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Uva Ursi
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Blood results
Had my first set of blood tests yesterday after doing the treatment of 40 predisone and 1000 urso a day started 1/15 my doctor called my ALT and AST dropped to normal range and my ALP dropped from 600 to 253 Next round of blood test is Monday again cuz we drop the prednisone down to 20 to taper off but
Had my first set of blood tests yesterday after doing the treatment of 40 predisone and 1000 urso a day started 1/15 my doctor called my ALT and AST dropped to normal range and my ALP dropped from 600 to 253 Next round of blood test is Monday again cuz we drop the prednisone down to 20 to taper off but
mjk98
in
PBC Foundation
6 years ago
Meds question
The long term prednisone is really getting to me. I was fine with it until the manufacture was changed. I am used to taking a 500 mg of urso and a now 10 mg of prednisone in the morning with breakfast Then with dinner I take another 500 mg of urso and a 50 mg of AZA. I am thinking about switching
The long term prednisone is really getting to me. I was fine with it until the manufacture was changed. I am used to taking a 500 mg of urso and a now 10 mg of prednisone in the morning with breakfast Then with dinner I take another 500 mg of urso and a 50 mg of AZA. I am thinking about switching
Hidden
in
PBC Foundation
6 years ago
Do I have PBC
I'm 69 y.o and was incidentally diagnosed with PBC 15 years ago following routine blood tests which showed 1:80 ama. I was prescribed urso 1500 mg daily. I refused to undergo a liver biopsy. I am still symptom-free and my LFTs still remain within normal range. Two years ago, I was confirmed as having
I'm 69 y.o and was incidentally diagnosed with PBC 15 years ago following routine blood tests which showed 1:80 ama. I was prescribed urso 1500 mg daily. I refused to undergo a liver biopsy. I am still symptom-free and my LFTs still remain within normal range. Two years ago, I was confirmed as having
Hidden
in
PBC Foundation
6 years ago
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Can I take Milk thistle while on ocaliva
I have just recently been started on ocaliva due to poor response from URSO. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
I have just recently been started on ocaliva due to poor response from URSO. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
Gilz1702
in
PBC Foundation
6 years ago
Just diagnosed
I just joined this group and I am needing some guidance. I had a positive AMA result, had a biopsy that suggested PBC but is in very early stage. Dr. prescribed URSO and I understand that this med. can slow down the process but can it also lower AMA test results? Thanks for any help. I am pretty
I just joined this group and I am needing some guidance. I had a positive AMA result, had a biopsy that suggested PBC but is in very early stage. Dr. prescribed URSO and I understand that this med. can slow down the process but can it also lower AMA test results? Thanks for any help. I am pretty
Ellyne
in
PBC Foundation
6 years ago
Pbc diagnosed but not been tested
Hi there. I saw the gastro last week after series oh high liver tests. After n hour of prodding, poking and questions he told me I have pbc. He gave me urso and wants to see me again in 6 months. I've had no other tests but reading online everyone seems to mention ama and biopsy. Should I be seeing
Hi there. I saw the gastro last week after series oh high liver tests. After n hour of prodding, poking and questions he told me I have pbc. He gave me urso and wants to see me again in 6 months. I've had no other tests but reading online everyone seems to mention ama and biopsy. Should I be seeing
Rleo
in
PBC Foundation
6 years ago
Forgot to take medication
I forgot to take my prednisone and Urso this morning and last night I forgot to take Urso and AZA. My children are brutal these days. I’m not sure if I should at least take my Urso and prednisone that I missed this morning. I will be up all night if I take it now. My stress is bad these days.
I forgot to take my prednisone and Urso this morning and last night I forgot to take Urso and AZA. My children are brutal these days. I’m not sure if I should at least take my Urso and prednisone that I missed this morning. I will be up all night if I take it now. My stress is bad these days.
Hidden
in
PBC Foundation
6 years ago
MISDIAGNOSED
Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND HAVE BEEN TAKING URSO , NOW MY DR BELIEVES I MAY HAVE BEEN MISDIANOSED, I AM SO CONFUSED WAITING TO SEE SPECIALIST NEXT WEEK :(.
Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND HAVE BEEN TAKING URSO , NOW MY DR BELIEVES I MAY HAVE BEEN MISDIANOSED, I AM SO CONFUSED WAITING TO SEE SPECIALIST NEXT WEEK :(.
susanashworth
in
PBC Foundation
7 years ago
Fibroscan 12.2?
This is my first visit to this site. I am 73 and was diagnosed in 2014. I take 1000mg of Urso and have just had a fibroscan of 12.2. My LFTs are only slightly abnormal but I am anaemic. I really just want to check in and say hello
This is my first visit to this site. I am 73 and was diagnosed in 2014. I take 1000mg of Urso and have just had a fibroscan of 12.2. My LFTs are only slightly abnormal but I am anaemic. I really just want to check in and say hello
Pin44
in
PBC Foundation
7 years ago
I'm new-+AMA, no symptoms, Urso?
So, I've been reading and trying to search for people like me, but I thought maybe it would be easier if I just posted. I'm new here! HI! My story started in September 2017. I had routine bloodwork done. My ALT was 32(normal <29). My cholesterol tests were also slightly elevated. I was getting a virus
So, I've been reading and trying to search for people like me, but I thought maybe it would be easier if I just posted. I'm new here! HI! My story started in September 2017. I had routine bloodwork done. My ALT was 32(normal <29). My cholesterol tests were also slightly elevated. I was getting a virus
Bobrummel217
in
PBC Foundation
7 years ago
Itching 😡
Hey guys..... can you still have itching with urso and normal labs? I was itching free for several months and labs are within normal range for a few months but now have the itching again 😞
Hey guys..... can you still have itching with urso and normal labs? I was itching free for several months and labs are within normal range for a few months but now have the itching again 😞
Pamela4475
in
PBC Foundation
7 years ago
Itchy on Ocaliva - it comes and it goes?
