I am experiencing continued edema (though medications have helped significantly) and I believe I am experiencing some ascites. Frankly, it scares me to death. I'm trying to maintain a lower-salt, higher-protein diet; lose weight; and eat appropriately for someone who's undergone gastric banding surgery. It's overwhelming to try to meet all these nutritional requirements and cook for my other 4 family members. Does anyone have experience with managing ascites or insight to offer? I find myself obsessing over it and sometimes measuring my abdomen several times daily.
I was first diagnosed with PBC in 2008, took Urso for a couple of years, then allowed life to get in the way (and perhaps some denial) and was off and on the medicine for several years. Earlier this year, I returned to my GI specialist and restarted the Urso and am diligently taking it. The GI also referred me to a hepatology/transplant specialist to begin being followed by them as well.
I'm exceedingly thankful that I am not really experiencing any other symptoms of PBC, other than occasional pains/spasms in the liver area, but I am fearful. I'm only 49 years old and have a lot of living to do. Gratefulness for this community and those who so willingly share their personal experiences overwhelms me daily.
Thank you for you time and consideration!