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People of HealthUnlocked - Parkinson’s Disease: “Life is never the same”
1 in 37 people alive today in the UK will be diagnosed with Parkinson's. Parkinson's is the fastest growing neurological condition in the world; every hour another two people are diagnosed with the condition. To help raise awareness in honour of Parkinson's Awareness Month, Barbara Kelly explains her
1 in 37 people alive today in the UK will be diagnosed with Parkinson's. Parkinson's is the fastest growing neurological condition in the world; every hour another two people are diagnosed with the condition. To help raise awareness in honour of Parkinson's Awareness Month, Barbara Kelly explains her
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Response CCG Re: T3 HELP
I have finally received a response from my local CCG . However my complaint was not successful. I would appreciate any pointers in how to respond to them. I enclose an edited copy.................. .........I am writing to let you know the outcome of our investigation into your complaint
I have finally received a response from my local CCG . However my complaint was not successful. I would appreciate any pointers in how to respond to them. I enclose an edited copy.................. .........I am writing to let you know the outcome of our investigation into your complaint
Flecmac
in
Thyroid UK
2 years ago
Novel COVID-19 Vaccine Shows Promise for People with Leukemia and Lymphoma
Following on from https://healthunlocked.com/cllsupport/posts/private/147878379/hope-for-a-universal-t-cell-vaccine-against-sarbecoviruses-i.e.-sars-cov-1-sars-cov-2-and-all-variants-sars-cov-3-and-so-on?responses=147880773&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response
Following on from https://healthunlocked.com/cllsupport/posts/private/147878379/hope-for-a-universal-t-cell-vaccine-against-sarbecoviruses-i.e.-sars-cov-1-sars-cov-2-and-all-variants-sars-cov-3-and-so-on?responses=147880773&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response
bennevisplace
in
CLL Support
2 years ago
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MPN Advocacy & Education international - Patient & Caregivers Conference April 15, 2022
For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
hunter5582
in
MPN Voice
2 years ago
EVOLVE trial for high risk chronic lymphocytic leukemia - CLL patients will test an early treatment intervention Vs watch and wait
'[i]The goal of the S1925 [EVOLVE] trial is to find out if early treatment can help people with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL) live longer and have a better quality of life.[/i]' '[i]Studies show that early treatment using older chemotherapy drugs doesn’t help
'[i]The goal of the S1925 [EVOLVE] trial is to find out if early treatment can help people with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL) live longer and have a better quality of life.[/i]' '[i]Studies show that early treatment using older chemotherapy drugs doesn’t help
CLLerinOz
Administrator
in
CLL Support
2 years ago
PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy
Here is one out of far left field https://www.frontiersin.org/articles/10.3389/fphar.2021.692574/full PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy www.frontiersin.orgSi-Min Qi1†, www.frontiersin.orgJinyun Dong2†, www.frontiersin.orgZhi-Yuan Xu2, www.frontiersin.orgXiang-Dong
Here is one out of far left field https://www.frontiersin.org/articles/10.3389/fphar.2021.692574/full PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy www.frontiersin.orgSi-Min Qi1†, www.frontiersin.orgJinyun Dong2†, www.frontiersin.orgZhi-Yuan Xu2, www.frontiersin.orgXiang-Dong
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Borrowing Trouble
Yesterday was my husband's quarterly doctor's appointment. He's been in a clinical trial for the last 5 1/2 year. As we near the end of the EMBARK Trial, I have been worried about how we will manage to get Xtandi after the trial concludes. He's not old enough for Medicare, and the co-pay with our employer-provided
Yesterday was my husband's quarterly doctor's appointment. He's been in a clinical trial for the last 5 1/2 year. As we near the end of the EMBARK Trial, I have been worried about how we will manage to get Xtandi after the trial concludes. He's not old enough for Medicare, and the co-pay with our employer-provided
COG1
in
Advanced Prostate Cancer
2 years ago
Low PSA levels are associated with greater prostate cancer-specific mortality among men with a Gleason score of 8 to 10
Conclusions: Among patients with high-grade disease, patients with PSA levels ≤ 2.5 ng/mL or PSA levels of 2.6 to 4 ng/mL appear to have a higher risk for cancer-specific death in comparison with patients with PSA levels of 10.1 to 20 ng/mL, and this supports the notion that low PSA levels in GS 8-10
Conclusions: Among patients with high-grade disease, patients with PSA levels ≤ 2.5 ng/mL or PSA levels of 2.6 to 4 ng/mL appear to have a higher risk for cancer-specific death in comparison with patients with PSA levels of 10.1 to 20 ng/mL, and this supports the notion that low PSA levels in GS 8-10
Hidden
in
Advanced Prostate Cancer
2 years ago
Lung Cancer Livingroom -Late Stage Treatment Options.
