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Just a moan - appointment cancelled
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
So just need a quick rant to people who understand so I can move on and get on with my day. Booked my 8 weekly jab no options on the day only 2 days before or a week late, was told they'd have to message the GP for permission to book early so I explained that by a week late I will be feeling very ill
Clare184
in
Pernicious Anaemia Society
30 days ago
symptoms flare-up
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
MuppDog
in
Pernicious Anaemia Society
30 days ago
Would like some suggestions for a B complex product with low dose B12 and folate please
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Homocysteine Nutrients
https://www.seekinghealth.com/products/homocysteine-nutrients I really like the sound of this product but I’m concerned about the B vitamins that are missing, namely B3 and B1. It also doesn’t have inositol, choline or biotin, although I don’t know how important they
Noelnoel
in
Thyroid UK
1 month ago
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CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
4 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
4 months ago
Stage 4 OC with liver metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
SHARE Ovarian Cancer Support
2 months ago
Stage 4 OC with Liver Metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
My Ovacome
2 months ago
Stage 4 OC with Liver Metastasis
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
Any guidance or anyone with Cancer metastasis to Liver? My mother has stage 4 Ovarian Cancer which even after chemo has spread to Liver. Her bilrubin levels are not coming under control infact are increasing and situation is not improving. She’s extremely weak and low on energy. Doctors saying nothing
akhilsalwan
in
OvaCare
2 months ago
Change of rheumatology consultant! 😬
Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results worthy of meds or treatment. I've got a lot of symptoms that he doesn't seem to think are related to the disease. Dyspepsia, muscle aches, vit d
Hi guys, so I was diagnosed with Scleroderma two years ago and have regular yearly bloods. The consultant deems them stable and doesn't consider the results worthy of meds or treatment. I've got a lot of symptoms that he doesn't seem to think are related to the disease. Dyspepsia, muscle aches, vit d
Natalie1982
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
I Don't Want to Inject
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
Someone was exploring sublingual and oral B12 supplementation and wrote. “I don’t want to inject.” I thought me either. This led to me understanding how much I object to injecting. I object to not being able to just head out and only worry about clothes and food. I am traveling a couple of days
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
A One Time Experience
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
Trial at the time; 1.5 mg Methylcobalamin, 1.5 mg Adenosylcobalamin, 1 mg Hydroxocobalamin. 5 times a day including setting an alarm to inject at night. 50 mg P-5-P B5 twice a day to prevent extreme pain of peripheral neuropathy due to B6 deficiency. I had been working with the concept that if I pushed
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Advice on taking T3 for first time also best pharmacy to use Private prescription please
Hello everyone, I have finally obtained a prescription for T3 from a private endo. I’m excited but also apprehensive and want to get off to a good start, so would like some advice about the doses of T3 and T4 to take . Also information about the cheapest way of obtaining the T3 from my prescription.
Hello everyone, I have finally obtained a prescription for T3 from a private endo. I’m excited but also apprehensive and want to get off to a good start, so would like some advice about the doses of T3 and T4 to take . Also information about the cheapest way of obtaining the T3 from my prescription.
nannieJen
in
Thyroid UK
1 month ago
Health Anxiety or MS
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Hi All, Since 2013... my life has been somewhat a constant fear of one disease or the other. Thank to Doc google. I havent had a night in peace for the last atleast 10 years. It started in 2013 with lightheadedness which made me go to an ent. He said symptoms are of bppv and prescribed some medicines
Muef
in
Anxiety and Depression Support
1 month ago
B1 Therapy INSTAGRAM live
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
https://youtube.com/shorts/V4a4YSw8UCo?si=GkZYfDTMu1gWfMcO On the 11th of April, you will get to know 4 people with PD who got together because of the B1 therapy. Everything started in 2011, when the Italian neurologist Dr. Antonio Costantini began treating his Parkinson’s patients with high doses
Markbit
in
Cure Parkinson's
1 month ago
Newbie in need 😢🙏
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Hello, this is my 1st post but have been reading your posts for a few months. I have not as yet had my fibro diagnosis- though gp says it probably is. Have had bloods done and all normal except for extremely low folate levels. I have pain in most of my body and extremely fatigued regularly, but what
Molliesmamma
in
Fibromyalgia Action UK
1 month ago
Advanced Thyroid Function Blood Test
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
Berryquilter
in
Thyroid UK
1 month ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
1 month ago
Latest blood results
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Advice appreciated on latest results. Hi im on 100mg levothyroxine per day. Range T.S.H 1.21. 0.27-4.2 T3 2.5. 3.1-6.8 T4. 22.2. 12-22 THYROGLOBIN. 15.6. 0-115 THYROID ANTIBODIES <9 0-34 CRP
Ganggywaller
in
Thyroid UK
1 month ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
1 month ago
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