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My meds make me feel worse
I dont know if this happens to anyone else but my meds actually make me feel tierd and have dry eyes amongst many other things. Before meds i feel great just a bit of aches and stiffness. I do tell my consultant but they say itl get better 🤷🏽‍♀️
I dont know if this happens to anyone else but my meds actually make me feel tierd and have dry eyes amongst many other things. Before meds i feel great just a bit of aches and stiffness. I do tell my consultant but they say itl get better 🤷🏽‍♀️
Hidden
in
LUPUS UK
3 years ago
Progynova side effects?
Hey Any other contact lense wearers have issues with their eyes whilst taking Progynova?? I am on x4 tablets a day and have had sensitivity to sunlight, mistiness, sore and watery eyes.. was trying to work out why I was suddenly having issues when I have recently moved to better lenses and thought I
Hey Any other contact lense wearers have issues with their eyes whilst taking Progynova?? I am on x4 tablets a day and have had sensitivity to sunlight, mistiness, sore and watery eyes.. was trying to work out why I was suddenly having issues when I have recently moved to better lenses and thought I
Trying6years
in
Fertility Network UK
3 years ago
10,000 Voices Raffle winners confirmed
Thank you to everyone who has taken part in our 10,000 Voices raffle. With help from the receptionists at Margaret Powell House in Milton Keynes, the raffle draw took place on Monday 19 April. We are pleased to confirm the winning tickets as 1st prize ticket number 009668 - Mrs Zita Foster 2nd prize
Thank you to everyone who has taken part in our 10,000 Voices raffle. With help from the receptionists at Margaret Powell House in Milton Keynes, the raffle draw took place on Monday 19 April. We are pleased to confirm the winning tickets as 1st prize ticket number 009668 - Mrs Zita Foster 2nd prize
HelenPSPA
in
PSP Association
3 years ago
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Is this Lupus or an Epidermolysis bullosa acquisita (EBA) issue?
Not sure if this is from Lupus or Epidermolysis bullosa acquisita (EBA) either way it’s an autoimmune disease. This place came up next to a scar from a blister from a year or two ago. It is just below waist, just above right leg. This adds to other blisters on feet and hands that is going on.
Not sure if this is from Lupus or Epidermolysis bullosa acquisita (EBA) either way it’s an autoimmune disease. This place came up next to a scar from a blister from a year or two ago. It is just below waist, just above right leg. This adds to other blisters on feet and hands that is going on.
Tiras
in
LUPUS UK
3 years ago
Creams to prevent insect bites/stings
Hello, I have been on this site for a year or so, but this is my first post. I get really bad reactions to bites and stings. I have lupus and RA. I wondered if any of you have any recommendations of creams or sprays that I can use to prevent this. Also, something that would help limit the damage after
Hello, I have been on this site for a year or so, but this is my first post. I get really bad reactions to bites and stings. I have lupus and RA. I wondered if any of you have any recommendations of creams or sprays that I can use to prevent this. Also, something that would help limit the damage after
heatherose
in
LUPUS UK
3 years ago
pink discharge after period
I Had my laparoscopy to diagnose endometriosis two months ago now. They lasered it all off as it was growing everywhere other than my ovaries and tubes. I also had a small cervical ectropion which they lasered off as well. my first period after my lap was surprisingly okay, a lot less painful than usual
I Had my laparoscopy to diagnose endometriosis two months ago now. They lasered it all off as it was growing everywhere other than my ovaries and tubes. I also had a small cervical ectropion which they lasered off as well. my first period after my lap was surprisingly okay, a lot less painful than usual
gbbbb
in
Endometriosis UK
3 years ago
SLE - Astra Zeneca - Blood shot eyes
Hello, I'm wondering if anyone else has experienced blood shot eyes after having the Astra Zeneca vaccination? It has happened to me twice, after the first shot in April both of my eyes were badly bloodshot and sore for about 2 weeks. I had my second shot yesterday and woke up this morning with one
Hello, I'm wondering if anyone else has experienced blood shot eyes after having the Astra Zeneca vaccination? It has happened to me twice, after the first shot in April both of my eyes were badly bloodshot and sore for about 2 weeks. I had my second shot yesterday and woke up this morning with one
HRHDeeDee
in
LUPUS UK
3 years ago
Day 7 injections and update
Let's start with the positives, done my daily injections again this morning, which are meriofert and fyremadel. Only 3 more days to go on this and I'm booked in for scan day tomorrow so fingers crossed I get good news everything inside is going as should be. Symptoms wise - so yesterday was harder than
Let's start with the positives, done my daily injections again this morning, which are meriofert and fyremadel. Only 3 more days to go on this and I'm booked in for scan day tomorrow so fingers crossed I get good news everything inside is going as should be. Symptoms wise - so yesterday was harder than
Emmanev1
in
Fertility Network UK
3 years ago
Prednisone withdrawal, Pepcid withdrawal?
