Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,381 public posts
Filter results
Had my biopsy.
I can start the
urso
now so I'm going to read up n best time etc.
I can start the
urso
now so I'm going to read up n best time etc.
Twinkle26
in
PBC Foundation
8 years ago
Edema anyone?
My blood work isn't great as I had been off the
Urso
for 2 years... But in just a month back on, levels are improving. I've also had gastric band surgery (2010) and lost 200+ pounds (thus the weight gain is particularly frustrating). My serum albumin level is very low (1).
My blood work isn't great as I had been off the
Urso
for 2 years... But in just a month back on, levels are improving. I've also had gastric band surgery (2010) and lost 200+ pounds (thus the weight gain is particularly frustrating). My serum albumin level is very low (1).
tntarheel
in
PBC Foundation
8 years ago
Horrible dilemma update!
This showed stage 1 fibrosis, and the doctor said that my LFT's have come down a little now, so i don't have to start
urso
, which i,m very pleased about as he has confirmed that there is NO alternative for its source other then from harvesting it from dead animals. I have it in writing too.
This showed stage 1 fibrosis, and the doctor said that my LFT's have come down a little now, so i don't have to start
urso
, which i,m very pleased about as he has confirmed that there is NO alternative for its source other then from harvesting it from dead animals. I have it in writing too.
MissusTee
in
PBC Foundation
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What should I ask?
I was just about to start taking
Urso
with some trepidation I might add! Thankfully have had no side effects so all is good in that respect. I have my first follow up appointment with my consultant since diagnosis, back at the end of January, next week.
I was just about to start taking
Urso
with some trepidation I might add! Thankfully have had no side effects so all is good in that respect. I have my first follow up appointment with my consultant since diagnosis, back at the end of January, next week.
Milo2
in
PBC Foundation
8 years ago
Cholesterol
I heard that PBC caused high cholesterol and that taking
Urso
would solve that problem. I really really don't want to take statins - anyone else with the same problem? Thanks Kandypat
I heard that PBC caused high cholesterol and that taking
Urso
would solve that problem. I really really don't want to take statins - anyone else with the same problem? Thanks Kandypat
kandiepat
in
PBC Foundation
8 years ago
Update
My ALP is higher than it usually is so I don't know if the
urso
is not helping or what. I am still on the Vit D haven't had it rechecked yet. GP said will discuss Gastro on next visit. Hope everyone is well. Lisa
My ALP is higher than it usually is so I don't know if the
urso
is not helping or what. I am still on the Vit D haven't had it rechecked yet. GP said will discuss Gastro on next visit. Hope everyone is well. Lisa
Lisa15
in
PBC Foundation
8 years ago
Blood Tests
Diagnosed with PBC in January 2011 and take
URSO
. Suffer fatigue and joint pain and have steadily put on weight since taking
URSO
despite cutting back portions and eating healthily.
Diagnosed with PBC in January 2011 and take
URSO
. Suffer fatigue and joint pain and have steadily put on weight since taking
URSO
despite cutting back portions and eating healthily.
jrobertson1
in
PBC Foundation
8 years ago
Sudden rise in ALP
Hi everyone, I am a non responder to
urso
and my liver numbers have been gently increasing for the last 5 or 6 years.
Hi everyone, I am a non responder to
urso
and my liver numbers have been gently increasing for the last 5 or 6 years.
dreamy
in
PBC Foundation
8 years ago
Symptom of PBC or URSO?
Each day I take my 3
URSO
pills, 2 fibre pills, reactine (for the itch) I need this constant gassy feeling to go away...
Each day I take my 3
URSO
pills, 2 fibre pills, reactine (for the itch) I need this constant gassy feeling to go away...
Becca75
in
PBC Foundation
8 years ago
Horrible dilemma
I,ve been prescribed
urso
, but haven't started it. I emailed the manufacturer to ask them exactly where they sourced it from, as i,m a strict vegan. The answer was is that they source it from cattle from the slaughter house.
I,ve been prescribed
urso
, but haven't started it. I emailed the manufacturer to ask them exactly where they sourced it from, as i,m a strict vegan. The answer was is that they source it from cattle from the slaughter house.
MissusTee
in
PBC Foundation
8 years ago
Questran
Consultant this week put me on increased
urso
and also prescribed Questran for the itch. I'm just wondering if anyone else is on it? Do you find it helps?
