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Meylofibrosis/Hydrea
Hi everyone - new on this forum! Diagnosed with Meylofibrosis Sept 23. On Hydrea and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might
Hi everyone - new on this forum! Diagnosed with Meylofibrosis Sept 23. On Hydrea and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might
RietFontein
in
MPN Voice
6 months ago
vitamin D
started to organise my vitamins and this result just came up on MMH VITAMIN D 42 It states adequate but higher in range to make it preferable I’ve got some Better You D3000+K2 How many squirts do I need?
started to organise my vitamins and this result just came up on MMH VITAMIN D 42 It states adequate but higher in range to make it preferable I’ve got some Better You D3000+K2 How many squirts do I need?
AustinHealeySprite
in
Thyroid UK
7 months ago
NEW BLOODS - getting there, but need advice on a few things please!
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
FallingInReverse
in
Thyroid UK
6 months ago
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An SI Newbie
Hiya everyone, I'm in dire need of some help and encouragement 🤗 to begin self injecting. My Doctor turned around a week ago and told me my b12 was now normal (after liver blood test) and I no longer needed my nhs 12 weekly injections as I am borderline. I hate that word as you can't be in the middle
Hiya everyone, I'm in dire need of some help and encouragement 🤗 to begin self injecting. My Doctor turned around a week ago and told me my b12 was now normal (after liver blood test) and I no longer needed my nhs 12 weekly injections as I am borderline. I hate that word as you can't be in the middle
SlothMode
in
Pernicious Anaemia Society
6 months ago
ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
6 months ago
Methotrexate
Hi all. This is my first post. I'm 51 and I was diagnosed with rheumatoid arthritis Nov 2022. I started hydroxychloroquine straight away. Tried sulfasalazine but experienced awful side effects with my Hiatus Hernia Started on 15mg Methotrexate in January with side effects of mostly fatigue and nausea
Hi all. This is my first post. I'm 51 and I was diagnosed with rheumatoid arthritis Nov 2022. I started hydroxychloroquine straight away. Tried sulfasalazine but experienced awful side effects with my Hiatus Hernia Started on 15mg Methotrexate in January with side effects of mostly fatigue and nausea
Granblue
in
NRAS
6 months ago
Post thyroidectomy.
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
HelenaJ
in
Thyroid UK
6 months ago
Bodfeld Apotheke vitamin B12 self inject
Hi All , Does anyone still manage to purchase B12 injections from this company in Germany as I am trying to register and I can only get as far as the country of residence as the UK is not listed ?
Hi All , Does anyone still manage to purchase B12 injections from this company in Germany as I am trying to register and I can only get as far as the country of residence as the UK is not listed ?
Odynsfee
in
Pernicious Anaemia Society
6 months ago
Starting again...
I first consulted Dr P in 2010 and followed his recommendations for improving my adrenal and thyroid function, both very depleted. This involved taking Nutri supplements, then Adrenavive plus Metavive which I found better. Around 2017 I stopped taking the supplements because of feeling overmedicated
I first consulted Dr P in 2010 and followed his recommendations for improving my adrenal and thyroid function, both very depleted. This involved taking Nutri supplements, then Adrenavive plus Metavive which I found better. Around 2017 I stopped taking the supplements because of feeling overmedicated
janetah12
in
Thyroid UK
6 months ago
Should I be pushing for further investigation? Help appreciated ❤️
Hi everyone, It's my first post here after watching over the last few weeks! I'm from the UK and having a bit of a mare getting my GP to seriously investigate what's wrong with me. I'd really appreciate your advice on my blood test results in particular. Apologies in advance for the essay 🙈. Skip to
Hi everyone, It's my first post here after watching over the last few weeks! I'm from the UK and having a bit of a mare getting my GP to seriously investigate what's wrong with me. I'd really appreciate your advice on my blood test results in particular. Apologies in advance for the essay 🙈. Skip to
Battypatty2
in
Pernicious Anaemia Society
2 months ago
Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
6 months ago
Some more results
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
Lollipop93
in
Thyroid UK
6 months ago
First Private Blood Test
This is my first post to this excellent website, and I hope someone can help me understand my first private blood test - fasting, last levothyroxine 26 hours previously. No B12 supplement for three weeks prior to the test. I did find it difficult to get sufficient blood, this being my second attempt
This is my first post to this excellent website, and I hope someone can help me understand my first private blood test - fasting, last levothyroxine 26 hours previously. No B12 supplement for three weeks prior to the test. I did find it difficult to get sufficient blood, this being my second attempt
man1412
in
Thyroid UK
6 months ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
6 months ago
T4 Rising
Back in January I was feeling awful, worse than when I was thyrotoxic at the start of all these problems in Sept 2021. In October 2023 I suffered what appeared to be a mild bout of Covid-19 but I seemed to slowly deteriorate from then on with what appeared to be worsening hypothyroid symptoms. These
Back in January I was feeling awful, worse than when I was thyrotoxic at the start of all these problems in Sept 2021. In October 2023 I suffered what appeared to be a mild bout of Covid-19 but I seemed to slowly deteriorate from then on with what appeared to be worsening hypothyroid symptoms. These
Sat2
in
Thyroid UK
6 months ago
Vit B12 sublingual
I've just changed to the igennus b12 sublingual as I get on very well with their super-b complex. reading the label I notice it contains methylcobalamin, adenosylcobalamin and hydroxocobalamin, the previous b12 supp I used didn't have hydroxocobalamin - what is it?
I've just changed to the igennus b12 sublingual as I get on very well with their super-b complex. reading the label I notice it contains methylcobalamin, adenosylcobalamin and hydroxocobalamin, the previous b12 supp I used didn't have hydroxocobalamin - what is it?
Jamima
in
Thyroid UK
6 months ago
Timings of NDT and iron supplements
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Maldeerum
in
Thyroid UK
7 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
6 months ago
Recently diagnosed and have questions
I'm 41 and went for a DEXA scan in January due to a family history of osteoporosis. I have mild scoliosis in my thoracic spine. The results came back as having osteoporosis.AP Spine BMD 0.713 t score -3.0 z score -2.8 Femoral neck BMD 0.564 t score -2.6 z score -2.3 Hip BMD 0.640 t score -2.5 z score
I'm 41 and went for a DEXA scan in January due to a family history of osteoporosis. I have mild scoliosis in my thoracic spine. The results came back as having osteoporosis.AP Spine BMD 0.713 t score -3.0 z score -2.8 Femoral neck BMD 0.564 t score -2.6 z score -2.3 Hip BMD 0.640 t score -2.5 z score
BoneJangles
in
Bone Health and Osteoporosis UK
6 months ago
help please seeing the doctors today and haematologist
hello I have has my thyroid tested privately as my tsh levels have always been around 1. these are the results from the test done at 11 am.i had not eaten since about 7 pm the night before. Tsh 1.060 Ft4 12.30 Ft3 4.35 A bit of background information I have low iron but take iron tablets everyday
hello I have has my thyroid tested privately as my tsh levels have always been around 1. these are the results from the test done at 11 am.i had not eaten since about 7 pm the night before. Tsh 1.060 Ft4 12.30 Ft3 4.35 A bit of background information I have low iron but take iron tablets everyday
Bonfire24
in
Thyroid UK
5 months ago
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