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Fuming, daughter so ill
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
Polo22
in
Pernicious Anaemia Society
2 months ago
Dexascan results
Today I received my dexascan results, and they are not looking good-significant worsening bone health! My last scan was in 2021, and I have just compared the results. 2021 Lumbar spine -3.2 Hips -2.0 and -2.1. 2024; Lumbar spine T score -4.1 Osteoporotic L1-L4 bone mineral density 0.687 per sq.cm.
Today I received my dexascan results, and they are not looking good-significant worsening bone health! My last scan was in 2021, and I have just compared the results. 2021 Lumbar spine -3.2 Hips -2.0 and -2.1. 2024; Lumbar spine T score -4.1 Osteoporotic L1-L4 bone mineral density 0.687 per sq.cm.
Purplegloss
in
PMRGCAuk
2 months ago
FUMING, Bloody GP's
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
Polo22
in
Thyroid UK
2 months ago
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Starting medication advice
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
katyy94x
in
Thyroid UK
2 months ago
Rheumy exam/USA major university medical system - disappointed
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
Hisue
in
NRAS
2 months ago
Carnivore Diet - Can't solidly recommend it
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
bassofspades
in
Cure Parkinson's
2 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
2 months ago
Advice on recent tests please
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Cabbages123
in
Thyroid UK
2 months ago
Folate
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
Loafinabout
in
Thyroid UK
2 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
2 months ago
thyroid and iron panel results
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
Kari55
in
Thyroid UK
2 months ago
Association between dietary thiamine intake and the risk of cognitive decline
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
Buckholt
in
Cure Parkinson's
2 months ago
Advice please? Low mood
I'm taking a supplement called Zenflore which is a pro biotic and had all the B
vitamins
in it. Anybody feel the same?
I'm taking a supplement called Zenflore which is a pro biotic and had all the B
vitamins
in it. Anybody feel the same?
Dollc86
in
Thyroid UK
1 year ago
GP call
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Doris11
in
Thyroid UK
2 months ago
Buying Hydroxocobalamin in Spain
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
pinkpaddleboarder
in
Pernicious Anaemia Society
2 months ago
Folate test prep
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
SleepingDisco
in
Thyroid UK
2 months ago
What to ask Endo?
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Hi all Sorry this is quite long. I'm looking for some advice about next steps and what to ask my Endo when I see him next week. Background: I spoke to my GP in March 22 because I was exhausted and anxious and people I barely knew were commenting how awful I looked! She ordered a load of tests which
Sesameseed82
in
Thyroid UK
2 months ago
B12 or Menopause?
In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 loading doses into the beginning of January plus a month of folic acid and felt better quite quickly. Since then I have felt worse again so I had another blood test last week. My b12 is now 559 which is normal and folate is
In Dec I was diagnosed with B12 deficiency <148 and low folate <2.2. I had 6 loading doses into the beginning of January plus a month of folic acid and felt better quite quickly. Since then I have felt worse again so I had another blood test last week. My b12 is now 559 which is normal and folate is
UpsyDaisy2
in
Pernicious Anaemia Society
2 months ago
CKD 2/low WBC count
Recent labs indicate low wbc. Feeling dizzy, lightheaded, more fatigued than usual, headache, palpitations, more insomnia. BP has fallen to 100/60, p 50-60's. Have held bp med couple times for too low bp.Read that leukopenia and B-12 deficiency can contribute to Anemia. All other labs good. Still considered
Recent labs indicate low wbc. Feeling dizzy, lightheaded, more fatigued than usual, headache, palpitations, more insomnia. BP has fallen to 100/60, p 50-60's. Have held bp med couple times for too low bp.Read that leukopenia and B-12 deficiency can contribute to Anemia. All other labs good. Still considered
Dana66CKD
in
Kidney Disease
2 months ago
FBC Test results help please
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
tzracer
in
Pernicious Anaemia Society
2 months ago
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