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Strange Results
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
DownAndDesperate
in
Pernicious Anaemia Society
29 days ago
Folate timing
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
Good morning, I’m taking folate as we’re trying for a baby and I’ve read this is better than folic acid. My question is do I need to take it at a different time to levothyroxine? I take it 30 mins to an hour after, but I’m not sure if it’s like iron and should be several hours apart. Many thanks for
mountaingoat83
in
Thyroid UK
29 days ago
Help Interpreting Results
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
DownAndDesperate
in
Thyroid UK
29 days ago
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Am I the only one
Has anybody ever had a bad reaction to taking vitamin d?
Has anybody ever had a bad reaction to taking vitamin d?
Popcorn12345
in
Pernicious Anaemia Society
29 days ago
Just a moan - appointment cancelled
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
Clare184
in
Pernicious Anaemia Society
29 days ago
symptoms flare-up
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
MuppDog
in
Pernicious Anaemia Society
29 days ago
Change of rheumatology consultant! 😬
Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results worthy of meds or treatment. I've got a lot of symptoms that he doesn't seem to think are related to the disease. Dyspepsia, muscle aches, vit d
Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results worthy of meds or treatment. I've got a lot of symptoms that he doesn't seem to think are related to the disease. Dyspepsia, muscle aches, vit d
Natalie1982
in
Scleroderma & Raynaud's UK (SRUK)
30 days ago
I Don't Want to Inject
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
A One Time Experience
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Advice on taking T3 for first time also best pharmacy to use Private prescription please
Hello everyone, I have finally obtained a prescription for T3 from a private endo. I’m excited but also apprehensive and want to get off to a good start, so would like some advice about the doses of T3 and T4 to take . Also information about the cheapest way of obtaining the T3 from my prescription.
Hello everyone, I have finally obtained a prescription for T3 from a private endo. I’m excited but also apprehensive and want to get off to a good start, so would like some advice about the doses of T3 and T4 to take . Also information about the cheapest way of obtaining the T3 from my prescription.
nannieJen
in
Thyroid UK
1 month ago
Health Anxiety or MS
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Muef
in
Anxiety and Depression Support
1 month ago
B1 Therapy INSTAGRAM live
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
Markbit
in
Cure Parkinson's
1 month ago
Newbie in need 😢🙏
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Molliesmamma
in
Fibromyalgia Action UK
1 month ago
Advanced Thyroid Function Blood Test
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
Berryquilter
in
Thyroid UK
1 month ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
1 month ago
Latest blood results
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Ganggywaller
in
Thyroid UK
1 month ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
1 month ago
Hypothyroidism and Pernicious Anaemia assistance please
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
yorkshiregirl4
in
Thyroid UK
1 month ago
High doses of B12
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Can one overdose on B12? Can it be given in mega doses like B1? Is it advisable for PWP to take extra high doses of B12? My WWP recently had a blood test and her B12 levels were only slightly higher by about 10% of the recommended levels.
Rafiki2
in
Cure Parkinson's
1 month ago
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