Consultant this week put me on increased
urso
and also prescribed Questran for the itch. I'm just wondering if anyone else is on it? Do you find it helps?
Hidden
in
PBC Foundation
8 years ago
Second hepatology appointment
Hi just thought I would update you on my progress, I have now been prescribed the
urso
, x3 per day. I am now waiting on the liver biopsy date, my specialist wants me to wait to take the
urso
until after the biopsy as the
urso
may change the biopsy findings.
Hi just thought I would update you on my progress, I have now been prescribed the
urso
, x3 per day. I am now waiting on the liver biopsy date, my specialist wants me to wait to take the
urso
until after the biopsy as the
urso
may change the biopsy findings.
Twinkle26
in
PBC Foundation
8 years ago
Newly diagnosed and concerned about pain
Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've started
Urso
treatment, and my blood tests show that I'm responding well to it. My LET'S are slowly getting better. However, last month I had awful pain over the liver area and nausea lasting 3 days.
Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've started
Urso
treatment, and my blood tests show that I'm responding well to it. My LET'S are slowly getting better. However, last month I had awful pain over the liver area and nausea lasting 3 days.
Hibbsy
in
PBC Foundation
8 years ago
Treatment and advice
Urso
has definitely improved her bloods. If it's indeed alcoholic cirrhosis, would she still have to take
Urso
indefinitely? Many thanks Tim
Urso
has definitely improved her bloods. If it's indeed alcoholic cirrhosis, would she still have to take
Urso
indefinitely? Many thanks Tim
temirzhan
in
PBC Foundation
8 years ago
Newly Diagnosed
I was put on
URSO
immediately and I'm taking 1500 mg / day. I'm scared. I have a follow up appt. June 23rd after more blood tests so my dr. can monitor the progression of the PBC. My liver biopsy staged me at stage 1-2.
I was put on
URSO
immediately and I'm taking 1500 mg / day. I'm scared. I have a follow up appt. June 23rd after more blood tests so my dr. can monitor the progression of the PBC. My liver biopsy staged me at stage 1-2.
Becca75
in
PBC Foundation
8 years ago
Colon cleanse
I have PBC and Sjogrens and I take
Urso
. Has anyone else done one? Thanks kandiepat
I have PBC and Sjogrens and I take
Urso
. Has anyone else done one? Thanks kandiepat
kandiepat
in
PBC Foundation
8 years ago
Study for the new med Obetichiolic Acid and my experience
If you are not having symptoms
URSO
is optional. There are usually assistance programs from the Drug Company. Have you tried to go that route? My answer back: No Maam I haven't. My GI is insisting that I go on
Urso
, guess I'm confused as to whether I actually need it or not.
If you are not having symptoms
URSO
is optional. There are usually assistance programs from the Drug Company. Have you tried to go that route? My answer back: No Maam I haven't. My GI is insisting that I go on
Urso
, guess I'm confused as to whether I actually need it or not.
kauthement
in
PBC Foundation
8 years ago
Rapid progression of PBC and scared
I take 2000mg
urso
b12 injections and 5000 MCG daily, 1200 MCG folic acid, 40 mg methadone for pain, and phenagren and or zolfran for nausea/vomiting.
I take 2000mg
urso
b12 injections and 5000 MCG daily, 1200 MCG folic acid, 40 mg methadone for pain, and phenagren and or zolfran for nausea/vomiting.
stoowill
in
PBC Foundation
8 years ago
Urso
Then came
Urso
.😣. Now I itch at night, feel nauseous and have problems with anger. Too much of a coincidence for my liking. Has anyone heard of Low dose naltrexone?
Then came
Urso
.😣. Now I itch at night, feel nauseous and have problems with anger. Too much of a coincidence for my liking. Has anyone heard of Low dose naltrexone?
LindyRich
in
PBC Foundation
8 years ago
More confused than ever!
The consultant gastroenterologist (not a liver specialist) thought it was PBC and prescribed
Urso
. Within several weeks my LFT numbers went right down. Now he is saying that it's probably not PBC and to no longer take
Urso
.
The consultant gastroenterologist (not a liver specialist) thought it was PBC and prescribed
Urso
. Within several weeks my LFT numbers went right down. Now he is saying that it's probably not PBC and to no longer take
Urso
.
tinypixie
in
PBC Foundation
8 years ago
1
...
48
49
50
...
70
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1250 results
British Liver Trust
74 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest