Search
Search
About
Log in
Join
Experiences with
Vitamin B12 deficiency
Posts
Communities
49,637 public posts
Filter results
Iron levels
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
DrPaulHT
in
Restless Legs Syndrome
8 months ago
Normal bloods still so tired 😞
Just had bloods redone as feel so tired and achey. All look ok bar folate - could this cause such fatigue?TSH - suppressed FT4 - 18.2 (9-22) FT3 (upper limit I think 6.6) Folate 5 Ferritin 115 B12 1546 - on weekly injections I am also peri menopausal and also have PoTs so hard to know what is causing
Just had bloods redone as feel so tired and achey. All look ok bar folate - could this cause such fatigue?TSH - suppressed FT4 - 18.2 (9-22) FT3 (upper limit I think 6.6) Folate 5 Ferritin 115 B12 1546 - on weekly injections I am also peri menopausal and also have PoTs so hard to know what is causing
kirsty1946
in
Thyroid UK
5 months ago
petition?!
hello, I was just online trying to find anything about IM v’s SC B12 and came across a post response to the question of do the NHS fund B12 injections-the answer (from a Cornwall NHS) said that the NHS would no longer be funding these and would expect the patient to pay for themselves? No date on post
hello, I was just online trying to find anything about IM v’s SC B12 and came across a post response to the question of do the NHS fund B12 injections-the answer (from a Cornwall NHS) said that the NHS would no longer be funding these and would expect the patient to pay for themselves? No date on post
EyesWideNow
in
Pernicious Anaemia Society
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
5 months ago
Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
5 months ago
What deficiencies could B12 injection cause?
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Some of you might remember me writing about how, since moving to Pascoe vials from Dr Myhill's multi use vial, I've been experiencing whole of body mini vibrations / electricity / agitation. It's particularly bad in the night and I wake with it. I had worked out that it's tolerable by reducing injection
Sunnysidoop
in
Pernicious Anaemia Society
5 months ago
Iron panel test results
Hi, Had RL for about 8 years approx, 61 age now (male). The main results I have found on line form the test from my GP is:- Serum ferritin 89 Serum iron 19 Serum transferrin 2.5 Serum transferrin % saturation 30 I wonder if anyone can comment on this ie good, bad terrible etc? Thank
Hi, Had RL for about 8 years approx, 61 age now (male). The main results I have found on line form the test from my GP is:- Serum ferritin 89 Serum iron 19 Serum transferrin 2.5 Serum transferrin % saturation 30 I wonder if anyone can comment on this ie good, bad terrible etc? Thank
Davidbaldbloke
in
Restless Legs Syndrome
8 months ago
Have you found sub-lingual B12 tablets or sprays effective?
It seems to me that the NHS treatment I am getting is aimed at keeping me out of B12 deficiency, not about giving me the optimum level for health. So in the long term it could be a good idea to bump the levels up a bit more. I know a lot of people self-inject but I am looking into alternatives to that
It seems to me that the NHS treatment I am getting is aimed at keeping me out of B12 deficiency, not about giving me the optimum level for health. So in the long term it could be a good idea to bump the levels up a bit more. I know a lot of people self-inject but I am looking into alternatives to that
Permexpi
in
Pernicious Anaemia Society
10 months ago
Vit B12 update
Following on from a previous post my B12 was 190 , so deficient and have had 6 loading dose injections which has definitely helped with fatigue . I am now taking B12 sublingual supplements . I have been taking PPI , Lansoprazole ,since I starting Prednisolone 18 months ago they are known to stop absorption
Following on from a previous post my B12 was 190 , so deficient and have had 6 loading dose injections which has definitely helped with fatigue . I am now taking B12 sublingual supplements . I have been taking PPI , Lansoprazole ,since I starting Prednisolone 18 months ago they are known to stop absorption
5goFlotilla
in
PMRGCAuk
10 months ago
Has anyone had fluid retention in legs and feet when increasing dose?
My last dose increase of Armour, up to 2.5 grains a day, coincided with the start of the heatwave in earlier summer. My feet swelled up, they look like puffa fish on top. All I can comfortably wear is flip-flops! I put it down to the heatwave. Well that's way in the past now and my feet are still
My last dose increase of Armour, up to 2.5 grains a day, coincided with the start of the heatwave in earlier summer. My feet swelled up, they look like puffa fish on top. All I can comfortably wear is flip-flops! I put it down to the heatwave. Well that's way in the past now and my feet are still
FancyPants54
in
Thyroid UK
10 months ago
Are you taking enough B12?