I am sick as a dog. Weak as a kitten, can barely function. nausea, loss of appetite. Weight loss. Muscles feel like they are being pulled off the bone. I have PMr/GCA, Pmr 20 years, GCA 10. I am on 5th infusion of Actemra, Prednisone down to 6mg. First time down to 6mg. in 3 years. I have
I am sick as a dog. Weak as a kitten, can barely function. nausea, loss of appetite. Weight loss. Muscles feel like they are being pulled off the bone. I have PMr/GCA, Pmr 20 years, GCA 10. I am on 5th infusion of Actemra, Prednisone down to 6mg. First time down to 6mg. in 3 years. I have
phebamom
in
PMRGCAuk
3 years ago
How long after starting Buserelin injections, did YOU bleed?
I am now on day 11 of injections and was told to expect a period between 7-10 days after. My cycle is quite long usually anyway, and never regular enough to track so I suppose this is a factor but the cramps I am getting are absolutely insane, which I never usually get monthly. I'm just getting worried
I am now on day 11 of injections and was told to expect a period between 7-10 days after. My cycle is quite long usually anyway, and never regular enough to track so I suppose this is a factor but the cramps I am getting are absolutely insane, which I never usually get monthly. I'm just getting worried
MomaJoni
in
Fertility Network UK
3 years ago
Lupus & Epidermolysis bullosa acquisita (EBA)
This is the blisters on my toe, still can’t wear shoes, I have been barefoot 100% of the time for over 4 years, due to skin issues!
This is the blisters on my toe, still can’t wear shoes, I have been barefoot 100% of the time for over 4 years, due to skin issues!
Tiras
in
LUPUS UK
3 years ago
Stitches out - relief
I just wanted to share this. I had a right eye trabeculectomy in 2018 due to eye pressure peaking at 50+. It did a great job of getting my eye pressure down to low teens but since then I've had constant dry eye issues despite a rigorous cleaning and maintenance schedule, and every type of lubricant known
I just wanted to share this. I had a right eye trabeculectomy in 2018 due to eye pressure peaking at 50+. It did a great job of getting my eye pressure down to low teens but since then I've had constant dry eye issues despite a rigorous cleaning and maintenance schedule, and every type of lubricant known
Hidden
in
Glaucoma UK
3 years ago
Eye Drops With Preservatives Avoid & Eye Drops Information
PreserÂvÂaÂtives are increasÂingÂly recogÂnised as havÂing a negÂaÂtive impact on ocuÂlar strucÂtures even in conÂcenÂtraÂtions as low as 0.005%Âą. Patients with Dry Eye DisÂease (DED), parÂticÂuÂlarÂly those who require freÂquent use of lubriÂcants or othÂer topÂiÂcal therÂaÂpies, should avoid ocuÂlar
PreserÂvÂaÂtives are increasÂingÂly recogÂnised as havÂing a negÂaÂtive impact on ocuÂlar strucÂtures even in conÂcenÂtraÂtions as low as 0.005%Âą. Patients with Dry Eye DisÂease (DED), parÂticÂuÂlarÂly those who require freÂquent use of lubriÂcants or othÂer topÂiÂcal therÂaÂpies, should avoid ocuÂlar
valfrance
in
Glaucoma UK
3 years ago
Eyedrops & breastfeeding
Hello! I have a 3 week old baby and my consultant told me to completely come off my eyedrops so I can breastfeed, they now feel like I need to go on them again with funny pulling sensation and headaches. Has anyone every breastfed on medication? I'm taking timoptol 0.5% and brinzolomide. Thanks in advance
Hello! I have a 3 week old baby and my consultant told me to completely come off my eyedrops so I can breastfeed, they now feel like I need to go on them again with funny pulling sensation and headaches. Has anyone every breastfed on medication? I'm taking timoptol 0.5% and brinzolomide. Thanks in advance
Simmo101
in
Glaucoma UK
3 years ago
Working Out & Make Up During Eye Injection Treatment
Hi everyone, Hope you are all well. Two weeks ago I was diagnosed with myopic CNV in my left eye, I went through my first injection last week - and then had a few trips back to the hospital for some minor complications (nodular episcleritis, and then very high eye pressure due to the steroid drops
Hi everyone, Hope you are all well. Two weeks ago I was diagnosed with myopic CNV in my left eye, I went through my first injection last week - and then had a few trips back to the hospital for some minor complications (nodular episcleritis, and then very high eye pressure due to the steroid drops
Miss_Luce
in
Macular Society
3 years ago
Seeing double?uble?
