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Brain alterations with Chronic Fatigue
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Cobalt1312
in
Pernicious Anaemia Society
6 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
3 months ago
where to get b12 injections to self administer?
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
Popcornlover1
in
Pernicious Anaemia Society
6 months ago
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ITV Evening News 6/3/24
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
B12again
in
Pernicious Anaemia Society
6 months ago
Any Tips To Help With Post B12 Injection Affects?
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hidden
in
Pernicious Anaemia Society
6 months ago
Things are getting worse
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
Vongai
in
Pernicious Anaemia Society
6 months ago
folic acid
Is there a good resource showing the need for good folate levels alongside B12 injections? I’m on 4-weekly B12 injections but my latest serum folate blood test is at the very low end of the range, but technically in range according to the NHS so ‘no action required’. It’s gone down while I’ve been
Is there a good resource showing the need for good folate levels alongside B12 injections? I’m on 4-weekly B12 injections but my latest serum folate blood test is at the very low end of the range, but technically in range according to the NHS so ‘no action required’. It’s gone down while I’ve been
Pa234aw
in
Pernicious Anaemia Society
6 months ago
monitor my health
has anyone had any problems with mmh this week? I posted my bloods as normal Monday morning. Had a look Tuesday morning to see it had been received by the sorting office at Exeter about 04.00. I checked yesterday afternoon and it was still posted as being at the sorting office. I tried to check this
has anyone had any problems with mmh this week? I posted my bloods as normal Monday morning. Had a look Tuesday morning to see it had been received by the sorting office at Exeter about 04.00. I checked yesterday afternoon and it was still posted as being at the sorting office. I tried to check this
Auders
in
Thyroid UK
6 months ago
Monitor My Health
Good afternoon everyone. Has anyone had problems with MMH this week? I sent my bloods off as normal Monday morning. I checked Tuesday morning and it had arrived at Exeter sorting office about 04.00 for onward delivery to the local delivery office. I checked again yesterday evening to see if had been
Good afternoon everyone. Has anyone had problems with MMH this week? I sent my bloods off as normal Monday morning. I checked Tuesday morning and it had arrived at Exeter sorting office about 04.00 for onward delivery to the local delivery office. I checked again yesterday evening to see if had been
Auders
in
Thyroid UK
6 months ago
b12 and “liver storage”
Every time I think I have a handle on how this essential vitamin works, I read something and have to adjust my understanding. Has anyone read this? Enough to have a discussion about it? [u]
The Enterohepatic Circulation of Vitamin B12
[/u] My takeaway quotes were: “[i]The reabsorption of
Every time I think I have a handle on how this essential vitamin works, I read something and have to adjust my understanding. Has anyone read this? Enough to have a discussion about it? [u]
The Enterohepatic Circulation of Vitamin B12
[/u] My takeaway quotes were: “[i]The reabsorption of
PlatypusProfit8077
in
Pernicious Anaemia Society
1 month ago
Bleeding when injecting
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Helliborous
in
Pernicious Anaemia Society
6 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Results please help
Hi everyone. I have been diagnosed with underactive thyroid in my 20's im 49 now. On 50 mmg daily for many years. In August 2023 my bloods were Tsh -6.52 miu/L (0.35 -4.94) FreeT4 -12.8pmol (9.01 - 19.05) Free T3- 4pmol ( 2.63 -5.7) My gp up my medications another 50mmg In October
Hi everyone. I have been diagnosed with underactive thyroid in my 20's im 49 now. On 50 mmg daily for many years. In August 2023 my bloods were Tsh -6.52 miu/L (0.35 -4.94) FreeT4 -12.8pmol (9.01 - 19.05) Free T3- 4pmol ( 2.63 -5.7) My gp up my medications another 50mmg In October
WED2012
in
Thyroid UK
7 months ago
Most recent blood results
TSH 4.0 mIU/L (0.4 - 4.9) 80.0%Free T4 (fT4) 12.2 pmol/L (9 - 19) 32.0% Free T3 (fT3) 4.8 pmol/L (2.4 - 6) 66.7% T4:T3 Ratio 2.542 Thyroid Peroxidase Antibodies (TPO) 199 IU/mL (≤ 35) Vitamin D 44 nmol/L (≥ 49) Hi all. Haven't been on for a little while so it was a nice surprise to see the new calculator
TSH 4.0 mIU/L (0.4 - 4.9) 80.0%Free T4 (fT4) 12.2 pmol/L (9 - 19) 32.0% Free T3 (fT3) 4.8 pmol/L (2.4 - 6) 66.7% T4:T3 Ratio 2.542 Thyroid Peroxidase Antibodies (TPO) 199 IU/mL (≤ 35) Vitamin D 44 nmol/L (≥ 49) Hi all. Haven't been on for a little while so it was a nice surprise to see the new calculator
Mummybear0213
in
Thyroid UK
6 months ago
Fibro or B12 deficiency??
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Blueoxo
in
Fibromyalgia Action UK
6 months ago
Unsure about increasing T3
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Hi Everyone, I’ve had my appointment with my thyroid specialist today and she wants me to increase my T3 from 15mcg a day to 25mcg a day and keep levo at 100mcg. However I’m really hesitant to do this as last time I increased my T3 (see my original post below) I got my T4 to 6 and felt awful. Plus I
Fallleaves
in
Thyroid UK
6 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
6 months ago
Increased symptoms after injections.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
Suesue246
in
Pernicious Anaemia Society
6 months ago
Advice before I see the endo
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
Fliplaar
in
Thyroid UK
6 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
6 months ago
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