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New PMR diagnosed today.
I m 84.After months of increasing pain starting in earlySept or before, I was diagnosed with PMR. Today. Stared on a prednisilone 15mg per day. The pain had become so bad that I could not get out of bed....sometimes trying for an hour befor calling for help. Have most nights sleep disurbed by
I m 84.After months of increasing pain starting in earlySept or before, I was diagnosed with PMR. Today. Stared on a prednisilone 15mg per day. The pain had become so bad that I could not get out of bed....sometimes trying for an hour befor calling for help. Have most nights sleep disurbed by
Freya32
in
PMRGCAuk
2 years ago
Putting up with pain
Hi it seems that i have been living with this pain for ever. I phone the nurse 3 weeks ago as the meds that i was on were not working so she phoned me back and seen me later in the week and agreed with me as i am in agony.I have had a bad year as this will be my 3rd new med i that i will have tried.I
Hi it seems that i have been living with this pain for ever. I phone the nurse 3 weeks ago as the meds that i was on were not working so she phoned me back and seen me later in the week and agreed with me as i am in agony.I have had a bad year as this will be my 3rd new med i that i will have tried.I
beeckey
in
NRAS
2 years ago
Hell is back in town
Pram withdrawal hell is back. I’ve been withdrawing by half a tablet every fortnight. The last month, I’ve been pretty good with RLS. Not so with PLMD. Since I dropped last Sunday down to 2 pram per day, RLS and PLMD have gone into overdrive. I’m getting a couple of hours sh1ty sleep each night. I hate
Pram withdrawal hell is back. I’ve been withdrawing by half a tablet every fortnight. The last month, I’ve been pretty good with RLS. Not so with PLMD. Since I dropped last Sunday down to 2 pram per day, RLS and PLMD have gone into overdrive. I’m getting a couple of hours sh1ty sleep each night. I hate
Theonlypetied
in
Restless Legs Syndrome
2 years ago
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Anxious about totally bizarre symptoms
I suffered Nephritis as a child (60 years ago) and have since then had no kidney problems except passing a kidney stone around 5 years ago. For the past 5 or 6 nights I have been woken with quite severe pain in the area of my right kidney. At first I assumed I was passing another stone and the first
I suffered Nephritis as a child (60 years ago) and have since then had no kidney problems except passing a kidney stone around 5 years ago. For the past 5 or 6 nights I have been woken with quite severe pain in the area of my right kidney. At first I assumed I was passing another stone and the first
Loobs39
in
Kidney Disease
2 years ago
Complete thyroidectomy & meds
Hello everyone ! I had a complete thyroidectomy in August. Initially, I had been taking the generic Levothyroxine. I immediately had horrible symptoms of crushing depression and extreme fatigue. My doctor boosted me up to 125 mg and there was no difference. I looked online and read that some people
Hello everyone ! I had a complete thyroidectomy in August. Initially, I had been taking the generic Levothyroxine. I immediately had horrible symptoms of crushing depression and extreme fatigue. My doctor boosted me up to 125 mg and there was no difference. I looked online and read that some people
cmm7766
in
Thyroid UK
2 years ago
Had surgery three weeks ago
Hi ladies,So had my endo surgery three weeks ago.It went really well after a bit of a scare. Both my endometriomas had burst due to waiting over 18months for my surgery. I was on Liquid Morphine, Dihydrocodeine slow release , baclofen, naproxen, buscopan, cyclizine, lansoprazole, the list goes on about
Hi ladies,So had my endo surgery three weeks ago.It went really well after a bit of a scare. Both my endometriomas had burst due to waiting over 18months for my surgery. I was on Liquid Morphine, Dihydrocodeine slow release , baclofen, naproxen, buscopan, cyclizine, lansoprazole, the list goes on about
chameleonkeeper
in
Endometriosis UK
2 years ago
Trigeminal
Help ppl I have been throu the worst time ever ! Dentist said I need 3 teeth out due to constant infection a@e not helped with electric shock pain so I resorted to any spare painkillers ppl had !I went private dentist yesterday for 2nd opinion my teeth are fine but he referred me to max fact with this
Help ppl I have been throu the worst time ever ! Dentist said I need 3 teeth out due to constant infection a@e not helped with electric shock pain so I resorted to any spare painkillers ppl had !I went private dentist yesterday for 2nd opinion my teeth are fine but he referred me to max fact with this
Traci69
in
Meningioma Support
2 years ago
New meds.
