My cancer journey-: I was diagnosed in... - SHARE Ovarian Can...

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My cancer journey-

Imnotsimmons profile image
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I was diagnosed in 2019 with stage 3 ovarian cancer. I had surgery and several different treatment protocols. I’m now facing my 3rd recurrence and about to decide, under the guidance of my wonderful oncologist, which treatment will be next. I feel fortunate that I’ve never suffered a lot of pain and that there are a lot of new treatment options. I am blessed with great support from my family and friends. I’m happy to be a part of this group and I look forward to learning from your experiences.

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Imnotsimmons
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Gercc profile image
Gercc

wishing all the best for you x

9667 profile image
9667

interested in knowing what type of regimes that you have been on for your recurrences and where they found the cancer all the recurrent times. I am facing recurrence. # 3.

Imnotsimmons profile image
Imnotsimmons in reply to9667

Thanks for the question! My first line treatment was Carbo/Taxol. Recurrence about 17 months later. Second line was Carbo/Doxil. A year later was Carbo/Gemzar and now- just about to start a fairly new targeted drug- Elahere. Sounds like a lot and it’s been a long road but this is the nature of the beast- we just have to keep trying to quiet it down. I’ve tolerated all the treatments pretty well- except for Gemzar which I had to stop because of awful face and neck swelling. I hope this has been helpful

Best of luck on your journey.

TxEm profile image
TxEm in reply toImnotsimmons

Hi! This has been almost exactly me tratment regimen pattern. The only difference is my first recurrence was a scant 9 months in and I did have Lymparza in between Carbo-Doxil and GemCarbo. I had Avastin with the GemCarbo then Avastin by itself for three rounds before it was quite evidence that GemCarbo has been a flunkie and I was platinum resitant.

Imnotsimmons profile image
Imnotsimmons in reply toTxEm

amazing! Such a similar path! Being platinum resistant you might be a candidate for Elahere. Did your doc test u for that? I just started and I’m feeling great.

TxEm profile image
TxEm in reply toImnotsimmons

yes! I actually started Elahere back in the beginning of July. It’s kicking my butt a bit. I’ve developed some lung problems and chemo induced colitis but it kicked the bejeebers out of my tumors so I’m hanging tough on it.

Imnotsimmons profile image
Imnotsimmons in reply toTxEm

Yes! Hang in there! Best of luck!

FDMD profile image
FDMD in reply to9667

Hi there I have has recurring ovarian cancer now since 2020..just finished my chemo for 3rd time again recurrence. My oc has recurred mainly by the some of liver.Ca rising again now...worried for further spread

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