I’ve got ET JAK2 pos and have started to get the itchies 😆
I have read that it’s common with PV but I wondered about ET?
I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye is mostly unhappy and I wondered if it may be allergy, just my touchy system as I carry 2 epipens for anaphylaxis (wheat allergy triggered by exercise/heat).
My eyes tend to have dry spots now which I never had before. I had read that the eyes can be affected with an MPN… 🤔
I may be able to get by wearing just one contact lens. I just wanted the contact lenses for occasional use on our holiday coming up.
The weather here may be the cause of the discomfort being so humid, hot and stormy 🧐
I see the optometrist today and will ask before I begin taking Zyrtec regularly again.
Thank you for your thoughts 😃
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Pachena
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Yes, you can get itching with ET. 40% of people with ET in one study. mympnteam.com/resources/itc... Itching is related to mast cell activity - release of hiustamine. This is why meds like Zyrtec can help. Note that histamine release is also related to allergic itch.
Dry eye syndrome is a fairly common problem that can cause issues. I experience it to a significant degree. The only thing that helped is a prescription eye drop called Cequa. My son also has dry eye and opted for punctal plugs. It is definitely something that needs attention.
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