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OMG , just had telephone appointment with GP
Have been trying to get an appointment for couple of weeks. End of last week called in to surgery to chase SAR, not going there again 🤯 any how asked for appointment , none available, surprise but did get telephone slot for this morning. Rang at 10.10 to check why my 09.45 hadn't happened, checking
Have been trying to get an appointment for couple of weeks. End of last week called in to surgery to chase SAR, not going there again 🤯 any how asked for appointment , none available, surprise but did get telephone slot for this morning. Rang at 10.10 to check why my 09.45 hadn't happened, checking
Polo22
in
Thyroid UK
7 months ago
Good News Update on my Joe
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
Cateydid
in
Advanced Prostate Cancer
7 months ago
WolfMiniMaze in Japan
I've got really lucky to get a surgery date in the 1half of December 2023. I'll be celebrating my 67th birthday in Japan, hopefully already AF free. My symptoms are really getting annoying as I get AF from music, especially heavy metal and today from jazz. Some voices , especially bass and/or angry ones
I've got really lucky to get a surgery date in the 1half of December 2023. I'll be celebrating my 67th birthday in Japan, hopefully already AF free. My symptoms are really getting annoying as I get AF from music, especially heavy metal and today from jazz. Some voices , especially bass and/or angry ones
MiniMeGreen
in
AF Association
7 months ago
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Dexa scan and low vitamin D
A GP at the surgery is insisting on a dexa scan as my TSH has been suppressed since I trialled T3, and she’s adamant I’m to reduce my levo dose (see my last two posts if more information needed). My question is, I had dire vitamin D levels of 22 and deficiency for I suspect at least 7 years whilst carrying
A GP at the surgery is insisting on a dexa scan as my TSH has been suppressed since I trialled T3, and she’s adamant I’m to reduce my levo dose (see my last two posts if more information needed). My question is, I had dire vitamin D levels of 22 and deficiency for I suspect at least 7 years whilst carrying
CornishChick
in
Thyroid UK
7 months ago
2nd Recurrence - treatment options
Hi everyone I am afraid it is back....4 months after second line treatment which means I am now platinum resistant. CA marker tripped (mine very sensitive). PET scan on Thu to see what is going on. I am devastated as I had such a good response and successful surgery for the first recurrence. I am
Hi everyone I am afraid it is back....4 months after second line treatment which means I am now platinum resistant. CA marker tripped (mine very sensitive). PET scan on Thu to see what is going on. I am devastated as I had such a good response and successful surgery for the first recurrence. I am
Itha
in
My Ovacome
7 months ago
sore, red eyes.
I’ve developed sore eyes this year. After going back and forth between GP and Optician, and making certain lifestyle changes , the diagnosis is it’s probably down to my thyroid. I’ve been taking Levothyroxin since I was diagnosed 12 years ago after Bowel Cancer surgery. I’m using eye drops every day
I’ve developed sore eyes this year. After going back and forth between GP and Optician, and making certain lifestyle changes , the diagnosis is it’s probably down to my thyroid. I’ve been taking Levothyroxin since I was diagnosed 12 years ago after Bowel Cancer surgery. I’m using eye drops every day
JacquelineH
in
Thyroid UK
7 months ago
Amiodarone effects on thyroid replacement post heart surgery
Hello EveryoneI thought I'd write a little update following the disaster of Amiodarone given to me post keyhole heart surgery. I had my surgery on 11th September. I was put on Amiodarone to regulate my heart rhythmn and rate post surgery. The surgery went well but the effects of Amiodarone on my thyroid
Hello EveryoneI thought I'd write a little update following the disaster of Amiodarone given to me post keyhole heart surgery. I had my surgery on 11th September. I was put on Amiodarone to regulate my heart rhythmn and rate post surgery. The surgery went well but the effects of Amiodarone on my thyroid
waveylines
in
Thyroid UK
5 months ago
hernia surgery options after Sbrt?
I finished Sbrt last September 2023. I’ve got a minor inguinal hernia that a surgeon just told me didn’t need surgery yet. But he went on to say that laparoscopic/robotic wasn’t an option because of my radiation Tx and the possibility of having to go in if a cancer recurrence. Only option was old school
I finished Sbrt last September 2023. I’ve got a minor inguinal hernia that a surgeon just told me didn’t need surgery yet. But he went on to say that laparoscopic/robotic wasn’t an option because of my radiation Tx and the possibility of having to go in if a cancer recurrence. Only option was old school
BL2023
in
Fight Prostate Cancer
7 months ago
went off Xgeva for a year, have to go back on it. Ideas or tips helpful
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Verbena1
in
Bone Health and Osteoporosis UK
7 months ago
Mavacemten for HOCM
Just wanted to post for the first time on here about my experience on this new drug which I've now been on for a couple of weeks, for the treatment of HOCM. But first a bit of background. I've had HOCM for 15 years (that I know of). I'm 44 years old. Only in the last few years have I really had any
Just wanted to post for the first time on here about my experience on this new drug which I've now been on for a couple of weeks, for the treatment of HOCM. But first a bit of background. I've had HOCM for 15 years (that I know of). I'm 44 years old. Only in the last few years have I really had any
Bluebert
in
British Heart Foundation
5 months ago
D day is here!
