B12 and feet

[Spick]

Hi all,

Have posted before.

I have been on 3 monthly B12 injections for a long time, and recently been put on 2 monthly injections after a blood test due to symptoms getting worse.

One symptom that seems to be getting worse, very hot feet, pins & needles really painful to walk on.

Any suggestions would be grateful

[Narwhal10]

Hi Spick,

I do hope that you keep a symptoms diary. When you say that your symptoms were getting worse prior to the increase what were they ?

Now before the increase what sensations did you have in your feet ? Were they numb ? You had a MMA urine test ? And what were the results of that please ? Either your blood or urine test indicated an increase of frequency of Hydroxycobalamin. It maybe the nerves waking up called the Reversing Out Process.

However, I always prefer to be on the side of caution and not put everything down to PA/B12D. Just so nothing is being missed. In a previous post, you asked about other supplements and good folate, ferritin and the other vitamin B’s work together.

I do not know whether you take any other supplements but I feel it best to never forget what your GP is for. You can ring them and make an appointment if you wish.

Best wishes

🐳

[Spick in reply to Narwhal10]

Hi Narwhal10

Thank you for your valued response.

Yes I do keep a daily diary, I am not on the online NHS app. so do not have any test results

The soles of my feet feel like walking on hot cobble stones with needle & pins most of the time, I try to keep the pressure off my soles, and transfer weight onto my heels.

I am due my 12month health M O T soon and will discuss this with the Health Centre nurse

Thanks Again

[Narwhal10 in reply to Spick]

It is my pleasure Spick,

Good about you keeping a symptoms diary. I too am not on the NHSApp and when you have your 12 Monthly MOT please ask the receptionist to print out your results so you have a copy.

As Sleepybunny has said you may indeed need more loading doses. The way you describe your feet appears to warrant this and my goodness that sounds like a cumbersome and awkward way to walk. Many of us do report ‘Burning Foot Syndrome’ (medical fancy name - Grierson-Gopalan syndrome).

Soaking feet in a cool bowl of water can bring some temporary relief if you are able. It is advisable to have the water 2 inches above the ankles just because of anatomy and physiology.

Take care

[Spick in reply to Narwhal10]

Thanks Again

[Sleepybunny]

Hi,

I think you might have a case to ask for loading injections to be restarted.

How many loading injections did you have when treatment started?

If you had/have neuro symptoms then usual pattern would be

A B12 loading injection every other day for as long as symptoms continue to improve, followed by a maintenance injection every 2 months.

If you had 6 loading injections followed by maintenance injections every 3 months, that is a pattern recommended for people without any neuro symptoms.

See treatment patterns in Indications and Doses section in link below.

bnf.nice.org.uk/drugs/hydro...

Have you considered joining and talking to PAS?

PAS membership is separate from membership of this forum.

pernicious-anaemia-society....

PAS website has lots of useful leaflets.

pernicious-anaemia-society....

I left a detailed reply in this thread which might have useful info

Help Needed! Have I got Pernicious Anaemia?

healthunlocked.com/pasoc/po...

Unhappy with treatment?

How to write letters to GP about B12 deficiency

b12info.com/writing-to-your...

Thread about Patient Safety, has links for those in UK having difficult health experiences with B12 deficiency.

healthunlocked.com/pasoc/po...

See pinned forum posts.

I'm not a health professional.

[Spick in reply to Sleepybunny]

Evening Sleepbunny

Thank you for your response, will take your suggestions on board and do some reading.

Regards