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ET + Anagrelide
Is anyone taking Angrelide and dealing with side effects? I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats
Is anyone taking Angrelide and dealing with side effects? I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats
Zeppelin11
in
MPN Voice
4 months ago
Read & Plunge. Research and then just do it. You'll thank yourself for trying it.
After about a year and eight months since my diagnosis, which was about two weeks before my 50th birthday, I've tried it all; you name it. The reading up on ADHD, exercising, nutritional biochemistry with supplementation and vitamins, meditation, journaling, etc. The lot. I just came across TWO gamechangers
After about a year and eight months since my diagnosis, which was about two weeks before my 50th birthday, I've tried it all; you name it. The reading up on ADHD, exercising, nutritional biochemistry with supplementation and vitamins, meditation, journaling, etc. The lot. I just came across TWO gamechangers
FocusAndFlow
in
CHADD's Adult ADHD Support
1 day ago
blood tests and vitamins advise, please
Hello. I just had my blood tests done. These are my results: TSH: 1,84 0,27-4,03 FT4: 17 11-22 FT3: 4,65 3,1-6,8 Vit D3: 18 30-70 vit B12: 382, 9
Hello. I just had my blood tests done. These are my results: TSH: 1,84 0,27-4,03 FT4: 17 11-22 FT3: 4,65 3,1-6,8 Vit D3: 18 30-70 vit B12: 382, 9
Giulia12
in
Thyroid UK
1 month ago
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vitamin b3
After full thyroid removal I’m going to get my vitamins optimized, can anyone tell me what do I need to do to optimize my supplementing vitamin b3 absorption? Thanks.
After full thyroid removal I’m going to get my vitamins optimized, can anyone tell me what do I need to do to optimize my supplementing vitamin b3 absorption? Thanks.
Happy121
in
Thyroid UK
3 months ago
Test results advice?
hello. I have just had a medichecks thyroid and cortisol test. I have an endo appt later this week. Cortisol is out of wack for sure as I think are the others. any thoughts gratefully received CRP 1 (0-5) (phew) FERRITIN 71 (30 - 400 R) FOLATE -16.4 (2.9 -16.98) VITAMIN B12 - 163 (
hello. I have just had a medichecks thyroid and cortisol test. I have an endo appt later this week. Cortisol is out of wack for sure as I think are the others. any thoughts gratefully received CRP 1 (0-5) (phew) FERRITIN 71 (30 - 400 R) FOLATE -16.4 (2.9 -16.98) VITAMIN B12 - 163 (
lauriegraham
in
Thyroid UK
9 months ago
People with hypothyroidism and ME
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
AnneEvo
in
Thyroid UK
4 months ago
Levothyroxine and vitamin - timings
Morning. I have taken my first dose of Levothyroxine this morning. I have a recollection of being told / reading about timing of taking other medication being important but can’t find it to refresh myself. Would someone be able to tell me when I am best to take my vitamins..? B12, B complex and D as
Morning. I have taken my first dose of Levothyroxine this morning. I have a recollection of being told / reading about timing of taking other medication being important but can’t find it to refresh myself. Would someone be able to tell me when I am best to take my vitamins..? B12, B complex and D as
TheMudRunner
in
Thyroid UK
3 months ago
Prolia 1yr Update
I wanted to share my Prolia results. One year ago my DEXA scan showed Osteopenia in the left femoral neck (T -1.1) and I started Prolia. I chose not to take Vitamin D or calcium as they were within normal range. My DEXA scan a year later showed a 3.5 % increase in bone density in my hip with a T of -
I wanted to share my Prolia results. One year ago my DEXA scan showed Osteopenia in the left femoral neck (T -1.1) and I started Prolia. I chose not to take Vitamin D or calcium as they were within normal range. My DEXA scan a year later showed a 3.5 % increase in bone density in my hip with a T of -
TylexGP
in
Advanced Prostate Cancer
1 year ago
Vitamin B6 in B Complexes
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
chrysalis56
in
Thyroid UK
3 months ago
starting Romosozumab soon
I am new to this forum and have just been reading the wealth of information about osteoporosis.. Thank god for what a wonderful group I can learn from. T12 fracture in Feb then 4 more lumbar fractures in March 30th 2024. My GP whom is just the best ever contacted an endocrinologist and he suggested
I am new to this forum and have just been reading the wealth of information about osteoporosis.. Thank god for what a wonderful group I can learn from. T12 fracture in Feb then 4 more lumbar fractures in March 30th 2024. My GP whom is just the best ever contacted an endocrinologist and he suggested
234me
in
Bone Health and Osteoporosis UK
4 months ago
looking for advice
