Itchy skin, scratchy eyes, heat and humidity…. 🤔 - MPN Voice

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Itchy skin, scratchy eyes, heat and humidity…. 🤔

Pachena profile image
3 Replies

Good morning from Brisbane, Australia 👋🏻

I’ve got ET JAK2 pos and have started to get the itchies 😆

I have read that it’s common with PV but I wondered about ET?

I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye is mostly unhappy and I wondered if it may be allergy, just my touchy system as I carry 2 epipens for anaphylaxis (wheat allergy triggered by exercise/heat).

My eyes tend to have dry spots now which I never had before. I had read that the eyes can be affected with an MPN… 🤔

I may be able to get by wearing just one contact lens. I just wanted the contact lenses for occasional use on our holiday coming up.

The weather here may be the cause of the discomfort being so humid, hot and stormy 🧐

I see the optometrist today and will ask before I begin taking Zyrtec regularly again.

Thank you for your thoughts 😃

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Pachena
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3 Replies
hunter5582 profile image
hunter5582

Yes, you can get itching with ET. 40% of people with ET in one study. mympnteam.com/resources/itc... Itching is related to mast cell activity - release of hiustamine. This is why meds like Zyrtec can help. Note that histamine release is also related to allergic itch.

Dry eye syndrome is a fairly common problem that can cause issues. I experience it to a significant degree. The only thing that helped is a prescription eye drop called Cequa. My son also has dry eye and opted for punctal plugs. It is definitely something that needs attention.

Hope you have a great holiday.

Spanelmad profile image
Spanelmad

Sorry to here you've got the "itches" not fun at all.keep taking the zyrtec.

Windy51 profile image
Windy51

hi I also have the same problem I also live in Australia on the Goldcoast

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