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Uva Ursi
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Diag two weeks ago am 30 :-( Start Urso 2mro, so down and tired , the specialist said he does not need to see me for 6-12mths is this right?
I have so many questions i wanted to ask the doctor when i made my appointment and she could not answer hardly any of them, came out feeling so disheartened. I am not really coping all that well with this am being told to carry on as normal i know its early days and am still a shock but am scared. I
I have so many questions i wanted to ask the doctor when i made my appointment and she could not answer hardly any of them, came out feeling so disheartened. I am not really coping all that well with this am being told to carry on as normal i know its early days and am still a shock but am scared. I
donna30
in
PBC Foundation
11 years ago
Hiya i have been diagnosed with pbc and im on urso 2 tablets twice a day but they make me feel very sick and want to stop taking them
please can anyone give me advice
please can anyone give me advice
susan6466
in
PBC Foundation
11 years ago
Finally, after 4 month I have got a rest from all the investigations!
Hello everyone, I finally finshed all my investigations at the end of August, after being diagnosed with PBC at the end of May. The time from May to now, very much felt like a roller coaster ride, especially as I have been quite unwell inbetween. As other people mentioned before me - I was so fed up
Hello everyone, I finally finshed all my investigations at the end of August, after being diagnosed with PBC at the end of May. The time from May to now, very much felt like a roller coaster ride, especially as I have been quite unwell inbetween. As other people mentioned before me - I was so fed up
littledragon23
in
PBC Foundation
11 years ago
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Anyone on here NOT on Urso for their PBC? How are your LFTS with NOT being on this medicine?
I went off the Urso last year as a last resort as I had had a horrendous year with the itch( much like yr had before was diagnosed) . I had read an article about a new drug being trialed for PBC and it mentioned that quite a few of the participants who had never had ich from their PBC complained of
I went off the Urso last year as a last resort as I had had a horrendous year with the itch( much like yr had before was diagnosed) . I had read an article about a new drug being trialed for PBC and it mentioned that quite a few of the participants who had never had ich from their PBC complained of
littlemo
in
PBC Foundation
11 years ago
Quality of Life
Hello Everyone, I joined this site In April this year and have been reading your posts. Got diagnosed with PBC in April this year, I've been having abnormal LFT's since 2009 and my doctor finally sent me to see a specialist. I had a biopsy in January this year. When I got my results in April the specialist
Hello Everyone, I joined this site In April this year and have been reading your posts. Got diagnosed with PBC in April this year, I've been having abnormal LFT's since 2009 and my doctor finally sent me to see a specialist. I had a biopsy in January this year. When I got my results in April the specialist
jannybean
in
PBC Foundation
11 years ago
I've just been diagnosed with PBC and prescribed URSO dose 250 three times a day sound the correct dose? I'm just not sure about this.
I've been reading all of the posts having found this site online. I know very little about this condition but reading the posts has helped quite a lot. I had the itch about a year ago but no longer have that. Have seen a consultant and was prescribed Urso who said it was my decision to take it or
I've been reading all of the posts having found this site online. I know very little about this condition but reading the posts has helped quite a lot. I had the itch about a year ago but no longer have that. Have seen a consultant and was prescribed Urso who said it was my decision to take it or
alpha3
in
PBC Foundation
11 years ago
Does anyone on here think that maybe the dosage per kilo for Urso is wrong and needs to be reviewed by those who do that? I do.
Just been reading through few posts of people who have itch like myself and who when had doses increased found the itching increased. I am no longer on Urso and have to say I do not itch as much as I did in the ten yrs that I was on Urso. Unfortunately my Lfts have raised since coming off it but despite
Just been reading through few posts of people who have itch like myself and who when had doses increased found the itching increased. I am no longer on Urso and have to say I do not itch as much as I did in the ten yrs that I was on Urso. Unfortunately my Lfts have raised since coming off it but despite
littlemo
in
PBC Foundation
11 years ago
Newly diagnosed
& have found this forum so useful since I was diagnosed with PBC at the beginning of July. So how did my diagnosis come about? A routine blood test about 8yrs ago showed some changes in the LFT specifically the Gamma GT. Needless to say when I was called in to see the GP to discuss the results I was
& have found this forum so useful since I was diagnosed with PBC at the beginning of July. So how did my diagnosis come about? A routine blood test about 8yrs ago showed some changes in the LFT specifically the Gamma GT. Needless to say when I was called in to see the GP to discuss the results I was
vickyRhodes
in
PBC Foundation
11 years ago
Hi, this is my first time on here. The question i want to ask is if the urso medication is not proven to work why do i have to take it?
Gemma01
in
PBC Foundation
11 years ago
Hi, Am wondering about this urso as I"m from nz and have been on ursosan 300 for the last 2 years. It is manufactured in czech republic.
Is there there any problem with this medication
Is there there any problem with this medication
Pils
in
PBC Foundation
11 years ago
Itching at it's worst !!!
