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Have I cardiac haemolytic anaemia or haven't I?
I have been borderline anaemic for some years and it seems that my TAVI a year ago and the consequent medication may have pushed me over the threshold. On May 31 a haematologist wrote to my GP following tests on
March 5
to say that "it is likely [that I have] cardiac haemolytic anaemia". But
I have been borderline anaemic for some years and it seems that my TAVI a year ago and the consequent medication may have pushed me over the threshold. On May 31 a haematologist wrote to my GP following tests on
March 5
to say that "it is likely [that I have] cardiac haemolytic anaemia". But
Taviterry
in
British Heart Foundation
23 days ago
Update
After the help and advice I received on here I contacted my doctors I have today received a reply to go to see him face to face. His earliest appointment it 20th of August. On my nhs app he has added some notes which I will attach. They seem to imply that there isn't much wrong with my results from my
After the help and advice I received on here I contacted my doctors I have today received a reply to go to see him face to face. His earliest appointment it 20th of August. On my nhs app he has added some notes which I will attach. They seem to imply that there isn't much wrong with my results from my
JUNEO
in
Thyroid UK
23 days ago
B12 Advice please
Hi I just wanted to know if anyone could advise or might have a similar problem I also have hypothyroidism and Hashimotos. I have all the systems of B12 deficiency; fatigue, weight loss, balance problems , brain fog, memory, numb toes, tingling sensation in my legs, swollen ankles especially my left
Hi I just wanted to know if anyone could advise or might have a similar problem I also have hypothyroidism and Hashimotos. I have all the systems of B12 deficiency; fatigue, weight loss, balance problems , brain fog, memory, numb toes, tingling sensation in my legs, swollen ankles especially my left
Bess48
in
Thyroid UK
24 days ago
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Hello!
Hey folks, Not entirely sure where to start here, first post. - I recently had a cholecystectomy (gallbladder removal) due to some on-going issues which were identified as gallstones. - During this, and also backed up by biopsy/blood tests it seems I have some issues going on with my liver L3 fibrosis
Hey folks, Not entirely sure where to start here, first post. - I recently had a cholecystectomy (gallbladder removal) due to some on-going issues which were identified as gallstones. - During this, and also backed up by biopsy/blood tests it seems I have some issues going on with my liver L3 fibrosis
Jmcdongle
in
British Liver Trust
24 days ago
B12 advice
Hi I just wanted to know if anyone could advise or might have a similar problem I have all the systems of B12 deficiency; fatigue, weight loss, balance problems , brain fog, memory, numb toes, tingling sensation in my legs, swollen ankles especially my left one and vision problems with my right eye drooping
Hi I just wanted to know if anyone could advise or might have a similar problem I have all the systems of B12 deficiency; fatigue, weight loss, balance problems , brain fog, memory, numb toes, tingling sensation in my legs, swollen ankles especially my left one and vision problems with my right eye drooping
Bess48
in
Pernicious Anaemia Society
24 days ago
result advice please
hello you lovely people I am currently recovering from Covid and would like some advice regarding my latest blood test results from Monitor my Health. I have updated my bio with my journey thus far. I am currently on a pre-diabetes programme through my GP and because of a mix up at Dr’s (they did
hello you lovely people I am currently recovering from Covid and would like some advice regarding my latest blood test results from Monitor my Health. I have updated my bio with my journey thus far. I am currently on a pre-diabetes programme through my GP and because of a mix up at Dr’s (they did
DitzyGrandma
in
Thyroid UK
24 days ago
3mgs "maintenance dose"?
