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Vitamin B12 deficiency
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Still here
Hi everyone, I haven't been on in a while, there was a big delay in getting my T3, postal service on strike, but thankfully it arrived. I won't received them until Christmas, my friend is coming to me for Christmas and is bringing them down to me when he comes. So I will be starting my T3 then. I know
Hi everyone, I haven't been on in a while, there was a big delay in getting my T3, postal service on strike, but thankfully it arrived. I won't received them until Christmas, my friend is coming to me for Christmas and is bringing them down to me when he comes. So I will be starting my T3 then. I know
Nicola1964
in
Thyroid UK
8 months ago
Going the right way at last - take 2
Hello everyone I have just received my most recent set of results after a dose change about 10 weeks ago. I am now on 50mcg Levothyroxine and 25mcg Liothyronine. I take the T3 when I get out of bed (all in one hit) and the T4 before I get into bed. This is working for me, I feel better than I have
Hello everyone I have just received my most recent set of results after a dose change about 10 weeks ago. I am now on 50mcg Levothyroxine and 25mcg Liothyronine. I take the T3 when I get out of bed (all in one hit) and the T4 before I get into bed. This is working for me, I feel better than I have
KHSC
in
Thyroid UK
8 months ago
My Stuffy Head II
When I first read about people topping off/up in my ignorance believed that clearly they did not understand how B12 injections worked in the body. I came to marvel at the ability to 'just know'. With 2 mg every 4 hours during the day and injecting if I wake up in the night I am now one of the cool
When I first read about people topping off/up in my ignorance believed that clearly they did not understand how B12 injections worked in the body. I came to marvel at the ability to 'just know'. With 2 mg every 4 hours during the day and injecting if I wake up in the night I am now one of the cool
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
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Anyone had an iron infusion
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
Noelnoel
in
CLL Support
1 month ago
Customs Charge on my B12!!
Hi guys I am in shock!! Just reordered my B12 from Apohealth in Germany as I usually do. It is held in Customs until I pay £37.95 in Import VAT and an £8 handling charge! Anyone else experienced this?? Not only will the NHS not help me I am now expected to pay VAT on the LUXURY of self treatment
Hi guys I am in shock!! Just reordered my B12 from Apohealth in Germany as I usually do. It is held in Customs until I pay £37.95 in Import VAT and an £8 handling charge! Anyone else experienced this?? Not only will the NHS not help me I am now expected to pay VAT on the LUXURY of self treatment
Wwwdot
in
Pernicious Anaemia Society
8 months ago
cyano or hydroxo ????
which is better? I have been S/I ing with hydroxy cobalamin for just over a month now, made some great progress, no more night sweats, no more itching, better sleep, better mood, more interest in doing some housework ( just not doing any yet LOL ) but when the first lot ran out, the second batch seemed
which is better? I have been S/I ing with hydroxy cobalamin for just over a month now, made some great progress, no more night sweats, no more itching, better sleep, better mood, more interest in doing some housework ( just not doing any yet LOL ) but when the first lot ran out, the second batch seemed
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
Hashimoto’s
hi all I found my way here from Thyroid UK. I have just been diagnosed with Hashimoto’s. I’m 59 and pretty fit so I have had a low heart rate for a while now but I noticed (through my Apple Watch) that it was dipping lower than normal every now and again. I was lucky to be seen by a fabulous locum when
hi all I found my way here from Thyroid UK. I have just been diagnosed with Hashimoto’s. I’m 59 and pretty fit so I have had a low heart rate for a while now but I noticed (through my Apple Watch) that it was dipping lower than normal every now and again. I was lucky to be seen by a fabulous locum when
DottyF
in
Thyroid UK
8 months ago
Hello folks
I come to your forum via the B12 Deficiency Forum. Where i got tons of sound advice and help. I am not diagnosed with anything Thyroid related - but thats the test track i am on... My story starts about 6/7 years ago when i developed increasing fatigue, leg cramps, dry skin and brittle nails. Most
I come to your forum via the B12 Deficiency Forum. Where i got tons of sound advice and help. I am not diagnosed with anything Thyroid related - but thats the test track i am on... My story starts about 6/7 years ago when i developed increasing fatigue, leg cramps, dry skin and brittle nails. Most
Treesong2023
in
Thyroid UK
8 months ago
Links between vaping and B12 deficiency?