I am having the worst itching I have ever had just didn't think it could get me in such a state i just don't stop scratching my skin is so sore and bleeding,i am taking 1000 Urso 2Questran light drinks a day and getting no relief at all i have been taking these since Feb 2013 is this a sign they are
I am having the worst itching I have ever had just didn't think it could get me in such a state i just don't stop scratching my skin is so sore and bleeding,i am taking 1000 Urso 2Questran light drinks a day and getting no relief at all i have been taking these since Feb 2013 is this a sign they are
cavi
in
PBC Foundation
11 years ago
Urso - once again!!
If these urso 300 mg have been withdrawn suddenly - I hope that does not mean that there was a problem with what was in the ones they have been issuing to us?
If these urso 300 mg have been withdrawn suddenly - I hope that does not mean that there was a problem with what was in the ones they have been issuing to us?
Shirleygreen
in
PBC Foundation
11 years ago
Bloating and Things
Saw my consultant yesterday bloods ok (don't think I've every been ok) ultrasound ok I do have gall stones but he said they are better left alone. He did say that I have something on my liver but the name evades me at the moment but nothing to worry about he said it was like a birth mark on my liver
Saw my consultant yesterday bloods ok (don't think I've every been ok) ultrasound ok I do have gall stones but he said they are better left alone. He did say that I have something on my liver but the name evades me at the moment but nothing to worry about he said it was like a birth mark on my liver
Jude1
in
PBC Foundation
11 years ago
Urso difficulties obtaining
I have just been to the chemist to pick up my urso and have been told there is difficulties in supply. I have been off line for a bit so dont know if there have been similar questions. The chemist advised that I go back to my gp and ask for it in capsule form. Is this okay? Has everyone else had similar
I have just been to the chemist to pick up my urso and have been told there is difficulties in supply. I have been off line for a bit so dont know if there have been similar questions. The chemist advised that I go back to my gp and ask for it in capsule form. Is this okay? Has everyone else had similar
Shirleygreen
in
PBC Foundation
11 years ago
MY URSO STOPPED WORKING :-(
I found out I have PBC about 5 months ago. I started on the URSO and the first month I didn't notice any difference but the end of the second month to the beginning of the 4th month I was feeling really great. I didn't have any pain,my, blood work was just about normal and I actually had energy. then
I found out I have PBC about 5 months ago. I started on the URSO and the first month I didn't notice any difference but the end of the second month to the beginning of the 4th month I was feeling really great. I didn't have any pain,my, blood work was just about normal and I actually had energy. then
engasser
in
PBC Foundation
11 years ago
URSO
Have just spoken to my G.P about the fact that 300mg Urso has been recalled she was helpful in saying that a prescription for 150mg would be written for me. I also phoned and spoke to the Pharmacist to ask if they had 150mg which they did as they had been delivered today. You can also get 250mg capsules
Have just spoken to my G.P about the fact that 300mg Urso has been recalled she was helpful in saying that a prescription for 150mg would be written for me. I also phoned and spoke to the Pharmacist to ask if they had 150mg which they did as they had been delivered today. You can also get 250mg capsules
Jude1
in
PBC Foundation
11 years ago
new and frightened!
Hi everyone i am hoping by coming on here that i will have someone who understands..I am 33 years old and have just been given the pbc diagnosis. It has been suspected for a while. I first showed symptoms during my first pregnancy when i was 25. I have had no problems since then and nor with the other
Hi everyone i am hoping by coming on here that i will have someone who understands..I am 33 years old and have just been given the pbc diagnosis. It has been suspected for a while. I first showed symptoms during my first pregnancy when i was 25. I have had no problems since then and nor with the other
devon_newbie
in
PBC Foundation
11 years ago
Concerns about liver biopsy
I seen my consultant recently, and even though my dosage of Urso had been increased to just about maximum of 1500mg per day, it seems my bloods have not settled so now I am facing having a biopsy. I've been told you don't really feel the needle going into the liver as they give you a local anaesthetic
I seen my consultant recently, and even though my dosage of Urso had been increased to just about maximum of 1500mg per day, it seems my bloods have not settled so now I am facing having a biopsy. I've been told you don't really feel the needle going into the liver as they give you a local anaesthetic
madmags
in
PBC Foundation
11 years ago
dear lord now what!!!
some of you kindly answered me recently about bleeding gums.ive tried gentle toothbrushes mouth washes etc to no avail.they still bleed when brushing also now when i eat something and worryingly when im just sat/ laid.has anyone else experienced this please?im going to docs next week.last time i saw
some of you kindly answered me recently about bleeding gums.ive tried gentle toothbrushes mouth washes etc to no avail.they still bleed when brushing also now when i eat something and worryingly when im just sat/ laid.has anyone else experienced this please?im going to docs next week.last time i saw
cazz22
in
PBC Foundation
11 years ago
some advice plz
have been prescribed urso seem to be doing ok on it just lately been feeling really tired exhausted horrible feeling not to good at all is it the urso or is it just pbc thanks Sadie xxx
have been prescribed urso seem to be doing ok on it just lately been feeling really tired exhausted horrible feeling not to good at all is it the urso or is it just pbc thanks Sadie xxx
sadie21
in
PBC Foundation
11 years ago
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