PMR symptoms since June 2020. Formally diagnosed by rheumy September 2020. Put on 15mgs pred, AA (without a DXA 🤔) which was changed to Risedronate earlier this year, Omeprazole, and OTC calcium/vit D. I have had a few ups and downs tapering (most recently had a 3 to 2.75mgs taper scuppered by
PMR symptoms since June 2020. Formally diagnosed by rheumy September 2020. Put on 15mgs pred, AA (without a DXA 🤔) which was changed to Risedronate earlier this year, Omeprazole, and OTC calcium/vit D. I have had a few ups and downs tapering (most recently had a 3 to 2.75mgs taper scuppered by
Grannymiaow
in
PMRGCAuk
24 days ago
D3 levels /Ca levels
just got some tests back Vitamin D3 (25-OH) 38.84 ng/mL "Adequate " range 30-100 - I am translating from Greek here... Ca 9.5 mg/dL ( range 8.2 -10.2) I have been supplementing uni-pharma D3fix plus K2 1200 IU D3 plus 45 mg K2 for 6 months. Before that during the winter months I was supplementing
just got some tests back Vitamin D3 (25-OH) 38.84 ng/mL "Adequate " range 30-100 - I am translating from Greek here... Ca 9.5 mg/dL ( range 8.2 -10.2) I have been supplementing uni-pharma D3fix plus K2 1200 IU D3 plus 45 mg K2 for 6 months. Before that during the winter months I was supplementing
Crete
in
Thyroid UK
24 days ago
Help with blood results please
My Daughter has just had some blood results and I would be grateful if you could advise on them. I know I should be able to help having had a TT nearly 20 years ago and I have previously received invaluable help from members. But my cognitive abilities have declined and I cannot even remember how to
My Daughter has just had some blood results and I would be grateful if you could advise on them. I know I should be able to help having had a TT nearly 20 years ago and I have previously received invaluable help from members. But my cognitive abilities have declined and I cannot even remember how to
Maria-33
in
Thyroid UK
24 days ago
When will it end?
In the 1970s I had severe anxiety and panic attacks: in the 80s I developed ME which lasted into the 90s; then I started with atrial fibrillation which resulted in waiting for years for a diagnosis - prompted by a very junior nurse saying, [i]'I can't take her blood pressure, her pulse is all over the
In the 1970s I had severe anxiety and panic attacks: in the 80s I developed ME which lasted into the 90s; then I started with atrial fibrillation which resulted in waiting for years for a diagnosis - prompted by a very junior nurse saying, [i]'I can't take her blood pressure, her pulse is all over the
24yearsandcounting
in
Pernicious Anaemia Society
25 days ago
CHRONIC INSOMNIA
My last test results from May 2024 below. I’m supplementing iron, folate, vitamin C, vitamin D, b12 injections, selenium, zinc, just started B complex (first time in years). I use melatonin & magnesium glycinate at the elusive bed time. I should be mid to optimal in vitamin levels. In June 2024 I increased
My last test results from May 2024 below. I’m supplementing iron, folate, vitamin C, vitamin D, b12 injections, selenium, zinc, just started B complex (first time in years). I use melatonin & magnesium glycinate at the elusive bed time. I should be mid to optimal in vitamin levels. In June 2024 I increased
Sami-M
in
Thyroid UK
25 days ago
Should I chase this?