Please join us tomorrow, Tuesday, April 19th , for our Living Room discussion. We will have speaker Dr. David Gerber, from UT Southwestern Dr. Gerber will be speaking on "Treatment Options for Late-Stage Lung Cancer " Conversation detailing treatment considerations for patients with late-stage
Please join us tomorrow, Tuesday, April 19th , for our Living Room discussion. We will have speaker Dr. David Gerber, from UT Southwestern Dr. Gerber will be speaking on "Treatment Options for Late-Stage Lung Cancer " Conversation detailing treatment considerations for patients with late-stage
Denzie
Moderator
in
Small Cell Lung Cancer Support
2 years ago
Please join us tomorrow,Tuesday April 19th for our Lung Cancer Living Room: "Treatment Options for Late-Stage Lung Cancer "
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
MSC clinical trials to treat Parkinson's disease
Hope Biosciences Stem Cell Research Foundation is on a mission to reverse symptoms and cure Parkinson's disease! After seeing the results of treating 2 people through individual compassionate use studies, we wanted to work to make stem cell treatment available to everyone with Parkinson's disease.
Hope Biosciences Stem Cell Research Foundation is on a mission to reverse symptoms and cure Parkinson's disease! After seeing the results of treating 2 people through individual compassionate use studies, we wanted to work to make stem cell treatment available to everyone with Parkinson's disease.
sdiers
in
Cure Parkinson's
2 years ago
ATA188 and Good Friday thoughts
Thanks to FindingAnswersMaccy I was able to look up the exact clinical trial from that article and contact 2 different neurology departments in my area to potentially be a research participant in Phase 2 of that new drug, ATA188, that targets EBV. One wrote back to my email this morning and said they will forward
Thanks to FindingAnswersMaccy I was able to look up the exact clinical trial from that article and contact 2 different neurology departments in my area to potentially be a research participant in Phase 2 of that new drug, ATA188, that targets EBV. One wrote back to my email this morning and said they will forward
hopeandgrace
in
My MSAA Community
2 years ago
Bomedemstat Trial Update
Hello all. Just thought I’d post an update since it has been one month since I have been on the bomedemstat in the clinical trial. My platelets began at close to 1.5 million. I have been on the starter dose of 30 mg caplet once daily. After 30 days they are now at 800. No adverse effects were noted until
Hello all. Just thought I’d post an update since it has been one month since I have been on the bomedemstat in the clinical trial. My platelets began at close to 1.5 million. I have been on the starter dose of 30 mg caplet once daily. After 30 days they are now at 800. No adverse effects were noted until
Miriammusic
in
MPN Voice
2 years ago
VERU-111 (sabizabulin)
I was just reading about the very positive findings for sabizabulin in treating Covid-19 and remembered that several members had been in early clinical trials for prostate cancer (under the name VERU-111). https://fortune.com/2022/04/12/experimental-covid-drug-sabizabulin/ The reason it may work for
I was just reading about the very positive findings for sabizabulin in treating Covid-19 and remembered that several members had been in early clinical trials for prostate cancer (under the name VERU-111). https://fortune.com/2022/04/12/experimental-covid-drug-sabizabulin/ The reason it may work for
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Stem Cells Trials
I want to make a list here. Please reply with links .............................................................................................................................................................
BlueRock Therapeutics (Phase 1)
* BlueRock Therapeutics: Phase 1 Study To Assess
I want to make a list here. Please reply with links .............................................................................................................................................................
BlueRock Therapeutics (Phase 1)
* BlueRock Therapeutics: Phase 1 Study To Assess
Hidden
in
Cure Parkinson's
2 years ago
Israeli Researchers Say ‘Promising’ Supplements From Pumpkins, Peas Could Help Body Fight COVID-19
Israeli researchers believe a combination of readily-available substances found in pumpkin, peas, cashews and other fruits and vegetables can help protect the body against COVID-19 and other illnesses. Scientists at the Tel Aviv University say that a a cocktail of natural dietary supplements with zinc
Israeli researchers believe a combination of readily-available substances found in pumpkin, peas, cashews and other fruits and vegetables can help protect the body against COVID-19 and other illnesses. Scientists at the Tel Aviv University say that a a cocktail of natural dietary supplements with zinc
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Getting the most out of Radiation: Radiosensitizers
This is my season for more radiation treatments. This coming week I will have 5 SBRT treatments in 5 days to two newly identified small lymph nodes found on my latest PSMA scan. One in the right pelvis (external iliac) and the other in the abdomen near the celiac plexus. The latter now makes my "officially
This is my season for more radiation treatments. This coming week I will have 5 SBRT treatments in 5 days to two newly identified small lymph nodes found on my latest PSMA scan. One in the right pelvis (external iliac) and the other in the abdomen near the celiac plexus. The latter now makes my "officially
MateoBeach
in
Advanced Prostate Cancer
2 years ago
INBRAIN PHARMA: direct injection of dopamine into the brain
Injecting dopamine directly into the brain using a small internal pump is what Lille researchers have succeeded in limiting the adverse effects of conventional drugs linked to Parkinson's disease. The InBrain Pharma team is pleased to see its therapeutic solution - backed by very promising initial safety
Injecting dopamine directly into the brain using a small internal pump is what Lille researchers have succeeded in limiting the adverse effects of conventional drugs linked to Parkinson's disease. The InBrain Pharma team is pleased to see its therapeutic solution - backed by very promising initial safety
Hidden
in
Cure Parkinson's
2 years ago
CAR T vaccine
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
Scout4answers
in
Advanced Prostate Cancer
2 years ago
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