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Vitamin B12 deficiency
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Scartgabe13
My wife wss diagnosed with PA 3 years ago, after our daughter suggested she should have a blood test to find out if her b12 was low,it was36 ,our daughter who has had PA for 10 years, was right .my wife had loading doses then started to have one every3 months but recently noted she has,nt had one since
My wife wss diagnosed with PA 3 years ago, after our daughter suggested she should have a blood test to find out if her b12 was low,it was36 ,our daughter who has had PA for 10 years, was right .my wife had loading doses then started to have one every3 months but recently noted she has,nt had one since
scartgabe12
in
Pernicious Anaemia Society
6 months ago
recovery
Hello, does how quickly you feel better after initial b12 injection(s) and iron infusion depend on your deficiencies severity?
Hello, does how quickly you feel better after initial b12 injection(s) and iron infusion depend on your deficiencies severity?
TheLabSquad
in
Pernicious Anaemia Society
6 months ago
Vit B12 deficient again after being taken off injections two years ago.
Hello Everyone, I haven’t been here for years and I need some advice please. My hubby started having strange symptoms over ten years ago and it was discovered that he had low vitamin b12, despite eating meat. His GP said he likely had Pernicious Anaemia and gave him a loading dose of injections and
Hello Everyone, I haven’t been here for years and I need some advice please. My hubby started having strange symptoms over ten years ago and it was discovered that he had low vitamin b12, despite eating meat. His GP said he likely had Pernicious Anaemia and gave him a loading dose of injections and
CarolineAnne
in
Pernicious Anaemia Society
6 months ago
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Is iron spray any good for night-time dosing?
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
SunnyJim100
in
Restless Legs Syndrome
3 days ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
7 days ago
I found this helpful
I evaluated the information on injecting available regarding injecting insulin with regards to risk of self preloading syringes and multi use vials. I also evaluated information available for clinical environment injections. I found this information and my evaluation more credible and helpful than
I evaluated the information on injecting available regarding injecting insulin with regards to risk of self preloading syringes and multi use vials. I also evaluated information available for clinical environment injections. I found this information and my evaluation more credible and helpful than
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
constipation
I have been diagnosed wit PA.I have had 5 injections of B12 and my levels have returned to normal range .However I am suffering from constipation. Has any one else had this problem ? .What should I do? Thank you .
I have been diagnosed wit PA.I have had 5 injections of B12 and my levels have returned to normal range .However I am suffering from constipation. Has any one else had this problem ? .What should I do? Thank you .
36Hele
in
Pernicious Anaemia Society
6 months ago
High b12
Hi, my husband has been diagnosed with high b12 but is feeling tired all the time, breathless and lethargic. Wonder if anyone has any advice. Thanks
Hi, my husband has been diagnosed with high b12 but is feeling tired all the time, breathless and lethargic. Wonder if anyone has any advice. Thanks
Phyloreardon
in
Pernicious Anaemia Society
6 months ago
ferritin still low
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
Pennypingu
in
Thyroid UK
20 days ago
My Vitamin B12 test after injection
Hello dear community membersI tested my vitb12 level as 187 pg/ml. (182-955) I started taking loading doses of 6 *1mg every 2 weeks. After loading doses i tested again my B12 again after 1 month the loading doses. It came back as 550pg.i injected one shot per month for about 4 month after loading doses
Hello dear community membersI tested my vitb12 level as 187 pg/ml. (182-955) I started taking loading doses of 6 *1mg every 2 weeks. After loading doses i tested again my B12 again after 1 month the loading doses. It came back as 550pg.i injected one shot per month for about 4 month after loading doses
Emiroskui
in
Pernicious Anaemia Society
6 months ago
Ordering b12 in the US
hi friends, I am in the US, and understand that many of the folks in the US order their b12 online from Canada. Can some recommend a reputable able source?? I am nervous about online ordering, given I need to inject this in my body. I use cyano. I current get weekly injections from a medical-spa
hi friends, I am in the US, and understand that many of the folks in the US order their b12 online from Canada. Can some recommend a reputable able source?? I am nervous about online ordering, given I need to inject this in my body. I use cyano. I current get weekly injections from a medical-spa
MuppDog
in
Pernicious Anaemia Society
6 months ago
good news, I hope this helps others
went to GP yesterday, suffering badly with migraines and peripheral neuropathy plus extreme fatigue and basically feeling the same as I felt before I started on injections. Last year I told him I was buying the vials from Germany and SI every month. Said I was fine with that but worried in case I can
went to GP yesterday, suffering badly with migraines and peripheral neuropathy plus extreme fatigue and basically feeling the same as I felt before I started on injections. Last year I told him I was buying the vials from Germany and SI every month. Said I was fine with that but worried in case I can
Countrylou
in
Pernicious Anaemia Society
6 months ago
Customs duty on methylcobalamin
Hi. Can anyone tell me if there is now a duty to pay on b12/methyl etc.,? I've just received an order from Germany. I was expecting the 20% vat but not a large duty fee at Customs. Not really sure exactly what I'm looking for but I had a look on the Customs website and found a code for vitamin
Hi. Can anyone tell me if there is now a duty to pay on b12/methyl etc.,? I've just received an order from Germany. I was expecting the 20% vat but not a large duty fee at Customs. Not really sure exactly what I'm looking for but I had a look on the Customs website and found a code for vitamin
Missd66
in
Pernicious Anaemia Society
6 months ago
symptoms of B12 deficency
I continue to suffer from tingling feet and feeling tired also sweating for no good reason. Has anyone got suggestions of how to cope with this. I get injection for condition every 12 weeks.
I continue to suffer from tingling feet and feeling tired also sweating for no good reason. Has anyone got suggestions of how to cope with this. I get injection for condition every 12 weeks.
Infob12quest
in
PMRGCAuk
6 months ago
Anxiety relief
Other than getting the right amount of B12, has anyone found something that helps with the anxiety aspects of deficiency and PA? Medication or therapy. On numerous occasions my GP and neurologists have suggested antidepressants but I’m very loathe to do down that route. Even the medication being suggested
Other than getting the right amount of B12, has anyone found something that helps with the anxiety aspects of deficiency and PA? Medication or therapy. On numerous occasions my GP and neurologists have suggested antidepressants but I’m very loathe to do down that route. Even the medication being suggested
Pa234aw
in
Pernicious Anaemia Society
6 months ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
1 month ago
Using up my B1 Thiamine.
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
1 month ago
New response on BMJ B12 article
Hi All, There was a new response on recent BMJ article B12 Deficiency by B. Wolffenbuttel by a haematologist. Just wondered what people thought. Link to article https://www.bmj.com/content/383/bmj-2022-071725 Link to responses https://www.bmj.com/content/383/bmj-2022-071725/rapid-responses
Hi All, There was a new response on recent BMJ article B12 Deficiency by B. Wolffenbuttel by a haematologist. Just wondered what people thought. Link to article https://www.bmj.com/content/383/bmj-2022-071725 Link to responses https://www.bmj.com/content/383/bmj-2022-071725/rapid-responses
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
1 month ago
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