Hi thank you all for your advice. I am taking my urso, and so what if I itch. I have had a lovely day today with my friend. We went to the Christmas market in Manchester....I wondered about diet. I have been reading on certain medical websites, even the mayo one and I am wondering what is the right way to go. Some say for PBC and AIH we need a high protein diet; and others say we need to limit the protein we eat, because our liver does not work properly, and can't process protein properly, even my dietician said I need to eat more protein, she is not a specialist in liver disorders though. It's so confusing, I just want to do right and look after me. Could anyone tell me which is the best way forward here please.
I have also been reading through posts on here, some who are very shocked at their diagnosis....I was diagnosed in March 2012, which came as a huge shock to me, and I still worry about the future. My friends are very good to me, and they realize I can't do everything I used to do, but sometimes I have to stay home as I can't do a lot of what we used to. If honest sometimes you do feel isolated. I am scared of what might happen, but for now am going to get on with life as best I can, because I have to. I am not caring for my sick friend anymore her family are getting carers in...which is wonderful, as it means less stress for me. Stress makes PBC and AIH much worse. When you have both, it is difficult sometimes to identify which of the two are playing up on any given day, and I am still learning;. I also find that when the PBC and AIH are active I lose weight, when they settle, the weight goes back on lol....confusing as hell but I am alive and that's what is important.
I wish you all a very happy Christmas, and a healthy new year. xxx conniefused