Search
Search
About
Log in
Join
Experiences with
Vitamin D3
Posts
Communities
49,486 public posts
Filter results
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
6 months ago
B12 Injection Side Effects
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hidden
in
Pernicious Anaemia Society
6 months ago
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections?
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
6 months ago
Advice please
Could I have some advice as to whether these Monitor My Health results are low even though they are in range. MMH were unable to test folate and haemoglobin due to error with sample. Thank you
Could I have some advice as to whether these Monitor My Health results are low even though they are in range. MMH were unable to test folate and haemoglobin due to error with sample. Thank you
Sailing14
in
Thyroid UK
6 months ago
BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Noelnoel
in
Pernicious Anaemia Society
6 months ago
Draft NICE B12?
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
RoseFlowerDew
in
Pernicious Anaemia Society
6 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Winter Down Turn
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Long Covid, B12 and Iron Deficiency
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
Wwwdot
in
Pernicious Anaemia Society
6 months ago
Results
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
Opinions please gratefully received TSH. 0.13. (0.27- 4.2) Free T4. 16.8 ( 10 - 21) Folate 3.7 (1.5 - 20) B12. 324. ( 180 - 2000 )
foamfollower
in
Thyroid UK
6 months ago
Fosteum Plus
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
My endocrinologist in Houston prescribed Fosteum Plus. It has 500mg of calcium with vitamin K and other important ingredients. Anyone taking it? You don’t hear much mentioned about it even though it’s been around several years.
intexasnloveit
in
Osteoporosis Support
6 months ago
B12 ??
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
LorraineQ
in
Pernicious Anaemia Society
6 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
6 months ago
MS...how nutrtion plays a role in MS
I notice that if i am off my vitamins and nutritional routine..MS is more severe. Stress is a major killer and sleep. is it the MS or visa versa>
I notice that if i am off my vitamins and nutritional routine..MS is more severe. Stress is a major killer and sleep. is it the MS or visa versa>
jackiesj
in
My MSAA Community
7 months ago
Ritalin side effects
My son recently diagnosed ADHD was put on Ritalin (short acting) once a day at 10mg it’s only been around 3-4 weeks since he started however I’ve noticed really bad smelling farts and constant urination. Has anyone else experienced similar? I’m not sure if I should be concerned about these side effects
My son recently diagnosed ADHD was put on Ritalin (short acting) once a day at 10mg it’s only been around 3-4 weeks since he started however I’ve noticed really bad smelling farts and constant urination. Has anyone else experienced similar? I’m not sure if I should be concerned about these side effects
Isabellarose
in
CHADD's ADHD Parents Together
4 months ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
2 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
4 months ago
anyone got experience of private Drs or this reaction to dropping meds?
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
TO UPDATE, I HAVE BEEN IN TOUCH WITH AN ENDO FROM THE LIST AND AS MY ENDO ALREADY PRESCRIBES T3 ONLY THERAPY FOR ME (long story) HE MADE IT CLEAR THAT I WAS ALREADY GETTING THE BEST I PROBABLY COULD OUT OF AN NHS GP. SO NO NEED TO PAY PRIVATELY. Depressing to know no more nuanced help from anyone, but
sulamaye
in
Thyroid UK
7 months ago
Clueless and looking for advice!
Hi, I was recommended to post here from the thyroid uk group. I did a medichecks test last week, and my vitamin levels were as follows. I have also included previous results from 2022 that the GP took. Vit D (50-250 normal range) 01/04/22. 31nmol 15/07/22. 42nmol 29/02/24. 55.1nmol Ferritin (30-
Hi, I was recommended to post here from the thyroid uk group. I did a medichecks test last week, and my vitamin levels were as follows. I have also included previous results from 2022 that the GP took. Vit D (50-250 normal range) 01/04/22. 31nmol 15/07/22. 42nmol 29/02/24. 55.1nmol Ferritin (30-
KTEO
in
Pernicious Anaemia Society
6 months ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21709 results
Pernicious Anaemia Society
13287 results
Cure Parkinson's
1455 results
View top 10 communities
Sort by
Most Relevant
Newest