am one of the 10% i may be able to go home for a few days before the next chemo session .
I have had some lovely messages from you all , but i felt that I had to make something clear about the visit from the Endo DR R and my decisions about Armour .
I want to make it clear that I dont advocate taking Armour for everyone . The reason the Endo agreed to me taking my Armour here in hospital is because this is a special circumstance .
I have had Beast cancer twice 2005 and 2010 . I have had major reconstructive surgery both times , with extensive radiotherapy after the first time . I have had some bad and some good experiences with the four surgeries in all , then nipple tatooing . I considered myself fortunate . However this has meant that my life has revolved around consultant surgeons , oncologists , and later ent dept with thyroid . I tried the usual thyroxine at 25 mcg then 50 mcg then 75 mcg told eachtime that my tsh had come into line by various gps at my surgery . 75 mcg gave me massive headaches with little improvements in symptoms . I dis extensive research over a 6 month period , a lot of it on this website , but also with many books . I tried a couple of different things . Then decided to order Armour and try it myself , gradually increasing to 2 or 2.5 grains . Felt great for a few months . Then fell ill with what I know know is PRE leukemia and aplastic anemia , probably from the radiotherapy .
According to some of the messages I have had,
I think there may have been some misunderstanding over My Endo DR R .
He never advocated my taking Armour , as he says , it is unlicensed in this country .
He is very knowledgeable and does understand about this medication .
I'm sure that if anyone gets a referral to him , he will try to help as much as he can within the nhs . He seemed to be willing to prescrinbe T3 . But there is no point asking him for Armour , as he can't prescribe it .
The reason that he agreed to me taking my own Armour , is because that was what I was taking before I came into hospital .
When I came in 4 weeks ago I only brought my nhs repeat prescriptions which included 50mcg thyroxine daily . I was obviously going downhill on that as my tsh shot up from 0.01 to 14 within 3 weeks .
He offered me T3 to add to the thyroxine , but we decided that it would be too difficult to monitor with the aggressive chemo .
I sincerely hope that he will not have lots of patients asking him for Armour ,
He's a lovely man and if you go to see him , please go with , as open a mind as he will have .
Sorry about the long blog , but I thought it was worth clearing up .
Wishing you all great health