In ICU and for a while after I had double vision. It faded and is OK now. Is that a common side effect of sedation? If not, any suggestions what might have caused it? I didn’t get a chance to talk to a doctor about it because it was so hard to speak that it was never a top priority, so probably no-one
In ICU and for a while after I had double vision. It faded and is OK now. Is that a common side effect of sedation? If not, any suggestions what might have caused it? I didn’t get a chance to talk to a doctor about it because it was so hard to speak that it was never a top priority, so probably no-one
Kit10
in
ICUsteps
3 years ago
Feeling deflated
I posted on here a week ago about my ankles ...there still not much better so i still haven't done my final run to complete c25k. I have stopped walking the dogs too, my husband is doing it as every time i go out my ankles are being irritated and i end up hobbling about! Ive iced them, bathed them etc
I posted on here a week ago about my ankles ...there still not much better so i still haven't done my final run to complete c25k. I have stopped walking the dogs too, my husband is doing it as every time i go out my ankles are being irritated and i end up hobbling about! Ive iced them, bathed them etc
Bakingcupcake
in
Couch to 5K
3 years ago
Anyone had SLK (superior limbic keratoconjunctivitis)?
And if so how was it treated and how long to get better? I’ve been diagnosed with RA for 2 years nowbut this is my first post here. Just had 6th episode of iritis which was immediately followed by eye pain from SLK. Tired of my eyes hurting and putting in eye drops every 30 minutes Thanks (And thanks
And if so how was it treated and how long to get better? I’ve been diagnosed with RA for 2 years nowbut this is my first post here. Just had 6th episode of iritis which was immediately followed by eye pain from SLK. Tired of my eyes hurting and putting in eye drops every 30 minutes Thanks (And thanks
Hidden
in
NRAS
3 years ago
reports of other autoimmune disorders following GCA?
Sorry this may be a bit lengthy.... In fall of 2018 I was dx with severe dry eye, followed a few months later with severe dry mouth. I was 67 at the time and had never had any illness of any sort in my life. From symptoms, drs thought Sjogrens, a autoimmune disease. While having a lip biopsy for
Sorry this may be a bit lengthy.... In fall of 2018 I was dx with severe dry eye, followed a few months later with severe dry mouth. I was 67 at the time and had never had any illness of any sort in my life. From symptoms, drs thought Sjogrens, a autoimmune disease. While having a lip biopsy for
pugrescue
in
PMRGCAuk
3 years ago
The Well Red TheraPad - my initial experience
As a time-saving measure, I decided to do my TheraPad sessions while sitting at my laptop. However, I found it awkward to put on the elastic belt, and to line it up correctly, each session. I greatly reduced this problem by sewing the elastic belt to the TheraPad, taking care to only sew along the
As a time-saving measure, I decided to do my TheraPad sessions while sitting at my laptop. However, I found it awkward to put on the elastic belt, and to line it up correctly, each session. I greatly reduced this problem by sewing the elastic belt to the TheraPad, taking care to only sew along the
jeffreyn
in
Cure Parkinson's
3 years ago
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