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Shingles after GCA
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
pugrescue
in
PMRGCAuk
2 years ago
Off meds because of Shingles, but maybe answers to other concerns…..
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
Hollyhock123
in
NRAS
2 years ago
Shingles vaccine
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
61Annie
in
LUPUS UK
2 years ago
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blood sugar levels
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
I read that levodopa carbadopa increases your blood level of glucose does anyone take any non-dopamine therapy that works when I take levadopa I can’t stand up. And all of my te tendons, get weak and burn. I also have Lyme disease I’ll read that to her and dopamine enhance Lyme disease.
Marcia123
in
Cure Parkinson's
2 years ago
boils and lupus
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
M0wnt
in
LUPUS UK
2 years ago
Cellulitis in foot and hands, leading to dramatic skin changes all over my body
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
walk
in
LSN
2 years ago
Ringworm skin problems
I have been suffering from ringworm for about a year. They are mostly near the side of the cheek, near the beard and near the ear. I have used many medicines and creams, but when I stop the medicine, it comes out again. How to stop at once?
I have been suffering from ringworm for about a year. They are mostly near the side of the cheek, near the beard and near the ear. I have used many medicines and creams, but when I stop the medicine, it comes out again. How to stop at once?
SunnyM7
in
Aspergillosis and Rare Fungal Infection Support
2 years ago
UKHSA update on scarlet fever and invasive Group A streptococcal infection
https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-group-a-strep Extract: "[i]Scarlet fever is caused by bacteria called group A streptococci. These bacteria also cause other respiratory and skin infections such as strep throat and impetigo. [/i][i] [/i] [i]In very rare occasions
https://www.gov.uk/government/news/ukhsa-update-on-scarlet-fever-and-invasive-group-a-strep Extract: "[i]Scarlet fever is caused by bacteria called group A streptococci. These bacteria also cause other respiratory and skin infections such as strep throat and impetigo. [/i][i] [/i] [i]In very rare occasions
bennevisplace
in
CLL Support
2 years ago
cellulitis
I have cellulitis in my right arm, post operative lymphoedema ( 9 years ago) first time. Swelling, heaviness and pain don’t seem to be getting any better after a week of antibiotic. Wondered if there is anything else I can do to get rid of it. Awaiting an appointment with the clinic but no idea when
I have cellulitis in my right arm, post operative lymphoedema ( 9 years ago) first time. Swelling, heaviness and pain don’t seem to be getting any better after a week of antibiotic. Wondered if there is anything else I can do to get rid of it. Awaiting an appointment with the clinic but no idea when
guys-dolls
in
LSN
2 years ago
Shingles vaccine
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Garstongal
in
MPN Voice
2 years ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
I may have Lyme but I ain't no Lemon!
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
hib61
in
PMRGCAuk
2 years ago
Lumbar injection after shingles CLL
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
TOMMOHOODIE
in
CLL Support
2 years ago
Is it possible to have a flare up of PMR without a change in predisolone dosage?
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
I have had PMR for over 2 years & I'm currently on 12mg of Pred. I have seen a Rheumatologist & started Methotrexate on 15th September10mg once a week but I have not started reducing the Pred yet. For the last 4-5 days I have been feeling cold, tired & aching all over & feel like I've got the flu.
Springer2210
in
PMRGCAuk
2 years ago
How did we arrive at Disease?
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
I’ve often wondered how I ended up with Parkinson’s. Well the advent of Cov-vid may have inadvertently shed a light on this question. I began reading anecdotal reports, and articles saying that some people getting the cov-vid shot were experiencing a metallic taste in their mouth immediately following
Cons10s
in
Cure Parkinson's
2 years ago
shingles question
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Hi, just wondered how dangerous it would be to if I were to come into contact with someone with shingles? My disabled daughter who lives in supported living has shingles and I’m due to see her soon. I’m now on 6mg prednisone- am I less compromised as it’s a lower dose? Thanks
Abcd123455
in
PMRGCAuk
2 years ago
Tetanus shot?? Any interactions with Imbruvica?
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
DawnRedwood
in
CLL Support
2 years ago
Have a good Laugh
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Harrywogan
in
PMRGCAuk
2 years ago
Psoriasis In nails
Has anybody experienced psoriasis under/In the nails ? I have it and my toe is so sore at the moment - can’t wear shoes only flat open sandals.I have it In my fingers too - the nails have become loose from the base of the finger. Sometimes by mistake the nail flicks back. I no longer can have long nails
Has anybody experienced psoriasis under/In the nails ? I have it and my toe is so sore at the moment - can’t wear shoes only flat open sandals.I have it In my fingers too - the nails have become loose from the base of the finger. Sometimes by mistake the nail flicks back. I no longer can have long nails
Junny123
in
Pain Concern
2 years ago
Lyme disease and Thyroid issues
Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme disease I have bn treated with the Docycycline for three weeks but now after finishing them I have real problems with my foot. I had quite a lot of joint pain during the treatment but now I have what I am told
Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme disease I have bn treated with the Docycycline for three weeks but now after finishing them I have real problems with my foot. I had quite a lot of joint pain during the treatment but now I have what I am told
Hidden
in
Thyroid UK
2 years ago
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