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Advice on raising NDT
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
SarrahMay
in
Thyroid UK
3 months ago
Elevated Vitamin B 12
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
i am embarrassed to write this ,,,my bloods cam back after six months of Urso and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day! I also eat a lot of
Gaspereaux
in
British Liver Trust
3 months ago
sublingual b12
I appreciate that self injection is the most sensible route but haven’t made that decision for myself. Where do you buy the sublingual b12 as I can only see tablets? Can you give me the name of the product and site for buying. Thanks.
I appreciate that self injection is the most sensible route but haven’t made that decision for myself. Where do you buy the sublingual b12 as I can only see tablets? Can you give me the name of the product and site for buying. Thanks.
Palum
in
Pernicious Anaemia Society
3 months ago
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Curious on medication
List of my meds.Methylated Vit B Selenium Zinc Vit D Levothyroxine Vit c with Rosehip Magnesium What order should I take these in, I'm wondering if some are counteracting others. I usually take B, Zinc & Selenium in a morning on am empty stomach. 8am Then around 10 take levo Lunchtime vit d an
List of my meds.Methylated Vit B Selenium Zinc Vit D Levothyroxine Vit c with Rosehip Magnesium What order should I take these in, I'm wondering if some are counteracting others. I usually take B, Zinc & Selenium in a morning on am empty stomach. 8am Then around 10 take levo Lunchtime vit d an
jodes86baldwin
in
Thyroid UK
3 months ago
Using up my B1 Thiamine.
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
3 months ago
Information about frequency of injection
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
LizWilsonpa
in
Pernicious Anaemia Society
3 months ago
Latest results
I’m currently on 125mcg of levothyroxine. Overall I’m feeling much better with most bothersome results now being constipation and intense itching which comes and goes. My doctors seem very reluctant to increase my levo and I’ve had to push for each increase so far. These are my recent results.
I’m currently on 125mcg of levothyroxine. Overall I’m feeling much better with most bothersome results now being constipation and intense itching which comes and goes. My doctors seem very reluctant to increase my levo and I’ve had to push for each increase so far. These are my recent results.
RosieTheRoo2023
in
Thyroid UK
3 months ago
Really severe rls plus mds
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
SevereRLS-4mom
in
Restless Legs Syndrome
3 months ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
3 months ago
Exhausted still after B12 injection.
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
Dolly260
in
Pernicious Anaemia Society
3 months ago
Hebden Bridge Help Needed Please
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Wwwdot
in
Pernicious Anaemia Society
3 months ago
Adrenal/Cortisol issues- help please
So it's recently been bought to my attention that my struggles to tolerate any t4 t3 medication could be down to low cortisol or adrenal issues, is this common? I'm starting to question if adrenal issues are actually my main problem? I was diagnosed 'subclinical hypo' last year and have been on varying
So it's recently been bought to my attention that my struggles to tolerate any t4 t3 medication could be down to low cortisol or adrenal issues, is this common? I'm starting to question if adrenal issues are actually my main problem? I was diagnosed 'subclinical hypo' last year and have been on varying
GreenTealSeal
in
Thyroid UK
5 months ago
lanzoprazole side effects
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
gp switched me fro omeprazole to lanzoprazole a few weeks ago . I seem to have developed very loose bowels every morning . I have recently been prescribed folic acid for low folate ? Has anyone had this side effect to either of these 2 meds please ?
Stent2024
in
British Heart Foundation
3 months ago
Mum's journey with adrenal insuffiency and hypothyroidism
Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history of adrenal insufficiency and hypothyroidism. She takes two 5mg cortate acetate per day. Previously, she had anaemia and low neutrophils as
Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history of adrenal insufficiency and hypothyroidism. She takes two 5mg cortate acetate per day. Previously, she had anaemia and low neutrophils as
quicklyinsignificant
in
PMRGCAuk
3 months ago
Update with Vit B12 & Folate results
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Hi, I posted a little while ago with recent Thyroid results. SlowDragonsuggested I come back with some other results once I had them. I'm not diagnosed with a Thyroid issue as of yet. These results are following an appointment with an NHS Endocrinologist. I didn't think about him taking bloods at
Sunnyyellowlady
in
Thyroid UK
3 months ago
Does anyone know anything about low SigA levels and links with b12 deficiency please?
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Jo5454
in
Pernicious Anaemia Society
3 months ago
Thoughts on my blood test results please
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
Hi there, The results from my latest advanced thyroid test are as follows. This is after reducing my Levothyroxine to 87.5mcg for two months. Blood test was taken 7:50am, 24 hours after levothyroxine, fasting and no supplements for a week. CRP HS 1.02 (0-3) Ferritin 116 (30-264) Folate serum 18.3
TiredMummy
in
Thyroid UK
3 months ago
Back to life thanks to this forum! GP Next steps though - further levo increase?
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
CherryPie2
in
Thyroid UK
3 months ago
POTS help
Hi, I have been diagnosed with Pots for 14 years. I am currently in my mid 20s and I am receiving treatments for pots however I am still have difficulty taking public transportation And doing strenuous activities (long walk, night out, physical labor, more than one day in the office) and sometimes basic
Hi, I have been diagnosed with Pots for 14 years. I am currently in my mid 20s and I am receiving treatments for pots however I am still have difficulty taking public transportation And doing strenuous activities (long walk, night out, physical labor, more than one day in the office) and sometimes basic
AmyMarchfan
in
British Heart Foundation
5 months ago
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