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Uva Ursi
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Teeth sensitivity?
Has anyone experienced teeth sensitivity. I have AIH/PBC overlap. I am on Urso, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
Has anyone experienced teeth sensitivity. I have AIH/PBC overlap. I am on Urso, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
ZiggyBean
in
PBC Foundation
10 years ago
Urso dosage
I was diagnosed a few weeks with PBC. Today I was put on urso. I am taking 1000mg per day. 500 in the am, 500 in the pm. Is this too much? I weigh 52 kg
I was diagnosed a few weeks with PBC. Today I was put on urso. I am taking 1000mg per day. 500 in the am, 500 in the pm. Is this too much? I weigh 52 kg
Pea1234
in
PBC Foundation
10 years ago
Portal hypertensive gastropathy
Does any one else have portal hypertensive gastropathy? I have looked at google and not much other than the basics.Could this be the reason I get a lot of upper stomach pains and pain in the region of the liver and spleen. Also just had my first week of Urso, so far so good? IF I was unlucky to have
Does any one else have portal hypertensive gastropathy? I have looked at google and not much other than the basics.Could this be the reason I get a lot of upper stomach pains and pain in the region of the liver and spleen. Also just had my first week of Urso, so far so good? IF I was unlucky to have
Lisacj
in
PBC Foundation
10 years ago
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Is it normal for ALP levels to fluctuate?
I was diagnosed with pbc in December on the basis of AMA and liver biopsy (liver function tests have always been normal). I am not yet on URSO. My lft results today show all levels within normal range but ALP has gone from 54 up to 73 (normal is up to 135). Does anyone know is this sort of fluctuation
I was diagnosed with pbc in December on the basis of AMA and liver biopsy (liver function tests have always been normal). I am not yet on URSO. My lft results today show all levels within normal range but ALP has gone from 54 up to 73 (normal is up to 135). Does anyone know is this sort of fluctuation
Kitsilano
in
PBC Foundation
10 years ago
Swollen abdomen
Does anyone have a swollen abdomen/stomach. I am going to be 66 in November and have a tummy like a ready to give birth young thing. I only have a LFT every year around my birthday, am not on urso, but when asking Doc about swollen tum she said "You need to lose weight". If I thought it was FAT, I
Does anyone have a swollen abdomen/stomach. I am going to be 66 in November and have a tummy like a ready to give birth young thing. I only have a LFT every year around my birthday, am not on urso, but when asking Doc about swollen tum she said "You need to lose weight". If I thought it was FAT, I
Pookie18
in
PBC Foundation
10 years ago
Fatigue with normal LTF's
So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids, urso and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued, overweight which I was not before, cold all the time, I don't sleep well and many more. Is it normal to feel so unwell with normal liver function
So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids, urso and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued, overweight which I was not before, cold all the time, I don't sleep well and many more. Is it normal to feel so unwell with normal liver function
Alley27
in
PBC Foundation
10 years ago
Has anyone had Liver pain decrease after starting on urso ?
After years of high liver test I was finally diagnosed after having pain on my right side and being referred to a GI specialist. I started urso in December and my liver counts have come down significantly and I think my right side pain has reduced but I still can't sleep on my right side. Has anyone
After years of high liver test I was finally diagnosed after having pain on my right side and being referred to a GI specialist. I started urso in December and my liver counts have come down significantly and I think my right side pain has reduced but I still can't sleep on my right side. Has anyone
Robfromus
in
PBC Foundation
10 years ago
Sleeplessness.
Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underactive thyroid,and osteoporosis diagnosed via a dexa scan, I started on Urso, at first I was ok with the Urso now I can't take it, after speaking with my consultant she is happy for me not to take the meds as my liver function
Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underactive thyroid,and osteoporosis diagnosed via a dexa scan, I started on Urso, at first I was ok with the Urso now I can't take it, after speaking with my consultant she is happy for me not to take the meds as my liver function
Jaycee
in
PBC Foundation
10 years ago
Has anyone developed a rash on their face from taking Urso?
I was diagnosed with PBC last August and a month after starting urso I developed an annoying itchy rash at side of my nose and small blotches around my mouth. Fortunately when I cover it with concealer you can't really see it as the rash is flat and not like bumps as you get with spots. Ive read in the
I was diagnosed with PBC last August and a month after starting urso I developed an annoying itchy rash at side of my nose and small blotches around my mouth. Fortunately when I cover it with concealer you can't really see it as the rash is flat and not like bumps as you get with spots. Ive read in the
Suzzypops
in
PBC Foundation
10 years ago
Hair loss
hi, Has anyone experienced hair loss while on Urso?
hi, Has anyone experienced hair loss while on Urso?
Hidden
in
PBC Foundation
10 years ago
I've just started on urso, I've taken it for 1 week now , and I feel terrible. Heart burn, stomach cramps, diarrhea, flatulance
My dr. Didn't really explain anything about side effects, and she suggested I take the whole dose in one go not build up gradually. Thank goodness the pharmacist knew better. I haven t buit up to the full dose yet . I'm taking my tablets during my meals to help with the heart burn. I'm eating loads of
My dr. Didn't really explain anything about side effects, and she suggested I take the whole dose in one go not build up gradually. Thank goodness the pharmacist knew better. I haven t buit up to the full dose yet . I'm taking my tablets during my meals to help with the heart burn. I'm eating loads of
Lucylongstockings
in
PBC Foundation
10 years ago
What grades or stages are people at? Especially in relation to urso.
