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Urso
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Recently diagnosed with PBC
Just started taking
Urso
-itching terrible! How long before see any effects? Experience with liver biopsy as scheduled on Monday Through readings doesn't seem performed much
Just started taking
Urso
-itching terrible! How long before see any effects? Experience with liver biopsy as scheduled on Monday Through readings doesn't seem performed much
Ljonesfnp
in
PBC Foundation
8 years ago
Recently Diagnosed
I am on
urso
, 1500mg, 3 month blood work, 6 month ultrasounds, and having a colonscopy in Dec, Any thoughts?
I am on
urso
, 1500mg, 3 month blood work, 6 month ultrasounds, and having a colonscopy in Dec, Any thoughts?
Sweetness_1
in
PBC Foundation
8 years ago
Gastritis
Briefly looking through Google there seems to be a connection with taking
Urso
. Has anyone else suffered with gastritis while taking
Urso
? Thanks all.
Briefly looking through Google there seems to be a connection with taking
Urso
. Has anyone else suffered with gastritis while taking
Urso
? Thanks all.
Lisacj
in
PBC Foundation
8 years ago
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Change of tablets
Hello I was diagnosed with PBC two years ago and have been taking
Urso
since then and been ok. I also take Warfarin as I have a heart condition. My GP has suggested I could come off Warfarin and change to a NOACs which is a new type of blood thinner.
Hello I was diagnosed with PBC two years ago and have been taking
Urso
since then and been ok. I also take Warfarin as I have a heart condition. My GP has suggested I could come off Warfarin and change to a NOACs which is a new type of blood thinner.
Noidea63
in
PBC Foundation
8 years ago
Urso side effects
I've been taking the
Urso
for 4 days, I've had a terrible headache all 4 days. I've taken a few doses of ibuprofen to try to manage it. I've also had stomach cramps, diarrhea, a low grade fever, back and neck pain. Can anyone tell me if these symptoms will let up or is this permanent?
I've been taking the
Urso
for 4 days, I've had a terrible headache all 4 days. I've taken a few doses of ibuprofen to try to manage it. I've also had stomach cramps, diarrhea, a low grade fever, back and neck pain. Can anyone tell me if these symptoms will let up or is this permanent?
Jaksgirl
in
PBC Foundation
8 years ago
Feeling deflated
All my blood works were within normal boundaries which is great as the
Urso
is obviously doing its job. But every other thing I tried to discuss he told me was not connected to my PCB...
All my blood works were within normal boundaries which is great as the
Urso
is obviously doing its job. But every other thing I tried to discuss he told me was not connected to my PCB...
lennie9215
in
PBC Foundation
8 years ago
Recently diagnosed
I just got my diagnosis after a liver biopsy and I started
Urso
300 3 times per day. My ANA is 1:2560 and AMA is 1:163. Liver enzymes not too high. Wondering if an anti-inflammatory diet would make more sense than jumping on
Urso
.
I just got my diagnosis after a liver biopsy and I started
Urso
300 3 times per day. My ANA is 1:2560 and AMA is 1:163. Liver enzymes not too high. Wondering if an anti-inflammatory diet would make more sense than jumping on
Urso
.
Sissymcc
in
PBC Foundation
8 years ago
Worried!
Im on 1000ml of
Urso
daily and already my system is upset because my band has been changed, feeling very low at the moment and don't want to worry the family. Any advice would be appreciated.
Im on 1000ml of
Urso
daily and already my system is upset because my band has been changed, feeling very low at the moment and don't want to worry the family. Any advice would be appreciated.
CathieG
in
PBC Foundation
8 years ago
Bad days!
Diagnosed with pbc in June and I am on 1000mg of
urso
. Had a dexa scan and ultra scan get results in a couple of weeks. Recently had fingerprint bruising Lowe part of body especially abdomen. Last few days I have felt so tired and weak. Headache, pain in hips and thighs.
Diagnosed with pbc in June and I am on 1000mg of
urso
. Had a dexa scan and ultra scan get results in a couple of weeks. Recently had fingerprint bruising Lowe part of body especially abdomen. Last few days I have felt so tired and weak. Headache, pain in hips and thighs.
Lcagar63
in
PBC Foundation
8 years ago
Advice please - PBC stages and healing after surgery
with definite fibrosis and significant inflammation, indicative of the disease being aggressive which they do see in younger people (I'm 36) my consultant is going to leave me on
urso
until my next appointment in December then potentially looking at introducing a steroid as in some cases this can help
with definite fibrosis and significant inflammation, indicative of the disease being aggressive which they do see in younger people (I'm 36) my consultant is going to leave me on
urso
until my next appointment in December then potentially looking at introducing a steroid as in some cases this can help
jayneypickles
in
PBC Foundation
8 years ago
Ascites
I was first diagnosed with PBC in 2008, took
Urso
for a couple of years, then allowed life to get in the way (and perhaps some denial) and was off and on the medicine for several years. Earlier this year, I returned to my GI specialist and restarted the
Urso
and am diligently taking it.