Thanks for all the comments in my previous post. I'm speaking to the doctor in the UK on Friday. Gabapentin or Pregablin is suggested by many of you which I now know are pain killers. I wouldn't say I'm in pain just discomfort that stops me sleeping. Is it still right to ask for these. In the UK dopamine
Thanks for all the comments in my previous post. I'm speaking to the doctor in the UK on Friday. Gabapentin or Pregablin is suggested by many of you which I now know are pain killers. I wouldn't say I'm in pain just discomfort that stops me sleeping. Is it still right to ask for these. In the UK dopamine
SimonMorriss
in
Restless Legs Syndrome
2 years ago
Maybe now the cruelty can stop
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
ircam2112
in
Restless Legs Syndrome
2 years ago
Silly Mistake
Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5, after being on 6 for about a month. All was going well, I tend to take my dose along with a nerve painkiller around 5/6am. I had mistakenly put a one in my box, instead of a five, which I only noticed after two nights.
Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5, after being on 6 for about a month. All was going well, I tend to take my dose along with a nerve painkiller around 5/6am. I had mistakenly put a one in my box, instead of a five, which I only noticed after two nights.
Carathedog
in
PMRGCAuk
2 years ago
Fed up with not sleeping
I feel like my brain is foggy at work and I haven't had a proper nights sleep for five months, on top of the endo I have an inflamed jaw and pain in my ear I am concerned about my hearing, I just feel broken. I know if I was getting proper sleep my brain is much faster. I can't go on like this took maximum
I feel like my brain is foggy at work and I haven't had a proper nights sleep for five months, on top of the endo I have an inflamed jaw and pain in my ear I am concerned about my hearing, I just feel broken. I know if I was getting proper sleep my brain is much faster. I can't go on like this took maximum
Hidden
in
Endometriosis UK
2 years ago
What to do!
Undiagnosed but all symtoms of end saw endo speacalist private and on his nhs list for lap, told likely Jan 2023.I had implant for 12 years and barely had periods or symtoms during this time. Had it out 6 months thats when everything came to light. Had the implant put back in hoping it wpuld ease symptoms
Undiagnosed but all symtoms of end saw endo speacalist private and on his nhs list for lap, told likely Jan 2023.I had implant for 12 years and barely had periods or symtoms during this time. Had it out 6 months thats when everything came to light. Had the implant put back in hoping it wpuld ease symptoms
Crazycatladyjones
in
Endometriosis UK
2 years ago
sleep problems and pain
hi has anyone got tips on dealing with sleep i feel like my fibro pain flares up at night time i take strong pain killers but dont allways work now been given melatonin to try just wonderd if anyone else had some yips its hard work be in up half night then cant do much in the day also feels like
hi has anyone got tips on dealing with sleep i feel like my fibro pain flares up at night time i take strong pain killers but dont allways work now been given melatonin to try just wonderd if anyone else had some yips its hard work be in up half night then cant do much in the day also feels like
JDiva93
in
Fibromyalgia Action UK
2 years ago
Very bad back pain at 25. help?
i began getting bad upper back neck and shoulder pain on 18th september 2022 suddenly, which gradually became worse and worse so i went to see a chiropractor. after my first session i feel it really helped but then after my second it all went down hill again. i have stopped going now after 5 sessions
i began getting bad upper back neck and shoulder pain on 18th september 2022 suddenly, which gradually became worse and worse so i went to see a chiropractor. after my first session i feel it really helped but then after my second it all went down hill again. i have stopped going now after 5 sessions
Amywoodx
in
Fibromyalgia Action UK
2 years ago
Recovery from laparoscopic removal of Stage 4 Endo - bowel surgery - removal of ovarian cyst.
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Micasmum
in
Endometriosis UK
2 years ago
New here - Advice for talking to GP - could it be endometriosis? Painful periods, irregular bleeding, bowel & fertility issues
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
birdnerd
in
Endometriosis UK
2 years ago
Nucynta
Struggling with chronic pain . Taking tramadol 200mg but not helping. Doc has supplemented with Nucynta 50mg 3x day. Any one have any experience as to how long it takes to get relief, first few days of taking unfortunately no relief. Thanks in advance for any feedback, blessings!
Struggling with chronic pain . Taking tramadol 200mg but not helping. Doc has supplemented with Nucynta 50mg 3x day. Any one have any experience as to how long it takes to get relief, first few days of taking unfortunately no relief. Thanks in advance for any feedback, blessings!
Lespauljoe
in
My MSAA Community
2 years ago
flare up big style ,
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
Seashoreshanty
in
NRAS
2 years ago
constant pain lower abdomen lower back and now mid thigh
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
Lovedsibling
in
Endometriosis UK
2 years ago
Cyst and possible rupture
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Emilily
in
Endometriosis UK
2 years ago
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