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Vitamin B12 deficiency
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Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
6 months ago
Increased symptoms after injections.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
Suesue246
in
Pernicious Anaemia Society
6 months ago
Advice before I see the endo
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
Fliplaar
in
Thyroid UK
6 months ago
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The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
6 months ago
B12 Injection Side Effects
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hidden
in
Pernicious Anaemia Society
6 months ago
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections?
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
6 months ago
BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Noelnoel
in
Pernicious Anaemia Society
6 months ago
Draft NICE B12?
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
RoseFlowerDew
in
Pernicious Anaemia Society
6 months ago
Winter Down Turn
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
4 months ago
Long Covid, B12 and Iron Deficiency
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
Wwwdot
in
Pernicious Anaemia Society
6 months ago
B12 ??
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
LorraineQ
in
Pernicious Anaemia Society
6 months ago
low levels of T4 & T3 on 3 grains of NDT
Dear all, Again I need some help with my blood tests interpretation and further steps. I’m currently on 3 grains of thyroid-s and my results are as shown on the table below. Both FT3 & FT4 levels are not satisfactory. Could this be because of the low levels of ferritin, D3 and B12? Or do I need to
Dear all, Again I need some help with my blood tests interpretation and further steps. I’m currently on 3 grains of thyroid-s and my results are as shown on the table below. Both FT3 & FT4 levels are not satisfactory. Could this be because of the low levels of ferritin, D3 and B12? Or do I need to
selenipap
in
Thyroid UK
6 months ago
Help Ordering B12 from Germany, pls
I need to order B12 injection so gone to VersandApo site, gone to checkout but where it says 'Address should be in Germany' what do I need to do for delivery to UK, please? I've had B12 ampoules from here twice before but not experienced this so I'm at loss and need some help please ... Many thanks
I need to order B12 injection so gone to VersandApo site, gone to checkout but where it says 'Address should be in Germany' what do I need to do for delivery to UK, please? I've had B12 ampoules from here twice before but not experienced this so I'm at loss and need some help please ... Many thanks
JMN2017
in
Pernicious Anaemia Society
6 months ago
tingling in hands
I started taking homocysteine factors and b12 as per dr mishleys recommendation (I had low b12 on labs) started a week ago now feeling tingling in hands and fingers and a little in my feet. Should I be concerned?
I started taking homocysteine factors and b12 as per dr mishleys recommendation (I had low b12 on labs) started a week ago now feeling tingling in hands and fingers and a little in my feet. Should I be concerned?
saraoutwest
in
Cure Parkinson's
6 months ago
B12 jabs
Hi I've had in December top up jabs for b12 because it was 184 tested in late February and the level is 2000 anyone else had this or is it normal
Hi I've had in December top up jabs for b12 because it was 184 tested in late February and the level is 2000 anyone else had this or is it normal
gpw61
in
Pernicious Anaemia Society
6 months ago
where to buy syringes
I’m using a 25 gauge 1 inch needle for my b12 injections. Where do you all buy your syringes?
I’m using a 25 gauge 1 inch needle for my b12 injections. Where do you all buy your syringes?
Dawn1015
in
Pernicious Anaemia Society
6 months ago
Raised MMA result
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Pomart
in
Pernicious Anaemia Society
6 months ago
lower back pain
hi all, I have experienced lower back pain / sciatica for the last 12 months. I was diagnosed with PA 14 years ago after investigation into my dropping Ferritin levels. I have B12 injections every 12 weeks and have been fine in the interim.. However I have not had any blood tests until last week and
hi all, I have experienced lower back pain / sciatica for the last 12 months. I was diagnosed with PA 14 years ago after investigation into my dropping Ferritin levels. I have B12 injections every 12 weeks and have been fine in the interim.. However I have not had any blood tests until last week and
Badmintoner
in
Pernicious Anaemia Society
6 months ago
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