looking for advice: hey! After asking GP for a... - Thyroid UK

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Madzia93 profile image
8 Replies

hey!

After asking GP for a blood test based on symptoms : discomfort in neck area ( as if i swallowed something and it got stuck in my throat) , sudden weight gain without eating more or moving less, menstrual irregularities, constant fatigue, some pretty bad swelling in my legs, and joint pains and being refused, I decided to do private blood test towards thyroid - my father suffers from Hashimoto and wanted to exclude that as a reason to why I feel the way I feel.

I have done blood test privately , received results today and I am even more confused .

Could anyone please tell me what that could indicate and if so, how should I move forward from now?

Just to say- I also came low on Vit D .

thanks in advance xx

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Madzia93 profile image
Madzia93
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Pixielula profile image
Pixielula

your antibody levels show you have Hashimoto’s your symptoms show you have Hashimoto’s but your THS is not yet in the range where your GP will will treat you? What time of the day were your bloods done? THS is at its highest around 2-3am… after that it starts to drop. We always advised people to do their bloods on the earliest app and fasting only water before hand. Sadly in the uk doctors no longer diagnose on symptoms, just blood results

Madzia93 profile image
Madzia93 in reply toPixielula

it was done at 9 am x

SlowDragon profile image
SlowDragonAdministrator

Have you tested folate, ferritin and B12

If not, get these tested now

High TG antibodies can be due to Hashimoto’s, but can also be high with Pernicious Anaemia and type one diabetes

healthline.com/health/antit...

How low was vitamin D

Madzia93 profile image
Madzia93 in reply toSlowDragon

vit D - 30 nmol ( range 25 - 125 nmol)

ferritin 52 ( range 13 - 150 )

vit b12 427 ( tange 197 - 771)

SlowDragon profile image
SlowDragonAdministrator in reply toMadzia93

ferritin 52 ( range 13 - 150 )

A little low

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Excellent article on iron and thyroid

cambridge.org/core/journals...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Good iron but low ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron

healthline.com/nutrition/he...

Suggest you get ultrasound scan of thyroid

Ideally via GP

If they refuse, can get privately

Madzia93 profile image
Madzia93 in reply toSlowDragon

SlowDragon

SlowDragon profile image
SlowDragonAdministrator in reply toMadzia93

Low vitamin D

GP should prescribe 1600iu everyday for 6 months

But you’re probably better self supplementing at least at 2000iu daily, or 3000iu daily

Retest in 2-3 months

You might need higher dose

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to at least 80nmol or between 100nmol -125nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator in reply toMadzia93

vit b12 427 ( tange 197 - 771)

No folate ?

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

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