hey! After asking GP for a blood test based on symptoms : discomfort in neck area ( as if i swallowed something and it got stuck in my throat) , sudden weight gain without eating more or moving less, menstrual irregularities, constant fatigue, some pretty bad swelling in my legs, and joint pains and
hey! After asking GP for a blood test based on symptoms : discomfort in neck area ( as if i swallowed something and it got stuck in my throat) , sudden weight gain without eating more or moving less, menstrual irregularities, constant fatigue, some pretty bad swelling in my legs, and joint pains and
Madzia93
in
Thyroid UK
1 year ago
Low T3
Hi, I have been hypothyroid for many years now, but I am really struggling with brain fog and fatigue. I am currently taking 75mcg of Levothyroxine daily, but my doctor says I am overmedicated and wants to drop the dose to 50mcg . I have resisted this so far. She refuses to test T3 as she says if
Hi, I have been hypothyroid for many years now, but I am really struggling with brain fog and fatigue. I am currently taking 75mcg of Levothyroxine daily, but my doctor says I am overmedicated and wants to drop the dose to 50mcg . I have resisted this so far. She refuses to test T3 as she says if
Flycatcher
in
Thyroid UK
9 months ago
PA and anxiety
Hi allI was diagnosed with PA about 6 years ago. For years I lived with the worse anxiety. Once I started loading doses and got on a regiment(3 jabs a week) my anxiety was practically gone. I mean I would get nervous(normal type of nervous) but anxiety was all but gone. About a year ago, my new primary
Hi allI was diagnosed with PA about 6 years ago. For years I lived with the worse anxiety. Once I started loading doses and got on a regiment(3 jabs a week) my anxiety was practically gone. I mean I would get nervous(normal type of nervous) but anxiety was all but gone. About a year ago, my new primary
Wowo23
in
Pernicious Anaemia Society
10 hours ago
Folate
Hi I would be interested to hear how other people raised their folate levels quickly by diet
Hi I would be interested to hear how other people raised their folate levels quickly by diet
Andypandy30
in
Pernicious Anaemia Society
17 hours ago
Megaloblastic anemia and very low b12
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
Plumpudding
in
Pernicious Anaemia Society
20 hours ago
SECOND BREAST CANCER OPPERATION
Hello all I ususally post in the thyroid section, but this is another health matter ,id really appreciate some advice on, if anyone is willing to help . I firstly had breasy cancer in my late 40s nd had a lumpectomy in my left breast, and 5 nodes out , this took three months to heal and then because
Hello all I ususally post in the thyroid section, but this is another health matter ,id really appreciate some advice on, if anyone is willing to help . I firstly had breasy cancer in my late 40s nd had a lumpectomy in my left breast, and 5 nodes out , this took three months to heal and then because
Astro16
in
Women's Health
21 hours ago
Does B12 lower magnesium levels
Hi trying to work out what is causing my anxiety and if i should continue with weekly b12 injections after two infections and being treated with antibiotics .also started on a higher dose of levithyroxine as my results showed I needed an increase
Hi trying to work out what is causing my anxiety and if i should continue with weekly b12 injections after two infections and being treated with antibiotics .also started on a higher dose of levithyroxine as my results showed I needed an increase
Andypandy30
in
Pernicious Anaemia Society
1 day ago
B12 injections
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
130396
in
MPN Voice
2 days ago
feeling unwell again
Hi all- thanks in advance for any help. I’ve not been feeling well recently following a period of pretty intense stress. I am currently on 75 Levothyroxine sodium microgram tablets. I had a private blood test done results below done following protocols: TRIODOTHYRONINE 29/07/2024 3.6 pmol/L FT3
Hi all- thanks in advance for any help. I’ve not been feeling well recently following a period of pretty intense stress. I am currently on 75 Levothyroxine sodium microgram tablets. I had a private blood test done results below done following protocols: TRIODOTHYRONINE 29/07/2024 3.6 pmol/L FT3
Polarbear54321
in
Thyroid UK
2 days ago
travel restrictions
I am due to travel to Canada from the U.K. in October. I SI and so will need to take B12 , syringes and needles with me . Can I put these in the hold luggage .Will there be any restrictions and is it likely the syringes etc will be confiscated at customs ? Any advice welcome .
I am due to travel to Canada from the U.K. in October. I SI and so will need to take B12 , syringes and needles with me . Can I put these in the hold luggage .Will there be any restrictions and is it likely the syringes etc will be confiscated at customs ? Any advice welcome .
36Hele
in
Pernicious Anaemia Society
2 days ago
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