Experiences with

Zirtek

This Forum is amazing and I depend on it. I'm interested in others who may have had something similar with auto-immune issues on Besremi. Apologies for the saga. Diagnosed with PV August 2021, AB 22%, put on Hydroxy for a year, then Besremi for the past 20 months, gradually increased from 50 to 450

I am convinced that for myself and possibly others like me, that my RLS is a mast cell activation problem. I never had RLS until my 60s when I was living in a house that had a hidden pipe leak and hidden mold. So I don't think mine is genetic. But recently as I have learned about MCAS (mast cell activation

Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct

hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,

Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong

Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye

Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs

I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues

I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it

Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to

Hello all. My son is 5 years old (6 in February) and was diagnosed with asthma 3 years ago. He was a very normal healthy baby boy. When he was age 2 he started getting sick literally every single day after he ate any type of food. For a year they gave him steroids and he gained a lot of weight. At age

Hello all, I started with ET but now have PV and have been on Peg for about 6 weeks with phlebotomies occasionally. My Hematocrit has gone down but my platelets are going up so the MPN Dr wants me to take Hydroxyurea at 500 2-3 times a week with low dose of Peg at 60. He really wants me back on hydrea

Hi! On V and O treatment plan and can feel it's seasonal allergies - backdrip and swollen glands but all clear no covid and no white gunk or anything. So basic question..... what do you guys do for allergies? Claritin is a bust, wondering if Zyrtec is ok? Yes I know I can call my provider but just

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I had an appointment with the immunologist/allergist. As I had written earlier, I was extremely nervous and doubtful about the whole thing. He turned out to be very nice, a great listener, didn't look at me like I had 2 heads, knowledgeable. I started with only 2 main concerns - the almost daily diarrhea

Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?

I have asked a compounding pharmacy to make something equivalent to ibuprofen and Zyrtec - without Propylene Glycol. When I went to pick it up I discovered they had used HyproMellose as the filler. The pharmacist is telling me they contacted the manufacturer, that it is plant based and "should be" okay

Hi! I’m new here and wanted to share my daughter’s story, get support, and see what’s helping everyone. My 20 year old daughter started having chest pain 24 hours after her second Moderna. She had it on September 10th. She woke the morning after with fever, body aches, and headache. She told me that

Hey gang, Was supposed to begin the first of six Cabazitaxel sessions last Friday(the six Taxotere rechallenge failed) , but the pharmacy messed up the mixture and it got moved to today! Looked up the cost, and Kaiser wasted $7800 with that error. Hoping the switch to Cabazitaxel does the job.

I have seen several posts with people being thyroid patients and having hivesThe onset of my hives started 9/22/2021They have been horrendous to say the least Ended up in the emergency room on 10/3/21 where I couldn’t breathe and wheezing. They used an EPI, pepcid and a couple other things and so far