Neurologist appointment: Hi all... - Restless Legs Syn...

Restless Legs Syndrome

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Neurologist appointment

Bryanforever profile image
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Hi all, finally saw a Neurologist this week after waiting years. She was quite knowledgeable and , rather like when you go to the dentist and the toothache goes, over the last couple if weeks I have had a but of a reprieve with my rls! Still getting 2 really bad nights on average but coping with the rest of the week when symptoms have been much milder. I have decided to stick with Rotigotine patches for another 6 months when I don't have any commitments. She has offered support when I decide to come off them, but doesn't favour Tramadol. She talked about Ledopa which I refused and we agreed on an increase in iron and if the patches still give some relief, postpone withdrawal . She has arranged a follow up in 6 months.

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Bryanforever
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Joolsg profile image
Joolsg

Who did you see?It's extremely concerning that she mentioned levodopa.

That is the worst drug ever. It will quickly cause severe augmentation.

Bryanforever profile image
Bryanforever in reply toJoolsg

To be fair Jools she said she wouldn't recommend for me as mainly used for Parkinsons only. I made it very clear I wouldn't have it anyway.

Joolsg profile image
Joolsg in reply toBryanforever

Good 👍

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