Just wondering if anyone has come across any information about vaping being linked to B12 deficiency? I know that there's an established link between the recreational use of nitrous oxide and severe neurological symptoms leading to a ban last month. https://www.gov.uk/government/publications/nitrous-oxide-ban
Just wondering if anyone has come across any information about vaping being linked to B12 deficiency? I know that there's an established link between the recreational use of nitrous oxide and severe neurological symptoms leading to a ban last month. https://www.gov.uk/government/publications/nitrous-oxide-ban
Realtiger
in
Pernicious Anaemia Society
8 months ago
Naturally high vitamin B12
I have had a few tests over the last few years which include Vitamin B12. I am worried that I may not be transporting it to cells as it is very high fir someone does not take supplements. See photo? Everything I question this the doctor just says we'll that's good isn't it. Is it? From what I read
I have had a few tests over the last few years which include Vitamin B12. I am worried that I may not be transporting it to cells as it is very high fir someone does not take supplements. See photo? Everything I question this the doctor just says we'll that's good isn't it. Is it? From what I read
Vixen54
in
Thyroid UK
8 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
New level of 115 before entitled to B12 inj
My sons B12 reading last year was 163. Last week is 139.Now been told new guidance from NorthTyneside is under 115 before being entitled to injections. I am furious, upset and so concerned for him. How can they move the goal posts like this. 54 years old and dismissed like this. Do they want patients
My sons B12 reading last year was 163. Last week is 139.Now been told new guidance from NorthTyneside is under 115 before being entitled to injections. I am furious, upset and so concerned for him. How can they move the goal posts like this. 54 years old and dismissed like this. Do they want patients
3rdNettydoon
in
Pernicious Anaemia Society
8 months ago
Advice on non-medication treatment of RLS required
I'm afraid I haven't posted for a long time! I am 74 and my symptoms have become more severe, causing real loss of sleep. A neurologist I saw recently wanted to put me on dopamine-agonist patches which I refused, tho' I am following her recommended course of B12 injections. I've had 9 of the 12 jabs
I'm afraid I haven't posted for a long time! I am 74 and my symptoms have become more severe, causing real loss of sleep. A neurologist I saw recently wanted to put me on dopamine-agonist patches which I refused, tho' I am following her recommended course of B12 injections. I've had 9 of the 12 jabs
argyll1
in
Restless Legs Syndrome
8 months ago
Advice about recent NDT thyroid blood tests and high SHBG
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
RatherBeSleeping
in
Thyroid UK
8 months ago
just a quick one at the mo-
I have been treated for many years, and following my early breast cancer in 2021, the subsequent aromatose inhibitor (to reduce the oestrogen levels in my body to help prevent recurrance) has played havoc with my BP, cholesterol and thyroid meds. I saw an Endo, who eventually decided to try adding a
I have been treated for many years, and following my early breast cancer in 2021, the subsequent aromatose inhibitor (to reduce the oestrogen levels in my body to help prevent recurrance) has played havoc with my BP, cholesterol and thyroid meds. I saw an Endo, who eventually decided to try adding a
Hidden
in
Thyroid UK
8 months ago
Aching legs
I've just started my b12 injections had 2 another due today ,yesterday didn't feel so bad today aching upper thighs.I've heard about b12 injections making you feel worse does this include body aches
I've just started my b12 injections had 2 another due today ,yesterday didn't feel so bad today aching upper thighs.I've heard about b12 injections making you feel worse does this include body aches
gpw61
in
Pernicious Anaemia Society
8 months ago
alcohol
does having a drink every night (moderational)deplete your b12 even if injection every 3 months .
does having a drink every night (moderational)deplete your b12 even if injection every 3 months .
Triggert5656
in
Pernicious Anaemia Society
8 months ago
b12 tablets
hi I’ve Pv and recently been given b12 tablets I thought b12 helped make red blood cells confusing or what ??????? I’d rather ask here than doctors 🤫😳
hi I’ve Pv and recently been given b12 tablets I thought b12 helped make red blood cells confusing or what ??????? I’d rather ask here than doctors 🤫😳
Badger1
in
MPN Voice
8 months ago
My B12 Stuffy Head
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
A Missed Goal
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
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