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DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
38yroldmale
in
Cure Parkinson's
7 months ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
7 months ago
Looking for support - glioblastoma
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma / glioblastoma. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy. Then they did some tests to determine viability of an "awake" surgical resection.
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma / glioblastoma. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy. Then they did some tests to determine viability of an "awake" surgical resection.
rlwremo
in
Glioblastoma Support
1 year ago
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Hi, does anyone use inteferon and turmeric? Is it good or is it counterproductive? Thanks
Interferón anda tumeric
Interferón anda tumeric
Mercedeshm
in
MPN Voice
1 year ago
Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
10 months ago
Suppliments that help with chemo?
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
Tinuriel
in
Advanced Prostate Cancer
10 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
9 months ago
Vitamins/supplements for cll?
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
Vivikaye1
in
CLL Support
9 months ago
Trialling magnesium
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
50568789
in
Restless Legs Syndrome
1 year ago
Aspergillus fumigatus
Both my wide and self have recently had Covid. symptoms seem to be dragging on and wife`s doctor told her to get a sputum test done. Finally after 2 weeks the results have arrived and she has Aspergillus fumigatus, a fungal infection in her lungs. Does anyone, with bronchiectais have any experience
Both my wide and self have recently had Covid. symptoms seem to be dragging on and wife`s doctor told her to get a sputum test done. Finally after 2 weeks the results have arrived and she has Aspergillus fumigatus, a fungal infection in her lungs. Does anyone, with bronchiectais have any experience
LissacFrance
in
Lung Conditions Community Forum
2 days ago
Doxycycline long term use
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Smiley60
in
CLL Support
13 days ago
Influenza A
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
skipro
in
CLL Support
16 days ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
9 months ago
Arnica cream for jab reactions
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
ClaireWF1346
in
Pernicious Anaemia Society
29 days ago
Buprenorphine Depression Again
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
RiversW
in
Restless Legs Syndrome
29 days ago
Advice Yeast Infection
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Jances13
in
Women's Health
29 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
1 month ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
1 month ago
Dr Glen Z brooks NYC
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
Shumbah
in
Restless Legs Syndrome
1 month ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
2 months ago
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