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Back to square one
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
BethH77
in
Thyroid UK
2 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
2 months ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
3 months ago
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Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
2 months ago
infusion Side Effects
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
3putt
in
Advanced Prostate Cancer
2 months ago
B12 Injection dose
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Hi All, I have been on B12 3 monthly injections for years recently they don't seem to lasting and getting side effects Spoke to the practice pharmacy nurse who said she would ask the Doctor for me to have a blood test before my next injection? Two months ago heard nothing. My question/help is
Spick
in
Pernicious Anaemia Society
2 months ago
Methylfolate dose for B12 injections
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
MindfulSquirrel
in
Pernicious Anaemia Society
2 months ago
high folate
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
does anyone know what causes high folate, im usually very low as in 3.5 ( normal is 2-20) im now 24….. ferritin also keeps dropping, it’s gone from 110 to 90 then a month ago it was 49 and now 33 I kvow I should not ask and I kvow no one can advise, but I can’t see a dr until next week and nothing on
Sophia1968
in
British Liver Trust
2 months ago
Doing well on Taxol. TM down by half!
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
I'm a long timer (20 years on 3/1/24, with bone mets since first diagnosis) and have done extremely well. Lobular bc, E + P + her2neu - at diagnosis. In 2023, it became triple negative and I was on Xeloda for a few months. It stopped working and I've been on Taxol for about 5 or 6 infusions. CA 27
PJBinMI
in
SHARE Metastatic Breast Cancer
2 months ago
New to the form
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
2 months ago
Heart Arrhythmia
Hello All. I've posted in the past and remember that some have said that I could increase my dose of T3 to perhaps alleviate the arrhythmia I have been experiencing for many years. I take 75 MCG LEVO (for 35+ years with varying dosages) and 5 MCG Lio each morning. Any comments at this time would be greatly
Hello All. I've posted in the past and remember that some have said that I could increase my dose of T3 to perhaps alleviate the arrhythmia I have been experiencing for many years. I take 75 MCG LEVO (for 35+ years with varying dosages) and 5 MCG Lio each morning. Any comments at this time would be greatly
saritadelmar
in
Thyroid UK
2 months ago
Vitamin C + Omega 3 Fish Oil Combo
Though not directly associated with PD, PWPs take a lot of drugs and supplements, which may affect the Liver. From that perspective, posting a rat study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9045995/ Combination Treatment of Omega-3 Fatty Acids and Vitamin C Exhibited Promising Therapeutic
Though not directly associated with PD, PWPs take a lot of drugs and supplements, which may affect the Liver. From that perspective, posting a rat study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9045995/ Combination Treatment of Omega-3 Fatty Acids and Vitamin C Exhibited Promising Therapeutic
JayPwP
in
Cure Parkinson's
2 months ago
Crash after jab from different source?
I'm wondering if anyone has had issues with getting a jab from a different source. My husband normally does my jab (Pascoe 1500 hydroxo, was every 10 days but have recently gone to weekly). He was out of town so I had it done at my GP's office -- the nurse was a real snot about it because my levels (
I'm wondering if anyone has had issues with getting a jab from a different source. My husband normally does my jab (Pascoe 1500 hydroxo, was every 10 days but have recently gone to weekly). He was out of town so I had it done at my GP's office -- the nurse was a real snot about it because my levels (
cdragin
in
Pernicious Anaemia Society
2 months ago
sons bloods
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
Hectorsmum2
in
Pernicious Anaemia Society
2 months ago
Preventative Medicine
UK paid £160 per patient for GP care 2022 That is no different really to many other countries So where is the problem Aside form al that Lets say a patient comes in with 40 to 50% of B12D symptoms. . .. . Dont do a blood test . . . . . Save at least £30 with that but give them a B12 jab
UK paid £160 per patient for GP care 2022 That is no different really to many other countries So where is the problem Aside form al that Lets say a patient comes in with 40 to 50% of B12D symptoms. . .. . Dont do a blood test . . . . . Save at least £30 with that but give them a B12 jab
OldmanD
in
Pernicious Anaemia Society
2 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
2 months ago
iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
2 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
2 months ago
Still having symptoms of hypothyroidism despite medication - any advice?
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
melissa-b
in
Thyroid UK
2 months ago
why i have so much anxiety in my stomach thats causing me nausea and missing heart pulse
i been to cardiologist today i have skiped heart beats 5 days now also tightness on chest brain fog am angry and depresed cant even talk to any doctor how i feel all say is not from levothyroxine tat is all in my head is no side effects... but all this heart missing beats started
i been to cardiologist today i have skiped heart beats 5 days now also tightness on chest brain fog am angry and depresed cant even talk to any doctor how i feel all say is not from levothyroxine tat is all in my head is no side effects... but all this heart missing beats started
morcan54
in
Thyroid UK
2 months ago
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