I wrote in another post but didn't get a response so trying again. I'm female late 50s, non smoker, v little alcohol, not overweight but have had a lot of stressful situations to deal with for the last 30 years. I got an ultrasound due to right rib pain which showed -liver slightly enlarged, echo bright
I wrote in another post but didn't get a response so trying again. I'm female late 50s, non smoker, v little alcohol, not overweight but have had a lot of stressful situations to deal with for the last 30 years. I got an ultrasound due to right rib pain which showed -liver slightly enlarged, echo bright
Neednanswers
in
British Liver Trust
25 days ago
New labs came back and MD appt this week
Hi! I’m from the states and having been reading your blog to get good info which I appreciate. Also have a shortage of endos in my area and they focus on DM. Can someone look at my labs and give feedback? I am still having a lot of muscle joint pain and fatigue. I have been taking b12 shots now on drops
Hi! I’m from the states and having been reading your blog to get good info which I appreciate. Also have a shortage of endos in my area and they focus on DM. Can someone look at my labs and give feedback? I am still having a lot of muscle joint pain and fatigue. I have been taking b12 shots now on drops
Goldenrescuemom
in
Thyroid UK
25 days ago
B12 & Folic Acid and Anxiety
I have suffered with anxiety and panic for a long time but since my loading doses of hydroxocobalamin and folic acid my anxiety and panic are unbearable. I just wondered if anyone experienced this and then started feeling better? I'm nervous to inject further and wondered if I'd be better waiting 2-3
I have suffered with anxiety and panic for a long time but since my loading doses of hydroxocobalamin and folic acid my anxiety and panic are unbearable. I just wondered if anyone experienced this and then started feeling better? I'm nervous to inject further and wondered if I'd be better waiting 2-3
Chocolatelover15
in
Pernicious Anaemia Society
25 days ago
neuropathy source
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
hi all, Does anyone else on here have Sjögren’s as well as PA? I am experiencing constant tingling and occasional burning/numbness in my fingers and toes. (specific fingers and toes, not all)….It got worse when I did a reloading series of dosages of B12. I’m curious - does neuropathy usually flow from
Lhood08
in
Pernicious Anaemia Society
25 days ago
Shocking story about women dying of CRF/ME
Did anyone read about the women who died from CFS/ME? https://news.sky.com/story/woman-with-me-died-after-begging-gp-for-help-inquest-told-13183530 Why didn't anyone try B12 and see if it could help her? If you look online there is masses of information about how B12 can help CFS/ME. For example
Did anyone read about the women who died from CFS/ME? https://news.sky.com/story/woman-with-me-died-after-begging-gp-for-help-inquest-told-13183530 Why didn't anyone try B12 and see if it could help her? If you look online there is masses of information about how B12 can help CFS/ME. For example
charks
in
Pernicious Anaemia Society
25 days ago
New Poll - ? How often do you feel you need your B12 injection
Hello lovely folks I saw there as a poll on the above 10 years ago. I wonder if its a Poll we could do again?...as shared knowledge and experience is now 10 years wiser...? and many have questioned B12 Guidance from medical bodies. Could it generate some useful learnings..? if we are trying
Hello lovely folks I saw there as a poll on the above 10 years ago. I wonder if its a Poll we could do again?...as shared knowledge and experience is now 10 years wiser...? and many have questioned B12 Guidance from medical bodies. Could it generate some useful learnings..? if we are trying
Treesong2023
in
Pernicious Anaemia Society
25 days ago
Gastritis and B12 deficiency
Good morning all you lovely people. Does anybody have gastritis as their root cause of B12D? I was hospitalised in 2009 with gastritis and I now believe that this was the beginning of my problems, with a Naproxen prescription and high stress levels in 2023 really exacerbating things in my stomach to
Good morning all you lovely people. Does anybody have gastritis as their root cause of B12D? I was hospitalised in 2009 with gastritis and I now believe that this was the beginning of my problems, with a Naproxen prescription and high stress levels in 2023 really exacerbating things in my stomach to
ClaireWF1346
in
Pernicious Anaemia Society
25 days ago
Blood test iming
Hello so after so much wonderful advice feom this group I've bought and booked my advanced thyroid test with vitamin testing also. I've booked my test for next week, the earliest appointment they do is 9 is this OK? Also does in matter if I am period or just at end of period is there a best time to
Hello so after so much wonderful advice feom this group I've bought and booked my advanced thyroid test with vitamin testing also. I've booked my test for next week, the earliest appointment they do is 9 is this OK? Also does in matter if I am period or just at end of period is there a best time to
Tinkerbell_84
in
Thyroid UK
4 months ago
Calcium supplements - drawbacks
Was not prescribed calcium supplement or Vit D, taking the latter with K2 following advice from the forum. Now concerned about taking a calcium supplement given that there has been some (old) research indicating that it could be harmful to heart, kidneys and colon! Advice would be welcome. I try to ensure
Was not prescribed calcium supplement or Vit D, taking the latter with K2 following advice from the forum. Now concerned about taking a calcium supplement given that there has been some (old) research indicating that it could be harmful to heart, kidneys and colon! Advice would be welcome. I try to ensure
Fatsiajaponica
in
PMRGCAuk
26 days ago
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