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What a long three months !
Well since my last visit to the consultant in March where he told me off my bloods I had PBC, But was also haing biopsy to confirm and stage. i have had my biopsy in April after battling for a date. 8 weeks after the biopsy I finally got to see consultant again for results! biopsy confirmed early stages
Well since my last visit to the consultant in March where he told me off my bloods I had PBC, But was also haing biopsy to confirm and stage. i have had my biopsy in April after battling for a date. 8 weeks after the biopsy I finally got to see consultant again for results! biopsy confirmed early stages
jewelsspeak
in
PBC Foundation
11 years ago
a bit nervous
just been precribed urso and also alendronic acid just wondering any comments of side effects while using them any advice would be so grateful before i start them thank you sadie xxxx
just been precribed urso and also alendronic acid just wondering any comments of side effects while using them any advice would be so grateful before i start them thank you sadie xxxx
sadie21
in
PBC Foundation
11 years ago
sorry for being dense but can you explain
as those of you whove been kind enough to answer my questions will know im still struggling on urso.can tolerate 500 mg with just mild upset tum now but its coming up to a month.feel gastly if i take more.ive read that altho urso will reduce lfts liver chirrosis can still be happening.is this a fact
as those of you whove been kind enough to answer my questions will know im still struggling on urso.can tolerate 500 mg with just mild upset tum now but its coming up to a month.feel gastly if i take more.ive read that altho urso will reduce lfts liver chirrosis can still be happening.is this a fact
cazz22
in
PBC Foundation
11 years ago
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Does anyone of you has problems with ammonia levels?
Hello, I only got diagnosed with PBC a month ago and was started on Urso straight away and my LFT's started to improve drastically after that. However, they did check my ammonia levels as well and the first set which came back was high and because of that they did repeat them to see whether it was
Hello, I only got diagnosed with PBC a month ago and was started on Urso straight away and my LFT's started to improve drastically after that. However, they did check my ammonia levels as well and the first set which came back was high and because of that they did repeat them to see whether it was
littledragon23
in
PBC Foundation
11 years ago
GP will not prescribe Urso
Has anyone on here had the same problem, my GP won't prescribe Urso, even though the Consultant has written to her asking her to prescibe it. She has sent him a letter saying no.
Has anyone on here had the same problem, my GP won't prescribe Urso, even though the Consultant has written to her asking her to prescibe it. She has sent him a letter saying no.
highwood
in
PBC Foundation
11 years ago
an honest but useless Gastro consultant who needs to get educated on PBC
for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of Urso to weight ratio to him, but he was happy for me to up my dose but did not think i needed to. However, today i see a different doctor who actually
for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of Urso to weight ratio to him, but he was happy for me to up my dose but did not think i needed to. However, today i see a different doctor who actually
wendyh
in
PBC Foundation
11 years ago
urso
well only into third week of urso.finally taken third tablet(only been taking two till now due to bloat and diaorreah).must admit i felt a whole lot better without it.now darent go far from house cos of above itching like crazy(didnt before) and have headache at night.slso lost 8 lbs.does anyone know
well only into third week of urso.finally taken third tablet(only been taking two till now due to bloat and diaorreah).must admit i felt a whole lot better without it.now darent go far from house cos of above itching like crazy(didnt before) and have headache at night.slso lost 8 lbs.does anyone know
cazz22
in
PBC Foundation
11 years ago
Who has PBC / AIH overlap or 'probable overlap'? What did your biopsy show? How are you treating both simultaneously?
So, if life with the fear of facing my newly identified disease isn't already confusing, I had my biopsy last week and received inconclusive results Monday. Based on elevated LFT's, AMA, and high IGM (but not elevated ALP), my doctor ordered the biopsy to get a clearer picture of my 'probable PBC'. The
So, if life with the fear of facing my newly identified disease isn't already confusing, I had my biopsy last week and received inconclusive results Monday. Based on elevated LFT's, AMA, and high IGM (but not elevated ALP), my doctor ordered the biopsy to get a clearer picture of my 'probable PBC'. The
JennerLayne
in
PBC Foundation
11 years ago
ok HELP!!
sorry you wonderful people its me again.i started urso last saturday250 mg ursofolk 3 times daily.first dose fine second dose start to bloat to uncomfortable level darent take third or il pop.second dose leaves me with a very dry mouth.also lost 4lbs with the runs(sorry)urine bright yellow.does this
sorry you wonderful people its me again.i started urso last saturday250 mg ursofolk 3 times daily.first dose fine second dose start to bloat to uncomfortable level darent take third or il pop.second dose leaves me with a very dry mouth.also lost 4lbs with the runs(sorry)urine bright yellow.does this
cazz22
in
PBC Foundation
11 years ago
Newly diagnosed with PBC
Good morning everyone :) I have been following your blog posts already for the past few weeks and found your advice on this site very useful and re-assuring. So, thank you very much everyone! On Wednesday I had my first appointment with the Liver specialist who confirmed my GP's diagnosis
Good morning everyone :) I have been following your blog posts already for the past few weeks and found your advice on this site very useful and re-assuring. So, thank you very much everyone! On Wednesday I had my first appointment with the Liver specialist who confirmed my GP's diagnosis
littledragon23
in
PBC Foundation
11 years ago
How do I put weight on!!!