Hello to you all. Another new PBCer Some of you have had PBC for a long time (surprised). Has taking urso brought liver counts to a normal level I should say down or are your counts stayed the same? I'm not sure how long one should give, in terms of life expectancy, and how much urso helps in prolonging
Hello to you all. Another new PBCer Some of you have had PBC for a long time (surprised). Has taking urso brought liver counts to a normal level I should say down or are your counts stayed the same? I'm not sure how long one should give, in terms of life expectancy, and how much urso helps in prolonging
Ellean
in
PBC Foundation
10 years ago
What questions should I be asking my consultant?
So I've been diagnosed with PBC, have started Urso and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-urso), bone density scan and liver biopsy. I have a thousand questions (I'm trying to repress the urge to grab him by the tie and screech "AM I DYING
So I've been diagnosed with PBC, have started Urso and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-urso), bone density scan and liver biopsy. I have a thousand questions (I'm trying to repress the urge to grab him by the tie and screech "AM I DYING
Suziebeau
in
PBC Foundation
10 years ago
ALP
Any one still got high ALP although taking Urso other blood tests ok just wondered if it can be still high due to something else causing it and not PBC my last blood test came back 525 before taking Urso it was 1114 very very high been on Urso 11mts I though by now it would be normal would like to hear
Any one still got high ALP although taking Urso other blood tests ok just wondered if it can be still high due to something else causing it and not PBC my last blood test came back 525 before taking Urso it was 1114 very very high been on Urso 11mts I though by now it would be normal would like to hear
cavi
in
PBC Foundation
10 years ago
Diagnosed last feb and started on urso in June.i couldn't tolerate it properly had to go back to one capsule then after weeks tried two
Could never get a third one in.colette at pbc foundation said some urso was better than none.in December had a week off it and feltAMAZING.told my specialist that I thought I was allergic to the fillers so he put me on urso tablets.feel great on them.just wanted to let anyone know if like me they're
Could never get a third one in.colette at pbc foundation said some urso was better than none.in December had a week off it and feltAMAZING.told my specialist that I thought I was allergic to the fillers so he put me on urso tablets.feel great on them.just wanted to let anyone know if like me they're
cazz22
in
PBC Foundation
10 years ago
Omg weight gain
Hi all and happy new year, I started urso 2 months ago and I must say although not changed clothing size i have gained a stone in weight, more so around my tummy, not sure if this is urso or pbc. Any advice please x
Hi all and happy new year, I started urso 2 months ago and I must say although not changed clothing size i have gained a stone in weight, more so around my tummy, not sure if this is urso or pbc. Any advice please x
Sonia40
in
PBC Foundation
10 years ago
Have any of you started itching when you started URSO?
I was diagnosed with pbc a few weeks ago. LFTs are normal, AMA positive and was diagnosed on the basis of liver biopsy. I have no symptoms at all currently. My consultant has suggested started URSO and I am thinking about it. But I'm really worried about it bringing on itching which I don't currently
I was diagnosed with pbc a few weeks ago. LFTs are normal, AMA positive and was diagnosed on the basis of liver biopsy. I have no symptoms at all currently. My consultant has suggested started URSO and I am thinking about it. But I'm really worried about it bringing on itching which I don't currently
Kitsilano
in
PBC Foundation
10 years ago
Diet
Hi thank you all for your advice. I am taking my urso, and so what if I itch. I have had a lovely day today with my friend. We went to the Christmas market in Manchester....I wondered about diet. I have been reading on certain medical websites, even the mayo one and I am wondering what is the right way
Hi thank you all for your advice. I am taking my urso, and so what if I itch. I have had a lovely day today with my friend. We went to the Christmas market in Manchester....I wondered about diet. I have been reading on certain medical websites, even the mayo one and I am wondering what is the right way
Alley27
in
PBC Foundation
10 years ago
Digestive issues.
Hi I would like to ask if anyone suffers from really annoying stomach issues? I have PBC AIH overlap. I take urso 500 mg twice per day, prednisolone steroids, and mercaptopurine. I admit to not taking the urso as I was told to by my consultant but it tends to bloat me out and make me feel uncomfortable
Hi I would like to ask if anyone suffers from really annoying stomach issues? I have PBC AIH overlap. I take urso 500 mg twice per day, prednisolone steroids, and mercaptopurine. I admit to not taking the urso as I was told to by my consultant but it tends to bloat me out and make me feel uncomfortable
Alley27
in
PBC Foundation
10 years ago
Any suggestions for trouble staying asleep?
Hi everyone. My name is Summer. This is the first time I have posted on here. I was diagnosed a couple of months ago with pbc. One week later I had a liver biopsy and was told it had progressed very fast and that I am in stage 4 already. I have been on urso since the day after the biopsy and my blood
Hi everyone. My name is Summer. This is the first time I have posted on here. I was diagnosed a couple of months ago with pbc. One week later I had a liver biopsy and was told it had progressed very fast and that I am in stage 4 already. I have been on urso since the day after the biopsy and my blood
breekins
in
PBC Foundation
10 years ago
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