I was first diagnosed with PBC in 2008, took
Urso
for a couple of years, then allowed life to get in the way (and perhaps some denial) and was off and on the medicine for several years. Earlier this year, I returned to my GI specialist and restarted the
Urso
and am diligently taking it.
tntarheel
in
PBC Foundation
8 years ago
How to get access to new medication...?
I've got PBC for several years now, first with good results on
urso
. In the last three year my liverfunction tests got worse and worse. So, I'm one of the non responders on
urso
. In the US obeticolic acid has gone through an accelerated procedure of FDA approval and is now available for patients.
I've got PBC for several years now, first with good results on
urso
. In the last three year my liverfunction tests got worse and worse. So, I'm one of the non responders on
urso
. In the US obeticolic acid has gone through an accelerated procedure of FDA approval and is now available for patients.
Marg1974
in
PBC Foundation
8 years ago
Fenofibrate
At the time after about 18 months of appearing to respond to
urso
, my liver function tests became quite elevated over a short period of time.
At the time after about 18 months of appearing to respond to
urso
, my liver function tests became quite elevated over a short period of time.
Puddles
in
PBC Foundation
8 years ago
Flu jab
I was diagnosed with pbc in early July and I am currently adjusting to taking
Urso
. I have an appointment with my Gp tomorrow. The surgery have written to me about having a flu jab. I am intending to discuss this tomorrow. Has anyone had the flu jab? Or does anyone have any thoughts on it?
I was diagnosed with pbc in early July and I am currently adjusting to taking
Urso
. I have an appointment with my Gp tomorrow. The surgery have written to me about having a flu jab. I am intending to discuss this tomorrow. Has anyone had the flu jab? Or does anyone have any thoughts on it?
jemlola
in
PBC Foundation
8 years ago
Feeling good!
Have been taking
urso
1000mg a day.in the last week or so I have felt really good.my bowels have settled and I am hoping the Medication has set in and things are on the up. Definitely feeling better I hope it lasts.
Have been taking
urso
1000mg a day.in the last week or so I have felt really good.my bowels have settled and I am hoping the Medication has set in and things are on the up. Definitely feeling better I hope it lasts.
Lcagar63
in
PBC Foundation
8 years ago
Is anyone on the new drug Ocaliva?
He wants my ALP numbers to go down more so I will be taking 2
URSO
pills + 1 Ocaliva 5mg pill per day. I was taking 3 URSOs per day. The side affects are fatigue and itchiness. Although the percentages for these side effects are low. Is anyone here on it?
He wants my ALP numbers to go down more so I will be taking 2
URSO
pills + 1 Ocaliva 5mg pill per day. I was taking 3 URSOs per day. The side affects are fatigue and itchiness. Although the percentages for these side effects are low. Is anyone here on it?
Pea1234
in
PBC Foundation
8 years ago
Jackie - new member
I take
Urso
750mg at night and even though I have told him that a family member was diagnosed, had a transplant and has now passed away, he says that I just have a condition which I just have to get on with.
I take
Urso
750mg at night and even though I have told him that a family member was diagnosed, had a transplant and has now passed away, he says that I just have a condition which I just have to get on with.
Mollymoo50
in
PBC Foundation
8 years ago
Not feeling well on URSO after on it for 2 months
Hi again hope everyone is doing good today, I wonder if anyone here on
URSO
has not felt well after taking it for a couple of months?
Hi again hope everyone is doing good today, I wonder if anyone here on
URSO
has not felt well after taking it for a couple of months?
Michiganpbc
in
PBC Foundation
8 years ago
Finally have a diagnosis.
I have been given 1500 mgs of
Urso
day and cholestyramine for the itching. The
Urso
makes me feel a little nauseous and I seem to be more tired too. Hopefully this will pass. Not sure what this disease means for me, but I have been immunized against, pneumonia, hep b and the flu.
I have been given 1500 mgs of
Urso
day and cholestyramine for the itching. The
Urso
makes me feel a little nauseous and I seem to be more tired too. Hopefully this will pass. Not sure what this disease means for me, but I have been immunized against, pneumonia, hep b and the flu.
AllieCraw
in
PBC Foundation
8 years ago
Living with pbc and under active thyroid and hopefully nothing else!!!!
On 1000mg of
urso
a day. My bowels seem to be affected the most.yellow putty stools one day then constipated and then normal for a few days.doctor says if liver tests don't settle I will need a liver biopsy. Have had a bone scan and ultra scan will get results in 6 weeks.
On 1000mg of
urso
a day. My bowels seem to be affected the most.yellow putty stools one day then constipated and then normal for a few days.doctor says if liver tests don't settle I will need a liver biopsy. Have had a bone scan and ultra scan will get results in 6 weeks.
Lcagar63
in
PBC Foundation
8 years ago
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