This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OPHWGDIGDLw?si=4PLhG7ny5qWIC9qp ---------------------- https://youtu.be/Z2vNFzMpbIA?si=ifT8qH7ao3uX-rau
This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OPHWGDIGDLw?si=4PLhG7ny5qWIC9qp ---------------------- https://youtu.be/Z2vNFzMpbIA?si=ifT8qH7ao3uX-rau
PDWarrior1900
in
Cure Parkinson's
10 months ago
PAS SEMINAR 14 October 2023
the Pernicious Anaemia Society is running a seminar on Saturday 14th October 2023, you have to be a member to attend but there is time to sign up and register for the event. The seminar runs 10am to 12noon UK time but recordings of the speakers are available after, again for members. The three speakers
the Pernicious Anaemia Society is running a seminar on Saturday 14th October 2023, you have to be a member to attend but there is time to sign up and register for the event. The seminar runs 10am to 12noon UK time but recordings of the speakers are available after, again for members. The three speakers
PAScomms
in
Pernicious Anaemia Society
10 months ago
So tired all the time
Hi everyone I had a hip replacement end of April and a nasty chest infection about 5weeks ago.I had 2 courses of antibiotics and it improved, I had a chest X-ray and a sputum test and they were negative thankgoodness.I still feel so fatigued all of the time. I am self injecting once a week but to be
Hi everyone I had a hip replacement end of April and a nasty chest infection about 5weeks ago.I had 2 courses of antibiotics and it improved, I had a chest X-ray and a sputum test and they were negative thankgoodness.I still feel so fatigued all of the time. I am self injecting once a week but to be
Chocolate41
in
IBS Network
10 months ago
Deficiency vs Broken
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka “looking for their brain” courtesy of Narwhal!). I don’t think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka “looking for their brain” courtesy of Narwhal!). I don’t think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Wwwdot
in
Pernicious Anaemia Society
10 months ago
Thyroid result questions
Hello, I have just had my T4 and TSH blood results back with T4 at 22.7 (range 10.5-21) and TSH 0.25 (range 0.35-5.5). T3 was not tested at this time. Nor Vits D and B12 or Ferritin and Folate. It was an early morning fasting blood test with last dose Thyroxine the previous morning. I am currently
Hello, I have just had my T4 and TSH blood results back with T4 at 22.7 (range 10.5-21) and TSH 0.25 (range 0.35-5.5). T3 was not tested at this time. Nor Vits D and B12 or Ferritin and Folate. It was an early morning fasting blood test with last dose Thyroxine the previous morning. I am currently
ElephantShoes
in
Thyroid UK
2 months ago
vitamins to help thyroid
Hello, has anyone got any tips of vitamin complexes to help under active thyroid? I have recently upped my vit d, my B12 and found a complex that says it helps the body convert t4 to t3. I’ve been taking them all about two weeks and I do think that I’m less exhausted than I was. I’m hopeful that it
Hello, has anyone got any tips of vitamin complexes to help under active thyroid? I have recently upped my vit d, my B12 and found a complex that says it helps the body convert t4 to t3. I’ve been taking them all about two weeks and I do think that I’m less exhausted than I was. I’m hopeful that it
Kimmi01
in
Thyroid UK
2 months ago
Folate and B12
Both my Folate and Active B12 are only just over 40% through range. Can anyone recommend good, and hopefully not too expensive, supplements please.
Both my Folate and Active B12 are only just over 40% through range. Can anyone recommend good, and hopefully not too expensive, supplements please.
Puddleperson
in
Thyroid UK
5 months ago
Collapsed Identities
Pernicious Anaemia/
vitamin
B12
deficiency
can be the basis of psychiatric symptoms and diagnoses and developmental disabilities. I am terribly sorry that my knowledge of the latter is limited.
Pernicious Anaemia/
vitamin
B12
deficiency
can be the basis of psychiatric symptoms and diagnoses and developmental disabilities. I am terribly sorry that my knowledge of the latter is limited.
Narwhal10
in
Pernicious Anaemia Society
1 year ago
Disposal of used syringes from SI (Cardiff)
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldn’t continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldn’t continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Squirrel_enthusiast
in
Pernicious Anaemia Society
10 months ago
skin reaction to B12 injections
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Sparkleros
in
Pernicious Anaemia Society
10 months ago
1
...
64
65
66
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21844 results
Pernicious Anaemia Society
13271 results
Cure Parkinson's
1449 results
View top 10 communities
Sort by
Most Relevant
Newest