after a year of enduring this tumour, D Day is here! Surgery is just hours away. feeling good. After being left quite ill after a failed iron infusion, but made better by one which worked with a blood transfusion, feeling good. Thats not to say that there arent butterflies, of course there are. But
after a year of enduring this tumour, D Day is here! Surgery is just hours away. feeling good. After being left quite ill after a failed iron infusion, but made better by one which worked with a blood transfusion, feeling good. Thats not to say that there arent butterflies, of course there are. But
Hidden
Community Ambassador
in
Changing Faces
7 months ago
Gallstone
Back in June I went on a work trip to London , which I will state was one of the most stressful time I have experienced. I was staying in a hotel room and I awoke early hours in the morning with V&D , luckily I manage to drive home safely however nausea was terrible. I then had V&D for 10 days. At this
Back in June I went on a work trip to London , which I will state was one of the most stressful time I have experienced. I was staying in a hotel room and I awoke early hours in the morning with V&D , luckily I manage to drive home safely however nausea was terrible. I then had V&D for 10 days. At this
Griffyndor_Brat
in
British Liver Trust
7 months ago
Warfarin to Edoxaban
I have for the last few months been prescribed 60mg Edoxaban after 10 years of taking Warfarin after a DVT and PE. This due to my GP surgery merger with a bigger practice. Warfarin was my only option in 2013 before these new drugs became available. I'm told it's safer and no INR blood tests. I'd like
I have for the last few months been prescribed 60mg Edoxaban after 10 years of taking Warfarin after a DVT and PE. This due to my GP surgery merger with a bigger practice. Warfarin was my only option in 2013 before these new drugs became available. I'm told it's safer and no INR blood tests. I'd like
jackdaw50
in
Anticoagulation Support
7 months ago
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
rsacdoolittle
in
Cure Parkinson's
7 months ago
Now for something completely different
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Monday, when you probably will see this post. Crack of dawn. I will be on my way to University Hospital London for a Radical Prostatectomy on Weds. Yes, I've had to learn a new lexicon of terms and medical knowledge. Whilst for the last few months I have been an observer of comments and post rather
Tryfan
in
AF Association
7 months ago
Despair at not being helped
Long story. Diagnosed mild bronchiectasis 2010. Regular OP follow up till 2017 in local hospital and regional immunology clinic till 2021. Also have IgA deficiency and auto immune arthritis. Exacerbation since June 2023 and still coughing loads sputum every day. Sputum tests have shown lots of infection
Long story. Diagnosed mild bronchiectasis 2010. Regular OP follow up till 2017 in local hospital and regional immunology clinic till 2021. Also have IgA deficiency and auto immune arthritis. Exacerbation since June 2023 and still coughing loads sputum every day. Sputum tests have shown lots of infection
Scottiedottie
in
Bronchiectasis Support
7 months ago
Fistula & transplant.
I had my fistula surgery this past Tuesday. I will say the surgery went well. The fistula is sore and healing. It will take six to eight for it heal and mature. I finally had it long time for it to happen. The next step is transplant list at the Mayo clinic this Tuesday .I hope after this I will
I had my fistula surgery this past Tuesday. I will say the surgery went well. The fistula is sore and healing. It will take six to eight for it heal and mature. I finally had it long time for it to happen. The next step is transplant list at the Mayo clinic this Tuesday .I hope after this I will
Fsgs57
in
Kidney Dialysis
7 months ago
Endo and Adenomyosis
Hi all - I'm just wondering if anyone can advise further on what the likely next steps and/or treatments may be in my situation? I've had a private scan which has said: likely adenomyosis (focal and diffuse), bilaterial endometriomas - 4x5cm endometrioma on right side and smaller one on left side,
Hi all - I'm just wondering if anyone can advise further on what the likely next steps and/or treatments may be in my situation? I've had a private scan which has said: likely adenomyosis (focal and diffuse), bilaterial endometriomas - 4x5cm endometrioma on right side and smaller one on left side,
Scoutybob
in
Endometriosis UK
7 months ago
Penile Implants
Here in the U.S. there are two penile implants for E. D. They are the Coloplast Titan and the AMS 700. Both are internal with a saline water bulb hidden in the scrotum. When an erection is needed it is pumped up. Afterwards a click and the thing puts the fluid back in the bulb. Surgery looks barbaric
Here in the U.S. there are two penile implants for E. D. They are the Coloplast Titan and the AMS 700. Both are internal with a saline water bulb hidden in the scrotum. When an erection is needed it is pumped up. Afterwards a click and the thing puts the fluid back in the bulb. Surgery looks barbaric
JoeFriday
in
Sensitive Issues for Men
7 months ago
UK Brain Neurosurgeron recommendation?
Hi everyone, I have a brain paraclinoid aneurysm and I would like to go through endovascular surgery to repair it because it's causing me to lose my sight in one eye and I have strong headaches, photophobia and dizziness. I am scared of undergoing surgery with a doctor that is inexperienced or that butchered
Hi everyone, I have a brain paraclinoid aneurysm and I would like to go through endovascular surgery to repair it because it's causing me to lose my sight in one eye and I have strong headaches, photophobia and dizziness. I am scared of undergoing surgery with a doctor that is inexperienced or that butchered
Patient300
in
Brain health
7 months ago
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