Hi everyone! I’ve been on ocaliva for seven weeks and Urso for seven months. I was slightly itchy on Urso but not a big deal. Week 2 on ocaliva i was extremely itchy, then it subsided and now i am crazy itchy again. Anyone else experienced similar? I am able to tolarate major itching so long that my
Hi everyone! I’ve been on ocaliva for seven weeks and Urso for seven months. I was slightly itchy on Urso but not a big deal. Week 2 on ocaliva i was extremely itchy, then it subsided and now i am crazy itchy again. Anyone else experienced similar? I am able to tolarate major itching so long that my
Ottley3
in
PBC Foundation
7 years ago
Can you diagnose early-stage PBC with blood tests only
Hello, My wife has PBC. The URSO made her feel sick and was vomiting soon after taking it. Now she won't take it again. I heard about the Australia "Liver Doctor" (Dr. Sandra Carbot), and ordered her concoctions some time back, but its just recently my wife has started taking her"Livatone" product
Hello, My wife has PBC. The URSO made her feel sick and was vomiting soon after taking it. Now she won't take it again. I heard about the Australia "Liver Doctor" (Dr. Sandra Carbot), and ordered her concoctions some time back, but its just recently my wife has started taking her"Livatone" product
Nicholas101
in
PBC Foundation
7 years ago
NEED SOME AVISE
HI, ITS BEEN A WHILE SINCE MY LAST POST. A LOT HAS HAPPENED SINCE. WELL LET ME START, WENT TO THE HEPATOLGIST ON NOV. 10 AND SHE SAID I HAD OVERLAP SINDROME WHICH I STARTED ON PRED AND AZA. BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM
HI, ITS BEEN A WHILE SINCE MY LAST POST. A LOT HAS HAPPENED SINCE. WELL LET ME START, WENT TO THE HEPATOLGIST ON NOV. 10 AND SHE SAID I HAD OVERLAP SINDROME WHICH I STARTED ON PRED AND AZA. BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM
YADILURO
in
PBC Foundation
7 years ago
Citalopram and increased Alkaline Phosphate
Hi Back again 😘 So diagnosed 6 months ago with PBC and taking urso, December ALP was 280 Have developed anxiety and prescribed Citalopram 10mg which I have taken for 3 weeks, had bloods done at 2 weeks and ALP has gone up to 380 Has anyone had similar? It has helped with anxiety but GP is concerned
Hi Back again 😘 So diagnosed 6 months ago with PBC and taking urso, December ALP was 280 Have developed anxiety and prescribed Citalopram 10mg which I have taken for 3 weeks, had bloods done at 2 weeks and ALP has gone up to 380 Has anyone had similar? It has helped with anxiety but GP is concerned
Rozm2004
in
PBC Foundation
7 years ago
2 weeks on "real" drug URSO Forte. Changed from generic. Update...
Hello PBC family, So my labs a month ago showed my ALP was slowly going up. My doctor agreed to take me off of the generic URSO and try me on the real URSO Forte. After a week of phone calls back n' forth to my reluctant insurance company, they finally agreed to cover me taking the real drug. So, my
Hello PBC family, So my labs a month ago showed my ALP was slowly going up. My doctor agreed to take me off of the generic URSO and try me on the real URSO Forte. After a week of phone calls back n' forth to my reluctant insurance company, they finally agreed to cover me taking the real drug. So, my
Ktltel
in
PBC Foundation
7 years ago
Rheumatology tommorow
Year since my last appointment and since then pbc confermed, I saw her then as osteoarthritis in hand and feet I was just wondering if there was anything I should ask, every one on here seams to know everything even there blood results, so I'm thinking I don't ask enough lol As for the Urso, I'm OK taking
Year since my last appointment and since then pbc confermed, I saw her then as osteoarthritis in hand and feet I was just wondering if there was anything I should ask, every one on here seams to know everything even there blood results, so I'm thinking I don't ask enough lol As for the Urso, I'm OK taking
Pinkcrush
in
PBC Foundation
7 years ago
Obstetric cholestatis! Scared to take the urso!!
Hi everyone :) I'm new around here so not sure how these things go! So bear with me! I'm 33 weeks tomorrow and have been diagnosed with obstetric cholestatis!, I've had the itching since aroubd 31 weeks but only yesterday they prescribed me the urso! I'm on 250mg twice a day, and after reading the horrible
Hi everyone :) I'm new around here so not sure how these things go! So bear with me! I'm 33 weeks tomorrow and have been diagnosed with obstetric cholestatis!, I've had the itching since aroubd 31 weeks but only yesterday they prescribed me the urso! I'm on 250mg twice a day, and after reading the horrible
Mrsdravenx
in
Pregnancy and Parenting Support
7 years ago
6-week update on ocaliva
Update on me. For reference I was diagnosed with PBC in March 2017, with the levels in the parentheses below. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now. ALP from 274 to 191 ( high
Update on me. For reference I was diagnosed with PBC in March 2017, with the levels in the parentheses below. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now. ALP from 274 to 191 ( high
Ottley3
in
PBC Foundation
7 years ago
Dry skin & Urso
I hope everyone had a wonderful Christmas! I have a question about dry skin after starting Urso. I itch of course, but my skin is dryer than it’s ever been. I use Shea lotion on my body and organic Shea butter on my face. Any other suggestions?
I hope everyone had a wonderful Christmas! I have a question about dry skin after starting Urso. I itch of course, but my skin is dryer than it’s ever been. I use Shea lotion on my body and organic Shea butter on my face. Any other suggestions?
Stephanellie
in
PBC Foundation
7 years ago
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