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Temporal Artiritis - Mums current status
With no improvement in her condition, and another week before she sees any specialists, the road is still pretty shakey. She has one day in 3 without pain, and typically now 3-4 episodes of blindness in her left eye daily. We have found that either the blindness or combination of extreme pain happen
With no improvement in her condition, and another week before she sees any specialists, the road is still pretty shakey. She has one day in 3 without pain, and typically now 3-4 episodes of blindness in her left eye daily. We have found that either the blindness or combination of extreme pain happen
DianaAdshead
in
PMRGCAuk
9 months ago
Just had a routine blood test from my GP
I know its possibly anemia... No wonder I have been even more tired etc.. Another repeat test in a month.. PV JAK2+ Pega, aspirin. Can they give me iron pills?
I know its possibly anemia... No wonder I have been even more tired etc.. Another repeat test in a month.. PV JAK2+ Pega, aspirin. Can they give me iron pills?
shiftzz
in
MPN Voice
9 months ago
Non stop dizziness blurred vision confusion many issues from blood thinners anti platelets, so stopped them after 45 days post angioplasty!
I am 42 M , I had a blockage of 95% in Lad and it was stented 45 days ago and that time my total cholesterol was 200 and ldl 150 triglycerides 150 ! I had left arm pain and body pain for 6 hrs at home then I went to hospital and was my bP was 80/50 so doc told to stenting be done ! From then I
I am 42 M , I had a blockage of 95% in Lad and it was stented 45 days ago and that time my total cholesterol was 200 and ldl 150 triglycerides 150 ! I had left arm pain and body pain for 6 hrs at home then I went to hospital and was my bP was 80/50 so doc told to stenting be done ! From then I
Mazhar2024
in
British Heart Foundation
9 months ago
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waiting for a diagnosis
hi, I have just joined this forum and hope someone can reassure me. I have been having chest pains but put it down to indigestion until last week when it was worse. I didn’t want to call an ambulance as gp suggested but they saw me in surgery straight away. I have been on statins for years as most of
hi, I have just joined this forum and hope someone can reassure me. I have been having chest pains but put it down to indigestion until last week when it was worse. I didn’t want to call an ambulance as gp suggested but they saw me in surgery straight away. I have been on statins for years as most of
Anniecat680
in
British Heart Foundation
9 months ago
Anaemia after TAVI
In July I had a successful TAVI with an excellent recovery - until early September, when I experienced fatigue. At first I put this down to the very hot weather here in England. At the end of October I had useful telephone chats with two cardiology nurses, who looked at my records and wondered if I
In July I had a successful TAVI with an excellent recovery - until early September, when I experienced fatigue. At first I put this down to the very hot weather here in England. At the end of October I had useful telephone chats with two cardiology nurses, who looked at my records and wondered if I
Taviterry
in
British Heart Foundation
9 months ago
5th Deivf
Hi friends Fet booked for 22nd November. Lining good with trimillar lining this time .. Started pessaries , & pio shots along with clexane 3 days ango , oral progesterone & oral oestrogen. asprin & folic acid ! I had some pink spotting this morning 🫠 I’m sure it’s just the pessaries but as
Hi friends Fet booked for 22nd November. Lining good with trimillar lining this time .. Started pessaries , & pio shots along with clexane 3 days ango , oral progesterone & oral oestrogen. asprin & folic acid ! I had some pink spotting this morning 🫠 I’m sure it’s just the pessaries but as
Ladycoco20
in
Fertility Network UK
9 months ago
Aspirin bleeding problems
hi everyone, Just wanted to get a little feedback if possible. I had an issue about 10/12 weeks ago where I had a bleed from my back passage (already posted about this) went to hospital had all blood tests etc done and all appeared ok but was tol to stop aspirin for time being Had appointment last
hi everyone, Just wanted to get a little feedback if possible. I had an issue about 10/12 weeks ago where I had a bleed from my back passage (already posted about this) went to hospital had all blood tests etc done and all appeared ok but was tol to stop aspirin for time being Had appointment last
Grendall
in
MPN Voice
9 months ago
APS Symptoms
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
WendyWoo50
in
Hughes Syndrome APS Forum
9 months ago
dual platelet therapy
does anyone know what drug can be used as an alternative to aspirin ,I am on clopidogrel and aspirin but think he aspirin is upsetting my stomach I am already on lansoprozle to calm it down but think an alternative to aspirin would be the answer .
does anyone know what drug can be used as an alternative to aspirin ,I am on clopidogrel and aspirin but think he aspirin is upsetting my stomach I am already on lansoprozle to calm it down but think an alternative to aspirin would be the answer .