Morning all. Quick question. I am on URSO 900mg a day and loosing weight . I can eat loads during the day (good or naughty food) and still loose. Can anybody give me any ideas on how to put weight on? X
Morning all. Quick question. I am on URSO 900mg a day and loosing weight . I can eat loads during the day (good or naughty food) and still loose. Can anybody give me any ideas on how to put weight on? X
gracesofia
in
PBC Foundation
11 years ago
starting urso
Hi everyone just back from hospital bloods slightly worse than last time so starting urso.not good with tablets it says to take my 250mg tablets x3 daily.can anyone recommend best way to take.All in one go? Spaced out?In evening?please advise also has anyone had side affects.As always grateful for any
Hi everyone just back from hospital bloods slightly worse than last time so starting urso.not good with tablets it says to take my 250mg tablets x3 daily.can anyone recommend best way to take.All in one go? Spaced out?In evening?please advise also has anyone had side affects.As always grateful for any
cazz22
in
PBC Foundation
11 years ago
Had enough now
I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the itch for 6yrs now and I have finally had enough! I take urso, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my
I was diagnosed with PBC 7yrs ago, although I had had the symptoms for 8 yrs prior to diagnosis (I was told I had irritable bowel syndrome)! I have battled the itch for 6yrs now and I have finally had enough! I take urso, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my
Jill68
in
PBC Foundation
11 years ago
Does anyone know if absorption of Urso is reduced if taking bile acid sequestering agents, such as cholestyramine (for itching)?
Hidden
in
PBC Foundation
11 years ago
urso ?
have to add had pbc for about a year heard about urso medication should u be given it when first diagnosed confused thanks sadie x
have to add had pbc for about a year heard about urso medication should u be given it when first diagnosed confused thanks sadie x
sadie21
in
PBC Foundation
11 years ago
Question re Urso.....
Hi. I have another question, about Urso this time . Maybe it is a coincidence but about two months ago I started with the bad itching, all over my body, slightly during the day but mostly morning and evening. Up til then I had only occasionally had itching on legs. ALSO About two months ago my Urso
Hi. I have another question, about Urso this time . Maybe it is a coincidence but about two months ago I started with the bad itching, all over my body, slightly during the day but mostly morning and evening. Up til then I had only occasionally had itching on legs. ALSO About two months ago my Urso
Annac
in
PBC Foundation
11 years ago
Anyone tried PUVA treatment?
My dermatologist has suggested I try PUVA treatment. Has anyone out there given it a go? I'm in two minds because (a) I suspect it won't work (b) it's time consuming and (c) the side effects of burning sound none too appealing! Is it worth it? I have pretty much no hair - so almost Universalis.
My dermatologist has suggested I try PUVA treatment. Has anyone out there given it a go? I'm in two minds because (a) I suspect it won't work (b) it's time consuming and (c) the side effects of burning sound none too appealing! Is it worth it? I have pretty much no hair - so almost Universalis.
annapecia
in
Alopecia UK
11 years ago
Oh no not something else!!!!!!!!
Just wanted to ask if any one as got Kidney problems,just had some blood tests and they have come back just about border line,so feel quite worried, Liver tests looking better so that was good to hear,not having any symptom's of Kidney problems i just wondered if it could be Urso or Questran that is
Just wanted to ask if any one as got Kidney problems,just had some blood tests and they have come back just about border line,so feel quite worried, Liver tests looking better so that was good to hear,not having any symptom's of Kidney problems i just wondered if it could be Urso or Questran that is
cavi
in
PBC Foundation
11 years ago
Feeling crap.
Hi guys, In my last post I mentioned I was steroid free. I went to see my consultant yesterday and my LFT's are elevated again. I am tired and thirsty and can't even do my housework because I am exhausted. My consultant wants to put me back on steroids (AIH/PBC overlap) but I do not want to take them
Hi guys, In my last post I mentioned I was steroid free. I went to see my consultant yesterday and my LFT's are elevated again. I am tired and thirsty and can't even do my housework because I am exhausted. My consultant wants to put me back on steroids (AIH/PBC overlap) but I do not want to take them
Alley27
in
PBC Foundation
11 years ago
Advice please
Hi I don't post much these days but I do read the posts that others put on here. Ihave AIH/PBC overlap. Was taking prednisolone up to 2 weeks ago. They have been slowly tapered down and am now steroid free. I also take mercaptopurine and urso. These past 5 days I have felt extremely tired, thirsty
Hi I don't post much these days but I do read the posts that others put on here. Ihave AIH/PBC overlap. Was taking prednisolone up to 2 weeks ago. They have been slowly tapered down and am now steroid free. I also take mercaptopurine and urso. These past 5 days I have felt extremely tired, thirsty
Alley27
in
PBC Foundation
11 years ago
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