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Further to my post of 9 months ago
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Rameau
in
Restless Legs Syndrome
2 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
2 months ago
First Post from New Member
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Hi everyone!, My name is Lisa. I can't believe there's a group of people who I can reach out to that know the hell I live with. I was diagnosed about RLS & PLMD about 25 years ago. I was 32. I've had 3 sleep studies done. I guess as with everyone, it was a bunch of trials and errors with
Leeserann
in
Restless Legs Syndrome
2 months ago
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How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
2 months ago
Not sure whether I should be pleased or disappointed. Sleep study results
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
PLMD (Passive limb movement disorder) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)-negligible RLS (restless Leg Syndrome) = Willis Eckborn Syndrome =EARLS (European alliance RLS) -(personal note
Spurdog1
in
Restless Legs Syndrome
2 months ago
Do B Complex vitamins upset the stomach? Advice please
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Irish_Gal
in
Thyroid UK
2 months ago
Modafinil - thoughts
I am nervous in posting this. Please Admins jump in and close / moderate if needed etc. I think modafinil has helped me get through low thyroid. There did not seem to be much on the web about modafinil and thyroid. A post on reddit I think, says it used to be prescribed to support thyroid in US but
I am nervous in posting this. Please Admins jump in and close / moderate if needed etc. I think modafinil has helped me get through low thyroid. There did not seem to be much on the web about modafinil and thyroid. A post on reddit I think, says it used to be prescribed to support thyroid in US but
Sleepman
in
Thyroid UK
2 months ago
Restless sleep
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
Licquoricelover
in
PSP Association
2 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
2 months ago
CPAP first time user - your experience please, 4G etc
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
secondtry
in
Atrial Fibrillation Support
2 months ago
adalimumab
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
I’ve been taking this Biologic for about six months now alongside high dose methotrexate injections which I have had for a couple of years. Since starting Biologic I have a sticky blocked nose and frequently blood in tissues when I blow my nose. My husband says I’m snoring really loudly and he has
Amb1xkr
in
NRAS
2 months ago
Not sure if I missed my progynova…advice please!
Hello I’m wondering if anyone can help?! I’m currently taking 2 x progynova per day and can’t remember if I’ve taken my evening dose. I likely did as I remember my alarm going off but can’t actually remember taking them. I can’t count back as not sure when I started taking this pack. I’m 7 weeks pregnant
Hello I’m wondering if anyone can help?! I’m currently taking 2 x progynova per day and can’t remember if I’ve taken my evening dose. I likely did as I remember my alarm going off but can’t actually remember taking them. I can’t count back as not sure when I started taking this pack. I’m 7 weeks pregnant
HokyKoky
in
Fertility Network UK
2 months ago
how common is tumor lysis syndrome after infusions?
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
elm1
in
CLL Support
2 months ago
Coverage of RLS?
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
Spurdog1
in
Restless Legs Syndrome
2 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
2 months ago
Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
3 months ago
Music therapy
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
PDKiwi
in
Cure Parkinson's
3 months ago
Gabapentin to Pramipexole for RLS/PLMD.
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Arrendene1
in
Restless Legs Syndrome
3 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
3 months ago
First MS Neuro Appointment!
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
MSFlea
in
My MSAA Community
3 months ago
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