Maxbar
in
British Heart Foundation
9 months ago
Does anyone know
I was listening to morning live on Monday and Dr Ranj Singh was on the programme talking about blood thinners he said with some of them you shouldn't eat Brocoli or drink Cranberry juice. I'm on Asprin and Ticagrelor what are your thoughts im a bit worried should I or should I not be consuming both.
I was listening to morning live on Monday and Dr Ranj Singh was on the programme talking about blood thinners he said with some of them you shouldn't eat Brocoli or drink Cranberry juice. I'm on Asprin and Ticagrelor what are your thoughts im a bit worried should I or should I not be consuming both.
Coopergirl52
in
British Heart Foundation
9 months ago
MPN specialist Claire Harrison
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Wilbob
in
MPN Voice
9 months ago
Loss of libido following angioplasty
Hi everyone, I am a male, 45 years old and had a heart attack in July 2023. I had 6 stents inserted into my 3 arteries and ever since taking these medications: Asprin 75mg once a day Atorvastatin 80mg once a day Lansoprazole 30 mg once a day Nebivolol 2.5 mg once a day (I used to be on Biosprolol
Hi everyone, I am a male, 45 years old and had a heart attack in July 2023. I had 6 stents inserted into my 3 arteries and ever since taking these medications: Asprin 75mg once a day Atorvastatin 80mg once a day Lansoprazole 30 mg once a day Nebivolol 2.5 mg once a day (I used to be on Biosprolol
Tarrabing
in
British Heart Foundation
9 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
9 months ago
Prepping for a frozen cycle
Hello all Could I please ask whether anyone has used the Optibac probiotics for a fresh cycle or a frozen cycle? I hadn’t heard of them until recently. If so which ones did you choose or which did your clinic suggest to use? I’m guessing intimate flora for women which suggest they reach the womb. The
Hello all Could I please ask whether anyone has used the Optibac probiotics for a fresh cycle or a frozen cycle? I hadn’t heard of them until recently. If so which ones did you choose or which did your clinic suggest to use? I’m guessing intimate flora for women which suggest they reach the womb. The
Jules0277
in
Fertility Network UK
9 months ago
Had paroxysmal since 2016
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
RoyMac
in
AF Association
9 months ago
incredibly lucky
I feel so incredibly lucky after reading some of your stories. I had a HA 5 yrs ago, was told that if someone has to have a HA they would want one like yours? It was explained to me that it was on the right side and very low down?? I stayed overnight in hospital and the first time I saw a consultant
I feel so incredibly lucky after reading some of your stories. I had a HA 5 yrs ago, was told that if someone has to have a HA they would want one like yours? It was explained to me that it was on the right side and very low down?? I stayed overnight in hospital and the first time I saw a consultant
Calm2
in
British Heart Foundation
9 months ago
Sciatic Nerve and Prednisone
I am not sure anyone may want to comment on this, but i will ask anyway. I'm posting for my 89 year old sister who has been on 10mg of Prednisone for at least 3 years for back pain. She is suffering now from sciatic pain which is causing her not to be able to sleep because of the pain. Her GP has
I am not sure anyone may want to comment on this, but i will ask anyway. I'm posting for my 89 year old sister who has been on 10mg of Prednisone for at least 3 years for back pain. She is suffering now from sciatic pain which is causing her not to be able to sleep because of the pain. Her GP has
RaisinBran
in
PMRGCAuk
9 months ago
Steroids or Intralipids or both?
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
FierceGrace85
in
Fertility Network UK
9 months ago
Emergency cardiac admission to hospital. Advice please.
I had severe left sided pain Wednesday evening. Grabbed my hospital bag and took a taxi to emergency. It wasn't a heart attack but i was admitted to cardiology ward because of irregular ecg. On Sunday morning i am having a cardiac catheterization to look for and treat any narrowing of arteries. I
I had severe left sided pain Wednesday evening. Grabbed my hospital bag and took a taxi to emergency. It wasn't a heart attack but i was admitted to cardiology ward because of irregular ecg. On Sunday morning i am having a cardiac catheterization to look for and treat any narrowing of arteries. I
agingfeminist
in
PMRGCAuk
9 months ago
Is this normal?
After my blood tests last week I was asked to go in on Thursday for a transfusion, as haemoglobin only 69. Felt better for a few days after that but started to get breathless again from Tuesday. Had another transfusion today. Nurse said I might need them weekly for a while. Not on any drugs for the MF
After my blood tests last week I was asked to go in on Thursday for a transfusion, as haemoglobin only 69. Felt better for a few days after that but started to get breathless again from Tuesday. Had another transfusion today. Nurse said I might need them weekly for a while. Not on any drugs for the MF
lizzziep
in
MPN Voice
9 months ago
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