Had my 3 month lupron injection yesterday and PSA checked. I have been on xtandi since last June, PSA yesterday was 0.08. Three months ago it was 0.16. The PA told me most men on xtandi’s run last between 2 and 3 years. I hope she is wrong in my case. Any one have any thoughts about this.
ET
Like you, I hope that your PA is wrong. I'm 2 years and 8 months so far on Enzalutamide. I hope that you have many more years than this.
thank you
Xtandi lasted 20 mos for me. From what I have read, the average effectiveness is about 18 to 24 mos. Everyone is different and remember the numbers are averages. Some had much longer success, but unfortunatly some much shorter. Ride the train as far as it will take you!! Seize every day and make it worthwhile.
thank you
Your PSA is still coming down?
So far, my MO at MUSC will check it again. This result was from my URO.
My only thought is some Tango and some Samba................Depends on the music.. that's played....(and your partners movements help).....
j-o-h-n <===<<< Senior management is about to spike my spikes....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/15/2023 1:19 PM DST
Anytime you get an estimate, change providers. One MO told me 1-2 years. I'll outlast him, the jerk. Current MO's, yes I have 2, told me not to make any final arrangements. They expect many more years for me. Dx 1/2020, PSA 281, Gleason 4+4. Casodex, then lupron depot or eligard, plus xtandi since 2/2020. 36 month PSA undetectable. <0.1. I have minor side effects. Feel great most days. Gym 6x a week. Great wife who pushes me to travel and not become a couch potato. Religion is very important to us, and contributes to our health. Keep on truckin. Helmet
No one can tell you how long you have to live if that's what you're asking. The answer I got in 2020 from three good oncologists is 3 to 5 years. I've made it to 3 with no real issues.
If you're asking how long until you're castrate-resistant, same answer. Nobody knows.
Get the best advice you can get; if your doctors start acting assy or not answering questions, find new doctors. There are many.
Best of luck!
thank you, that helps
Survival statistics are getting rewritten in real time. As some have their APCa go CR etc, drugs not available at Dx 2-3 years ago are rewriting survival statistics. We live in a time of enormous fast developments in treatments. RT+ADT+abiraterone etc buy a lot of time for many APCa patients, time to get treatments that are coming out of research now and going through insurance approval and SOC acceptance.
Another factor is the bad luck converse, where some lucky APCa cases resolve favorably without aggressive treatment. Lucky them. Very lucky. This leads to a lot of myths about "herbal" etc non-SOC measures anecdotally (as opposed to RCT-proven) touted on the good old Intermess.
I sum it all up to myself as I accept SOC's SE's: "Suck it up buttercup". I've been lucky but not lucky enough to dodge APCa. My father and uncles had it and that is a strong vote against relying on luck.
The good news is that it kicked me in the posterior to health-up via diet (mostly vegan, non-drinking, etc) and a lot of exercise (3 hrs/day every day.) This has helped improve my QOL.
Acronym decoder. APCa = why you are here. CR = a stage many APCa cases progress to. RT = radiation therapy. ADT = what your urologist and oncologist first put you on, SOC = Standard of Care (see NCCN), RCT = randomized controlled trials. QOL = fun. Hope this helps
thanks yes it does.
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